Having a hard time dealing.....

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 11/14/2008 6:14 PM (GMT -7)   
I've had Crohns disease since I was 10 years old. It wasn't officially diagnosed then, but looking back on the hell I went through, theres no way it wasn't. I was diagnosed officially when I was 18. Doc said it was the worst ileum he'd even seen. I was put on Pentasa, Remicade, Imuran, Endocort, Prevacid, Bentyl, and Zelnorm.. until it was pulled. I was on the max dose of everything. Crohns has just gotten to me. The disease was so horrible to me between the ages of 18-23 that I didn't know how to deal. I was constantly tired, constanly running to the bathroom, I had terrible stomach pain, I felt hopeless. I finally went to my doctor and told him that I can't do it anymore. I can't take 20 pills a day, I just can't deal. I had a bowel resection in Dec. 07. I starting having crohns symptoms again in July.... I went on vacation with my friends and insted of taking shots of liquor.. I was taking shots of Pepto Bismol. My crohns has reoccured... just 7 months after surgery. I'm back on Endocort. I just want to scream. I find myself resenting my body alot for what it has put me through. I take alot of my anger out on myself by exercising until I literally feel like I could throw up. I'm mean to myself and shouldn't be. I do have a councilor and she's a big help. I guess I'm just wondering if anybody else feels like this? How do you cope when crohns takes over or your having a flare up or pain? I guess I just need some support... any ideas on anything?
-Heather, 23 yrs. old
____________
- Crohns disease since 1995, offically diagnosed in 2003.
- Bowel resection in Dec. 07, Crohns reoccured July 08.
- Medications - Entocort 3mg.
- Emotional wreckage... to great to even begin.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2008 6:25 PM (GMT -7)   
((((((((( Heather ))))))))) I'm SO sorry you are dealing with SO much when you are so young. Wow . . . you've been through the wringer.

Its really good that you are seeing a counselor. I hope that is really helpful to you. Did you know that spending your energy on over-exercising can actually 'cause' a Crohn's flare?? I have much more energy and health when I don't punish my body by over doing. For me, especially emotional stress can cause big problems. I work hard to find the perfect moderation between activity and rest. I'm so sorry you have to deal with all of this when you should be carefree. Sending you heartfelt hugs sis.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 11/14/2008 7:18 PM (GMT -7)   
OH wow I'm so sorry your having a such a rough time with it!! I can't even imagine!! (((Hugs)))
It's good your talking with someone too. Keep that up as that is important! I have never had to have
surgery nor do I have CD really bad but hang in there. I will pray you get to feeling better quickly!
Take it easy on yourself!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Methotrexate injections once a week 15mg
                           Folic Acid 1mg every day
                          
No Surgeries
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/15/2008 5:51 AM (GMT -7)   
Hi Heather I have made diet changes since DX I stay with a low residue diet . Since my resection in Jan .I have remained in remission .I do not overdue it with the exercise and if you are in a flare try to take it easy on yourself my idea is to love the bowels and take good care of them.

I take a vitamin whick has all the vitties and make sure I have vitamin K in it as we need our vitamins after resection. I also do B-12 shots and Vit D and a calcium with Mag.

A better approach to CD is helpfull you cain't make it go away but you need to love yourself in order to help yourself. Your med might not be the one to help you either. Stay with us and let us help you if we can. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/15/2008 7:56 AM (GMT -7)   
I think most people even after surgery have to continue on maintenence meds to keep the crohns from just moving to a new part of the intestine. I wouldn't punish yourself for having to take medication. It is part of the course with this disease and most people (except those who are allergic) are on them for life.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/15/2008 10:50 AM (GMT -7)   
Having Crohns Disease means we have to make changes in our lives for life. Yes we have to take our maintainence meds, modify our diets. I have had two resections and my Crohns is currently in remission. Its taken a long time to get me to where I am today. As long as I get the rest I need, take my medications, and eat a safe diet right for me, I am able to carry on. Its not always easy, my mornings still suck, but I am learning to live with this disease. Its definetly not easy. HUGS!!!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/15/2008 12:22 PM (GMT -7)   
(((Heather)))  Welcome to Healing Well! :-)   You have found the right place for comfort and support.  I am so sorry for all you have been through.  As others have suggested, you still might need some maintenance meds to keep everything in check.  Also, you might be physically over-doing it.  Do you follow any special type of diet?  Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 11/16/2008 1:57 PM (GMT -7)   
Before my resection I definitely knew the foods that I could not eat. After the resection, I was completely over joyed to be able to eat whatever I wanted! haha. I have found though, that eating organic really helps. I've gotten the book, The Makers Diet, and I am trying to follow that. It seems to have helped alot! I went over to Italy for a month in May a year ago, when I still had the active disease. I had absolutley no problems over there because what they eat is organic and 100% fresh. Its just hard sometimes because I'm a full time student and I work, so options are limited, but I try my best. Thanks for all the support!
-Heather, 23 yrs. old
____________
- Crohns disease since 1995, offically diagnosed in 2003.
- Bowel resection in Dec. 07, Crohns reoccured July 08.
- Medications - Entocort 3mg.
- Emotional wreckage... to great to even begin.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/16/2008 2:24 PM (GMT -7)   
Going to Italy sounds like fun. Sounds like you are living a busy life. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 4:24 PM (GMT -7)
There are a total of 2,735,543 posts in 301,315 threads.
View Active Threads


Who's Online
This forum has 151417 registered members. Please welcome our newest member, porkdot.
324 Guest(s), 11 Registered Member(s) are currently online.  Details
ewafromwarsaw, Gemlin, House_rocker, Serenity Now, Loutucky, LG13, NiceCupOfTea, U B Tough, LymieWriter8, Mustard Seed, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer