Fistula's the good and the bad?????

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to many questions
Regular Member


Date Joined Jun 2008
Total Posts : 23
   Posted 11/17/2008 3:44 PM (GMT -7)   
Hi,
 
I have one really simple question.  What can and shouldn't I do with a anovaginal fistula ? 
Anything? 
Terri, 49 year old female
 
Diagnoised Uclerative Colitis, Dec, 2006 and Pan-Colitis June, 2008
 
Allergic to 5-ASA's, Prednisone for the time but, tapering off
no other med regimen yet.........
 
Still new to this condition with a positive outlook........


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 11/18/2008 3:14 AM (GMT -7)   
cant really help ya, except to say, ow! and probably some things you wouldnt want to do might be obvious.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 11/18/2008 7:19 PM (GMT -7)   
Okay, I will say it.....    I would guess that ....   Wait, are there kids reading this?
28 Yrs
Michigan
Newly diagnosed with Crohns


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 11/18/2008 9:23 PM (GMT -7)   
Relief for my fistulas was provided by the following:
Remicade
Sits Baths/ regular warm baths, frequently (like 2 a day minimum)
sleeping on my belly to relieve the pressure on my behind and
keeping all areas as clean and dry as possible by using 4x4" guaze pads (available in bulk at medical supply stores for cheap!)

I wish I had a wonderful answer for you!
Hope you get to feeling better soon.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/18/2008 11:29 PM (GMT -7)   
Ahhh...when I had mine, I wasn't really aware of it. They'd taken me off food so it was just liquid discharge. I know that it hurts...a lot. I was aware of plenty of pain even with the patient pain button (which is why I wasn't really aware of it...I was in a hospital with pain meds for mult. surgeries). So, really, talk to your doctor about the pain. Make them understand if its a pain issue. If it isn't, cleanliness. Avoid uh...douching. It really isn't good for you. Beyond that, heating pads worked for my fistula pains.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

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