so many meds!!!

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kelliej
New Member


Date Joined Nov 2008
Total Posts : 18
   Posted 11/13/2008 3:27 PM (GMT -7)   
I feel like I have thousands of questions.  Thanks for all the responses I have received.  I sat down and looked at all the meds my daughter is taking and it just seems like so much.  She is just 15 and barely 100 pounds.  Any feedback would be greatly appreciated:  Lialda, diclofenac (I think this is for the arthritis) prevacid, metronidazole, methlyprednisonlone (prednisone) and  a new one today---azathioprine???  Does anyone know what that last one is for.  She is currently in a flare (only her second---the first responded to prednisone but this one does not seem to be)  Does everyone with chrons take this much meds and do you think this will last a long time???   Thanks!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/13/2008 3:39 PM (GMT -7)   
Azathioprine, aka Imuran, is an immunosuppressant.

You can find more information on most of these medicines by looking in the Crohn's Disease Resources thread, which is at the top of the forum. You might also find it helpful to look at the new meds thread, which I'll bump for you.

Don't be dismayed by the number of meds she's taking. It's quite common for us to be taking a lot of tablets.

Ivy.
Co-Moderator Crohn's Forum.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/13/2008 7:31 PM (GMT -7)   
It is a bit much sometimes to have to take all of that medication...I'm sorry to hear the prednisone is not working. My doctor had it given to me via IV for a week when the tablets lost their effect and immediately afterward they worked again so your daughter might just need a jump start so to speak..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 11/13/2008 8:35 PM (GMT -7)   
I know it can sound scary. I hate it when a doctor wants me to list everything I take, it's hard for me to remember them all. Since in addition to the Crohn's meds I take blood pressure pills, birth control ect... I'm only 31, and my pill box is like I'm 80!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2008 8:19 AM (GMT -7)   
Yes we do take alot of pills, but they are for the best. Its better to keep the disease under control than letting it get out of control and trying to rein it back in. I just had a conversation yesterday with my GI and he said not only is modifying your diet important with this disease, its also very important to take your maintainence meds.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2008 8:42 AM (GMT -7)   
Yes we do take alot of pills, but they are for the best. Its better to keep the disease under control than letting it get out of control and trying to rein it back in. I just had a conversation yesterday with my GI and he said not only is modifying your diet important with this disease, its also very important to take your maintainence meds.

Also, I saw a quote recently that explained our medicines pretty good. It says steroids are like a nuclear bomb, they completely shut down the entire immune system and the Immune Suppressants and Biologics are like laser guided missiles and they take aim at quieting the disease. Hope that helps some.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/14/2008 9:55 AM (GMT -7)   
im actually not on alot of pills...only 75mg of 6MP (thats one pill) and 5mg of prednisone (that makes 2 pills), but i'll be off of it for good on Tuesday :)...and of course my remicade treatments every 6 weeks...it looks like i may only have to get my remicade treatments and just take one pill a day, the 6mp, and thats it! it all really depends on what course of action ur doctor wants to take and what seems to be working.
21 year old female
Diagnosed with Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Weaning off of Prednisone!


kelliej
New Member


Date Joined Nov 2008
Total Posts : 18
   Posted 11/14/2008 2:00 PM (GMT -7)   
again. Thanks for the the advice and support! It is so nice to be in contact with people that have lived with this and can give insight. Have a great weekend.
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