surgery nightmares

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txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 11/12/2008 1:53 PM (GMT -7)   
   Well I posted in here a couple of weeks ago with questions about what to expect during my resection surgery. I got some great answers and advice. Unfortunately, the worst of everything seemed to come with this one.
 
   I was scheduled for my first lapro on Oct 31. All went as expected until Sat the 1st when my pain got really bad and my fever went up. I went into convulsions on that night due to high fever I guess and do not remember anything until the following Saturday the 8th. I was in ICU for 7 days and the doctor couldn't figure out what was wrong. They went back in and did a full resection to get rid of a new infection on the 2nd. Now I am finally back to reality as of Sunday. My white blood cell count is still high so the doctor told me today that hopefully tomorrow I will get released. I was expecting a 4-5 day stay and a pretty easy recovery but now Im just lucky to be alive. I am really sore and know that I have a long recovery ahead of me now. 
 
    If anyone has this surgery in their future then good luck to you. Hopefully  it will go a lot smoother than this one.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/12/2008 1:59 PM (GMT -7)   
Wow, TXGuy, sure am sorry to hear of the rough time you had!!! Sheesh! Any idea what caused the high fever and convulsions? I can think of more fun things to do than go thru TWO resections in ONE week. I'll be you can too! Ah well, so now you are on the mend and whilst it will take some time to do so and some time to get your strength back at least you have remission to look forward to! May it be a long remission for you! You've earned it!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/12/2008 2:12 PM (GMT -7)   
Hi So glad to hear from you and wow cain't beleave you had 2 surgeries and you were worried about one. Did they do the first one lapo and then open you up for the second? Hope you get stronger each day now and take good care of yourself. It takes time to get the strength back. Let us know if we can be of help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/12/2008 2:19 PM (GMT -7)   
Wow so sorry to hear of all the complications you had. I pray that this at least brings you a long long remission. Be sure to rest alot and hope your recovery goes smoothly.

Hugs,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 11/12/2008 4:18 PM (GMT -7)   
Dang - what a terrible thing to have happen. Here's wishing you a speedy recovery without any further roadblocks!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/12/2008 8:21 PM (GMT -7)   
Im so sorry this happened to you, surgery is scary enough, let alone the added complications you had. Hope your recovery is speedy and uneventful :0
Jo

malb
Regular Member


Date Joined Oct 2008
Total Posts : 33
   Posted 11/12/2008 8:27 PM (GMT -7)   
txguy0419
So sorry to hear you are having such a hard time! Hopefully you will be on the mend soon and will enjoy a strong remission. This DD does suck hard, what?!
Good luck!
Michael

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/13/2008 11:06 AM (GMT -7)   
So very sorry about what you've had to go through. It can be really hard to heal after something like that. I know its unbelievably trite but be positive. Even if you have to talk to a RN for antidepressants. Having a positive outlook can aid in healing as much as getting up and walking around. Keep a pillow pressed to the sore things...it helps you feel more safe around healing scars. Good luck feeling better...and I hope its all going to be much better for you from now on.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 11/13/2008 6:10 PM (GMT -7)   

   Thanks for the nice comments everyone...I finally got to come home today. Been home about a couple of hours now and it feels great. I am really really sore though in my stomach. Is it normal to feel a ton of pain and tightness with a full resection. Also, My wound is leaking quite a bit too. The doc said to clean it a couple of times a day but it will take more  than that I think. They never really figured out what caused the lights to go out for a week but I got a 2nd infection that caused them to have to open me full up for the 2nd surgery. Any advice on how to make the pain as mild as possible...I took a shower when I got home and that was a major chore...walking even hurts right now.....

 

Thanks,

 

Mike 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 11/13/2008 9:08 PM (GMT -7)   
well mike, its gonna hurt for a while.. no getting around that. did they send some pain pills home with ya? dont be afraid to take 'em. just watch the drainage and if it starts to smell really bad, get back to the dr .. and dont take no for an answer..
randynoguts 



     http://www.geocities.com/randynogutsweb/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/14/2008 4:14 AM (GMT -7)   
Hi Mike I kept to sponge bathe till mine healed up I din't want to chance any problems. If there is any redness there or you get some get to the hos. for meds. Mine had got infected. Did they give you proper cleaning instructions? Tylenol for the pain might help. It might be a good thing if it is draining as it needs to get rid of the stuff I had a little hole in my belly after the stapes came out and had to go to the hospital evert day to have it stuffed with ribbon and cleaned with a syringe which didn't hurt .It took about 10 days for it to get better. Is there a small hole that it is seeping from? Take care and hope you enjoy being home it sure feels good to get back to our own beds. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 11/14/2008 4:52 AM (GMT -7)   
Thanks for the advice. I am really worried that I won't clean it good enough and it will get infected again. I'm gonna try to do my best though. about how long should I expect to have this much pain? I didn't really sleep at all last night. Couldn't get comfortable.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/14/2008 8:50 AM (GMT -7)   
Hi Did they tell you what to clean it with and use? Sterile gauze and a liquid saline solution to poor on it is what I used .I also had it covered good to keep it clean with sterile gauze or some big sterile dressings they gave me. . If you didn't get instructions and are near a hospital I would go in and ask. What kind of pain and where is it?Once I was home I didn't have much pain. Also if there is any redness around it it could be infected . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 11/14/2008 11:24 AM (GMT -7)   

Yeah The doc told me how he wanted it cleaned. Pretty much like you said you did yours. Also, my mother-in-law is an r-n so that will help a lot too. The pain is pretty much in the incision where they cut me. It doesn't seem like it's because of infection or anything it's just where he cut me is sore. I'm hoping in a couple of weeks I will be a lot better off as far as any pain goes then I can deal with the rest of the recovery.

 

Thanks a lot.

 

Mike


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2008 11:30 AM (GMT -7)   
Mike I got infections in my incision after both my resections, and had to do the same type of treatment gachrons did. As for the pain, just take it easy and use the pain meds as directed. The pain will get better in time, but since you are still fairly fresh out of surgery the pain right now is normal. It will get better, but like I said, it just takes time. Be sure not to let the pain get out of control at this point. Take the pain meds as soon as possible. If you wait too long its harder to get it back under control.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

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