thanks for the responses.
I was told about a food journal, but I have not as of yet started it.
I think I am going to start one out tomorrow, as it has been mentioned several times the past couple days, and there seem to be some things I eat that make me very sick afterward, or put me in a lot of pain.
Thanks for the suggestion.
To the second reply, Gail, thanks as well.
I am losing weight like crazy, and have been very sick since a few months before I was diagnosed.
The diseased area of the intestine is where the small and large intestine meet, the ileum I think.
Its an area where the nutrition is absorbed into the body.
This is going to sound gross, but a lot of times when I have a bowel movement, the food I have eaten looks the same as it does before I eat it, as when it comes out in the stool.
So I know that I am not absorbing the goodstuff from my food properly and it is causing malnutrition as well as the weight loss and loss of appetite associated with crohns.
My doctor has told me to drink Ensure, meal replacement shakes to help.
I am glad that there is a forum to talk about this with other people, who know something about it, because they have experienced it as well and can relate.
No one wants to find out they have IBD or any form of it, and its really hard for me to talk to others at home, family or friends about it, because as they may try to be supportive, but its harder for them as they have not experienced it.
I am still very disappointed with this diagnosis of Crohns disease and am between having gone off pentasa, and going onto the new meds, Imuran and Budesonide.
Experiencing a flareup right now. I am getting very depressed about it at times. I was hoping that what I had could be healed.
But when I got the diagnosis,
apparently that is not how it is going to go. Its the beginning of a new process, and a long one....lifelong is how it seems. (Its also hard with a having a baby whom I have to be well for.)
The only thing I can do is try to deal with it to the best of my abilty, and try these meds. and hope they work.
Thanks to all who respond, it really is good to be able to talk about this with others, and hear their experiences as well.
Its all new to me, and personally I do not actually know anyone who does have Crohns, I hadnt even heard of it until shortly before I was diagnosed. So this is a bit of an awakening.
Going to do the best to work with the doctor, and I will try that food journal and most likely folic acid supplement.
Thanks again for all responses.