I'm so happy tonight!!

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LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 11/14/2008 7:26 PM (GMT -7)   
I went to see my GI doctor today for follow up.  For those that don't know I went into a flare around the
end of April and have been sick all summer.  Went on prednisone and then Methotrexate and now off prednisone
about 2 months now.  I was up on 25mg of Methotrexate (injections).  Anyway, today doc said I can go ahead
and decrease it to 15mg for the next few months since I have been feeling so good.   YAAH!!!! smilewinkgrin   
I am so excited to be able to take less of it now. I just hope I continue to do well.  I go back
in Febuary and he said he would talk then and if I'm still doing good maybe we would try taking me off it
and see what happens.  I'll be scared!! LOL  
 
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Methotrexate injections once a week 15mg
                           Folic Acid 1mg every day
                          
No Surgeries
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2008 7:46 PM (GMT -7)   
(((((((((( LBJ ))))))))

Good luck with your taper!!!! Woooo Hooo!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/14/2008 8:05 PM (GMT -7)   
It's good to hear some good news for a change. I'm pleased for you....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekl

Positivity, while not a cure, is positively far better than negativity.
"Mental attitude can move mountains" A message from my son.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 11/14/2008 9:12 PM (GMT -7)   
Thanks for checking in LBJ. I remember reading your posts. I just did my 4th 25mg injection, hopefully it will work for me too.

How long did it take for you to notice an improvement?

Also I notice that on your old posts you took 5mg of folic acid and now just 1. How long did you take 5 for? I was taking 2 or 3 but now just 1 a day and I'll see how it goes.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. Udo's Choice Probiotics (30 billion).


Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.

Tried SCD, didn't work, now avoiding gluten and dairy.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/14/2008 10:38 PM (GMT -7)   
Wow! That's great! Congratulations!

Do you think you did anything to contribute to your physical improvement - diet, outlook, whatever - or do you think it was just pure luck? If you did find something that helped, please share: inspire us :-)

I'm really happy for you.

Ivy.
Co-Moderator Crohn's Forum.


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/15/2008 1:38 AM (GMT -7)   
Good luck!!!!!!!!!!!!!!!!
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/15/2008 2:54 AM (GMT -7)   
That's wonderful news! It is so refreshing to hear good news.... The best of luck to you! Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/15/2008 5:05 AM (GMT -7)   
Hi Good news for you hope you continue to improve. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/15/2008 5:44 AM (GMT -7)   
Happy Dance!!!!!!!!!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/15/2008 10:53 AM (GMT -7)   
That is good news. But I am curious of one thing, I am a big believer in maintainence meds (unless you are allergic), if you go off the MTX, what does he plan on using as a maintainence med? Better to keep the inflammation under control that trying to get it back under control. JMHO
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 11/16/2008 7:35 AM (GMT -7)   
Rider Fan said...
Thanks for checking in LBJ. I remember reading your posts. I just did my 4th 25mg injection, hopefully it will work for me too.

How long did it take for you to notice an improvement?

Also I notice that on your old posts you took 5mg of folic acid and now just 1. How long did you take 5 for? I was taking 2 or 3 but now just 1 a day and I'll see how it goes.

Good luck to you too Rider!!  I'll keep praying for ya!! 
 
Hmm... I would say I really didn't start feeling better for about 2 months.  I had a rough start on the Methotrexate for about a month with horrible side effects but I kept going and it got much better! 
 
I still take 5mg of folic acid I just take 1mg a day for 5 days. My doc had me taking all 5mg on a few days after my injections but it was sorta making me sick so I split it up and take 1mg a day for 5 days and it works better for me.  I let doc know my last check up and he said that was fine. 
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Methotrexate injections once a week 15mg
                           Folic Acid 1mg every day
                          
No Surgeries
 


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 11/16/2008 7:37 AM (GMT -7)   
ivy6 said...
Wow! That's great! Congratulations!

Do you think you did anything to contribute to your physical improvement - diet, outlook, whatever - or do you think it was just pure luck? If you did find something that helped, please share: inspire us :-)

I'm really happy for you.

Ivy.

Thank you Ivy.    It was pure luck!!  I eat all the wrong foods and don't exercise and take care of myself the way I should. But I had this flare and didn't feel well and was upset with myself and all that.  Now that I'm feeling better I can start back to the gym and would like to go back on weight watchers since I felt my best when following it.
 
Thank you!!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Methotrexate injections once a week 15mg
                           Folic Acid 1mg every day
                          
No Surgeries
 


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 11/16/2008 7:45 AM (GMT -7)   
Nanners said...
That is good news. But I am curious of one thing, I am a big believer in maintainence meds (unless you are allergic), if you go off the MTX, what does he plan on using as a maintainence med? Better to keep the inflammation under control that trying to get it back under control. JMHO

Well it bothers me too that I don't take anything for maintainence.  But my CD is very very mild compared to most people.  I went 8 years (knock on wood) with no major problems.  The little problems I did have inbetween those years I could take 2 weeks of Cipro and be good as gold again.  I knew this flare was going to be bad because my joints flared up as well.    I think because I did so well for so long off something doc said we would try it.  If I run into problems again then we'll just have to either go back on the MTX or he said we would look at other options.  I don't have many more things to try though.  Humira scares me because Remicade landed me in the hospital so I'm just really nervous to try that or the others for that matter.  I mean we will if I have to but they just scare me.
I totally agree that being on something to keep things under control is much better than being off something and then going into a flare and trying to get in under control and so does my doc, but I think he's looking at we had things under control for so many years we could possibly try and see what happens.  Again I'm a very very very mild case.  He said what inflammation I did have was nothing compared to what he see's in most people with CD.  I just have one little area in my colon that gets bad.  
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Methotrexate injections once a week 15mg
                           Folic Acid 1mg every day
                          
No Surgeries
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/16/2008 10:31 AM (GMT -7)   
LBJ I am a mild case too. I enjoyed a 20 year remission drug free. But it ended horribly, with a emergency resection due to complete blockage, then ended up having to have another resection 3 years later. I only take Asacol to control my Crohns now. Let me tell you, I will never be drug free again. The price was not worth it. JMHO
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 11/16/2008 1:44 PM (GMT -7)   
UGH!! That isn't good. I'm sorry you had to go through all that. Guess I better push doc a little more to keep me on something.

He told me that the older you get the less the flares are and because I was pretty bad 8 years ago that I shouldn't see anything
that bad again when I have a flare. You just proved that theroy wrong huh....
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Methotrexate injections once a week 15mg
                           Folic Acid 1mg every day
                          
No Surgeries
 


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 11/16/2008 1:55 PM (GMT -7)   
This disease does seem to burn itself out eventually in some people, but it's definitely not a rule.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. Udo's Choice Probiotics (30 billion).


Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.

Tried SCD, didn't work, now avoiding gluten and dairy.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 11/16/2008 10:35 PM (GMT -7)   
*does happy dance* yay for you!!!! :)
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa

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