Lower back pain- related to flare or not?

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sweettea
Regular Member


Date Joined Sep 2007
Total Posts : 32
   Posted 11/13/2008 4:18 PM (GMT -7)   
Last month I had a huge flare.  I went on a 40 mg. prednisone taper, and got quite a bit better, but the pain in three spots in my belly have never quit hurting.  They don't hurt as excruiciatingly as they did at first, but it's still there, and painful to bend over.  Ever since this last flare, I've had quite a lot of pain in my lower back.  It's so bad I can't stand or walk for very long.  I mentioned the belly pain/back pain to my GI's nurse, and, just before my last 5 mg prednisone pill of the last taper, I am back up to 40 again.  So here goes another month or so of it. 
 
I feel like the folks here know as much, or probably more, that the nurse could tell me.  Is the back pain likely related to the flare?  It came about the same time.  It hurts from my tailbone to just below my waist. 
 
Thanks for any help.
 
ETA:  I forgot to say:  I am so happy!  My Patient Assistance was approved, and I don't have to worry about buying my Pentasa for a year.  This is a huge burden off me, as we are living off credit cards and paying them off with our home equity right now.  It's been scary.


_____
IBD- Pentasa, Canasa, Entocort EC, Librax
Migraine- Fioricet, Topamax
Fibromyalgia- Zoloft,  Tramadol (prn)
Immune Disfunction Disorder? - Antibiotics out the wazoo, steriod shots
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2008 8:49 AM (GMT -7)   
Yes the lower back pain is probably related to your flare. You have inflammation in the intestines so that could cause the referred pain in your lower back. Also, the Pred itself can cause that kind of pain, especially when you are weaning down.

I recently did a quick 10 day burst of Pred and when I had finished it, I suffered for a week with really bad hip pain that went down the back of my thigh. It went away after about a week. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/14/2008 9:36 AM (GMT -7)   
i had the same problem and still do...i was just diagnosed with CD and had my first huge flare up with it and was told that the pain was probably my intestines or weaning off the pred...but im still having that shooting pain...they checked for kidney stones and cysts on my ovaries but they found nothing..but now we're looking into gallstones...that may be your problem...being on prednisone and having crohn's greatly increases your chances of getting gallstones...if u have a gallstone it can cause radiating back pain from ur back to ur hips and what not..if it's more on ur right side u may want to look into checking out ur gallbladder...good luck tho! i know how annoying/painful it can be! :(
21 year old female
Diagnosed with Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Weaning off of Prednisone!


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 11/14/2008 9:47 AM (GMT -7)   
I went to see a Rheumy about my ankles swelling. Because I have Crohn's, she questioned me A LOT about lower back pain. I've had some lower back pain when in a flare but my ankles were still more my problem. But she kept probing me about LOWER BACK PAIN. She told me about Spondyloarthropathy, which is evidently a broad category of arthritic diseases that can be prominent in Crohn's patients. She took an xray of my sacroiliac joints (lower back/pelvic area). I haven't gotten the results back on that. You might want to research that a little or ask your doctor about it.
Diagnosed in October, 2004 at age 32.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


kelliej
New Member


Date Joined Nov 2008
Total Posts : 18
   Posted 11/14/2008 3:59 PM (GMT -7)   
I am sorry you are having that much pain.  My daughter was diagnosed with crohns last spring but her lower back had been killing her for a year before she was diagnosed. (she is 15)  We tried everything-x-rays, body scans,nothing showed up.  Then we went through several months of  physical therapy.  When she was diagnosed with crohns I knew there was a correlation with crohns and arthritis.  There is a blood test called hbl27 (that is not the real name but it is close) she actually tested negative for it --but--the pain never went away.  I ended up asking a friend of mine (who is a physician) to order an MRI.  Sure enough she did have arthritis in her SI joint.  Hope this helps

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/14/2008 10:53 PM (GMT -7)   

It is my understanding that even Crohnies who do not test positive for the HLA-B27 gene marker, or have arthritis often suffer lower back pain due to inflammation of the terminal ilium,  because the sciatic nerve runs very close to the ilium. 


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/14/2008 11:57 PM (GMT -7)   
Even with my CD only affecting my colon and not my TI during a severe flare of going 30+ times a day I had excruciating lower back pain during every bowel movement...so yes, it can very much be related to your flare.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/15/2008 8:01 AM (GMT -7)   
So, whatever the cause, it seems we all agree lower back pain is related to a Crohn's flare. I hope and pray none of us carries the HLA-B27 gene variant, someday I may let them test me. Many of my family members test positive. It is near impossible to have the degree of inflamation most of do, and not have lower back pain. I am happy mine still goes away when I am in remission.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/15/2008 6:20 PM (GMT -7)   
I'm happy that it gets better for me as the flare gets better (never been in full remission yet).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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