update: so far so good

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emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 11/15/2008 12:09 AM (GMT -7)   
Hi all

As some of you may know from my previous posts, my husband was diagnosed with Crohn's a few months ago and it has been a scary ride for both of us. Initially he felt HORRIBLE. (well, our dog of 14 years died around the same time of the diagnosis so that didn't help). Then he went on 60mg of Prednisone and started to feel better but the colonoscopy showed no improvement. After a CT scan that discovered an abcess he was in the hospital for 5 days. I thought it was going to be all down hill from there! It was a very rough couple of months, to put it mildly!

Well - here is an update. We originally thought he was going to have to have his entire colon removed but now he's looking at a 6 - 8 inch resection of the sigmoid colon instead. 2 weeks after being hospitalized he had to go to China for a week for work and I was SOOOOO worried! BUt - he was fine and actually felt better when he was there. He started taking fish oil, a multi vitamin, and probiotics and is now only having about 1 - 2 BM a day. The cramping is minor to non existent and the fatigue is not nearly as bad as it was. We just got back from a fancy birthday dinner and it went great! Due to a stricture with scar tissue, the surgery seems to be a must but I am more hopeful then ever! We go to visit his family for Thanksgiving and then he has surgery December 9th.

I just wanted to share a happy story :) Thanks again for being here and providing insight and stories so we can become more educated about this disease! Please send positive thoughts our way come December as I am very much hoping for a smooth surgery on the 9th! While it is going well now, I know that things can take a turn for the worst at any moment and I just hope and pray that things continue to improve. Hopefully we can start a family early next year afterall!

Thanks again for being here!

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/15/2008 1:36 AM (GMT -7)   
Hi, its good to hear some good news. My prayers and best wishes for you and your husband.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/15/2008 5:14 AM (GMT -7)   
Hi Sounds like he is doing great very happy to hear suck good report on him. He must be much releaved as you are. Wishing you both the best and keep us updated .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/15/2008 5:44 AM (GMT -7)   
That sounds great!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/15/2008 8:00 AM (GMT -7)   
I visited Singapore and Thailand with my husband and felt better than ever while I was there. I am sure China is the same. The food is very fresh, no preservatives, cooked or juiced and handed right to you. Very little grease and fat, very little dairy. It is a crohnies dream. I had the best chicken noodle "soup" of my life at the Singapore airport and it was just a typical singapore dish of chicken, noodles, and broth. It was so good I took a picture of it lol. I usually can't eat anything at airports except the pretzels or protein bars I bring with me. Even American soups can be very greasy and fatty. This was just pure heaven. I think it is part of the reason asia has such low incidence of IBD. I also rarely used lactose pills there because most of their foods had no dairy.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


emrose
Regular Member


Date Joined Oct 2008
Total Posts : 63
   Posted 11/15/2008 12:40 PM (GMT -7)   
that's interesting Fitzy. We've been trying to figure out why things were so great there. I assumed it was the new probiotic he started, and he wondered it was because he only drank bottled water. However, you're right about the food. I was worried about the possibility of him having very limited choices but he easily managed to eat healthy fresh food.

Thanks everyone for your warm wishes. I'll post an update after surgery. Fingers crossed!
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