ILEOCOLECTOMY A SUCCESS

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stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/13/2008 12:12 PM (GMT -7)   
smilewinkgrin Hello everyone, sorry it took me so long to check back in. THE SURGERY WAS A SUCCESS, YEAH IT'S OVER AND I AM IN REMISSION. I was back home ever since last saturday, I went into surgery on the 5th at about 2:00 and came home around 2:00 on saturday. You guys were right the pain after surgery is really managable everyone at the hospital was so kind a comforting. When I first arrive I was a little nervous but not really, I was just ready to get it behind me and out the way, for some reason I was at ease at last. When I arrived I had changed into a gown no clothing at all bummer. They drew my blood, and gave me a blood thinner shot in my stomach they really sting. Then they gave me these SCD stockings so after surgery they could keep the blood flowing in my legs properly and to prevent a blood clot. I waited in the pre room for about an hour with my stepmom and aunts and uncles. They all had a prayer  and about twenty minutes later they came and got me and took me to another little prep area, where they started my IV and I got a chance to talk to my doc before surgery. Then they started to shoot me up with the loopy medicines that calmed me down, Then I was rolled to the operating room, it was like I was in the twilight zone and the next thing I remembered was them placing the oxygen thingy over my mouth and nose, it felt like I was abducted by aliens because the only thing I remembered were the really bright lights over head and then nothing. I woke up about 2 hours later in recovery still very sleepy and loopy, and the first thing they asked me was how much pain I was in, I was like it way like a five. They immediately started my pain pump the pain slowly drifted away until I really wasn't in any pain, just still sleepy regaining consciousness. After about an hour I was wheeled out and all my family was in the hallway, I immediately gave them a thumbs up, because all of them looked terrified. The were relieved after that gesture. I was rolled to my room in and out of sleep. Then eventually I was able to stay awake and talk to my family. Then the itchiness started terrible itchiness I was scratching all over, this was from the pain meds. I was happy to be itchy rather than in pain, my aunt rubbed lotion and scratched my back gave me temporary relief, after I knew that the pain med was making me itch this much I slacked off on pressing the pain pump. I was still not in much pain at all despise my incision was from the right side of my belly button down to a little above my pelvic bone. I was so aggarvated about not having anything to eat they brought me some ice chips, my mouth and lips were really dry and the ice chips just gave me something to keep my mouth moist a little. The morning my doc came in and asked if I had any naseau, I was like no I've been eating ice find though, so he decided to give me liquids and I tolerated them well, I guess I was so hungry. I also chewed spearmint gum to try and stimulate my bowels and bigolly it worked, that night after walking three times also that day a rush of you no what came out to say hi. The next morning he started me on solids and I tolerated them as well. I was eating grits, eggs, and french toast with no pain from crohn's it felt like I was freed from a prison of pain and anguish which I was in for over 4 years since my diagnoses. The next morning I was released and back at home. With no internet connection until now. Sorry it took me so long but I'm here and better than ever. I JUST WANT TO SAY IF YOU ARE RECOMMENDED TO HAVE SURGERY THAN TAKE EVERYTHING INTO CONTEXT, FIND SOME FORUMS TO GET ADVICE AND WHAT TO EXPECT, THEN GO FOR IT. I HESITATED FOR OVER A MONTH AND POSTPONED IT, AND NOW I AM GLAD ITS BEHIND ME. I CAN HONESTLY SAY IT IS NOT THAT BAD, AND YOU WILL BE GLAD THAT YOU DID IT. smilewinkgrin yeah Well, I will probably be back on in the next couple of hours, I have a check up with my surgeon at 3:45, but all is well my incision doesn't even hurt anymore, just a little bit uncomfortable when I stand, can't lay completely flat on my back or on my sides yet but all is well. GACHRONS I DID IT, IT'S OVER!

Post Edited (stephx) : 11/13/2008 12:15:28 PM (GMT-7)


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 11/13/2008 12:17 PM (GMT -7)   
I'm so glad it went well for you and that it was a good experience. I'm glad to hear that you are pain free. I hope you stay well. Enjoy the relief!

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/13/2008 12:31 PM (GMT -7)   
Stephen, I am SO PROUD OF YOU!!! yeah    I have been thinking about you every day!  It sounds like the surgery was a wonderful success!  WOO HOO!  Blessings, Julie :-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/13/2008 12:48 PM (GMT -7)   
Hi Little friend I was so glad to see your post I got some little tears in my eyes.I am releaved you did so well and very thank ful that you got it done .Thanks for all the details I wanted to know everything and will be looking forward to you having a long remission. Yahoo ! Everyone has been here thinking of you. love gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 11/13/2008 1:10 PM (GMT -7)   
YAY!
 
See I knew you could do it!!!! Im so proud of you!
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly), 10mg Pred (tapering), Nexium, B12 injections.
 

JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 11/13/2008 2:22 PM (GMT -7)   

Wow that is quite the story....thanks for sharing I'm sure others on this site that are a bit skeptical about having surgery found comfort in your post. Glad it unfolded properly for you and enjoy the new sense of relief and happiness.

 

JAB


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/13/2008 2:28 PM (GMT -7)   
Yay!!!! I'm glad it worked out best for you!! Sorry if I was part of you putting it off - it just didn't seem like you had the info you needed at the time. I am so happy you are feeling better!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/13/2008 2:33 PM (GMT -7)   
Good news, Stephen. Congratulations.
Co-Moderator Crohn's Forum.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/13/2008 4:07 PM (GMT -7)   
Wow that is great Stephx!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/13/2008 4:35 PM (GMT -7)   
Hi Pal,

excellent news for you. And thanks for telling us such a good news story about surgery. Hopefully, your remission will last a long long time.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/13/2008 4:42 PM (GMT -7)   
I'm glad it went so well :-)! It also makes me feel better if I ever have to go under the knife. So what are the plans now? What kind of maintenance meds do you have to take?

stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/13/2008 5:04 PM (GMT -7)   
Right now I'm on an antibiotic called flagyl twice a day, and darvacet a pain pill which I only took twice since being home. Still taking my pentasa and 6MP which I saw my surgeon and gastro doc today. My gastro doc told me for now he is going to keep me on both meds and then take me off one later. But I am so happy that the surgery is over, and I CAN EAT WITH NO PAIN. Just praying everday and taking my meds like I am supposed too. Everyone was right the surgery is worth it and honestly the pain is not that bad, just you get tired from sleeping on your back for awhile, my lower back muscles are killing me, but not my stomach. YEAAHH! How come nobody warned me about the itchiness I was about to go crazy they had me on dualdid after surgery, excellent pain med but it makes you itch like crazy. You practically want to go nuts from the hospital sent and the gowns are aggravating. This is basically what drived me crazy, but all in all it was okay. Oh yeah and the blood thinner shots in the belly every morning were a pain. Just looking forward to getting back to a healthy weight.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/13/2008 5:37 PM (GMT -7)   
I got Vicodin after my gallbladder was out, and ended up not taking them because they made me itch so much. I got Percocet last summer for Crohn's pain, and although they made me itch like mad too, I took them anyway because it beat the pain. I think it must be a mild allergy to opiates or something.

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 11/13/2008 6:23 PM (GMT -7)   
Hey Stephx. I'm glad your surgery went well and you're on the mend. Take it easy. SB
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


malb
Regular Member


Date Joined Oct 2008
Total Posts : 33
   Posted 11/13/2008 7:56 PM (GMT -7)   
Hurrah for you Stephen!!!
I'm so glad everything went well and you are experiencing some relief. I hope you have a long remission!
Take Care
Michael

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/13/2008 8:03 PM (GMT -7)   
YAH Stephen, glad it all went so well for you. I think drinking the prep was the worse part for you ! Hope you have a speedy recovery and a long remission. :)
Jo

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/14/2008 4:00 AM (GMT -7)   
Hi Steph Sounds like you are doing good with food and it won't be long you will be gaining. It makes a big difference to get rid of the belly pain doesn't it? I got my shots in the arm and they stopped them after I could walk good. See you had lots of family support that is great. I went to bed early last night so wasn't here when you got back. How much weight did you loose you figure altogether? I found it didn't take me long to get the weight back on.

Did you get your staples out yet? Well going into town today to get my cinnamon bun I usually get for a treat. Will be looking forward to talking more later. Have a good day. love gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2008 8:09 AM (GMT -7)   
Let me be one of the first to say "We told you so":) So glad everything went well. Be sure to follow your doctors orders and not over do, and be sure to stay on your maintainence meds so you can enjoy a long long remission. Doing the happy dance for you!!!!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Armbuster
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/14/2008 9:05 AM (GMT -7)   
Great to hear it went well. Thinking of the surgury also was recomende. Dont forget about us crohnies. Hope all works out.

lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 11/14/2008 10:05 AM (GMT -7)   
I'm so happy to hear things went well and you are doing good! Very proud of you and hoping for a long remission for you!
32 yr old Dx w/UC in 2001 - some what controlled by diet. I take multi-vitamins & probiotics.
Mother to 16 yr old daughter dx w/CD 9/07- she had surgery for abscesses 11/07, ileocolectomy/resection 10/08. She is taking multi-vit, iron for anemia, probiotics, bentyl prn, prilosec 20mg-x2, 6 mp 50mg-x3


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/14/2008 10:09 AM (GMT -7)   
I went to get my check up yesterday, my aunt took me. When I arrived the nurse had forgot to put me down for my scheduled time and my surgeon was in an emergency surgery at the time. So she called him to see if he was around the office, he told her to take my staples out and to check my vitals. Funny thing is that there were no staples at all, I ws so small that he just stitched me closed and put little terry strips across my incision to help keep it closed. She looked at it and was amazed how fast I was healing, there is just a line of scabs now nothing leaking or spuiling any discharge or pulse. She checked my weight and I had gained like 4 pounds since surgery last week, I went in a 103lbs now I am close to 110lbs. I hope I am not taking things to fast I a eating mostly anything that I want, I have no D but I am still bleeding a little when I go. I gues this is normal, since I am a little over a week out of surgery. All in all I lost about 30 to 35 lbs over this 4 year ordeal, but when I was on remicade about two years ago I was starting to gain, but was cut off of it when my insurance got axed. The nurse said that since I am not taking any pain meds that I can start back driving for little distances now, and that I should really start picking up weight five weeks out. I go back for a check up with my surgeon in two weeks, and my gastro the first week in january.

ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/14/2008 10:37 AM (GMT -7)   
spookyhurst said...
I got Vicodin after my gallbladder was out, and ended up not taking them because they made me itch so much. I got Percocet last summer for Crohn's pain, and although they made me itch like mad too, I took them anyway because it beat the pain. I think it must be a mild allergy to opiates or something.
i had the same itchiness when i was on dilaudid in the hospital too..i kept scratching my arms and chest...but i ignored it because boy does that stuff work great!!!! i felt like i was cured lol...the itchiness slowly went away as i kept using it...and i was the same with all the pain pills i've taken since then..i couldn't function off of them..i was either too dizzy or too sleepy..but now im used to them and can function fully of off vicodin...ur body may just have to start building up a tolerance to the opiates until those side effects go away...
21 year old female
Diagnosed with Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Weaning off of Prednisone!


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 11/14/2008 12:18 PM (GMT -7)   
Congratulations! No staples? I'm jealous! My staples hurt and itched like crazy and I was so glad to get them out! And you gained weight right after the surgery? I lost 15lbs from being in the hospital and another 5 right after...whatever you are doing, keep it up!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 11/14/2008 12:32 PM (GMT -7)   
I guess that I was so small, and I am really not supposed to be that small, becuase I wear a size 11 shoe and all my family members are pretty hefty. So I guess my body said no more ad tooK in everything I put into my mouth, my doc was surprised that had no naseau at all. My appetite is a little off, but drinking ensure helps that actually helps to pick it up.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2008 12:54 PM (GMT -7)   
Don't get too crazy with your diet. Take it slow and easy and slowly work in some of the harder foods.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

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