Potatoqwn is right... it all sounds really scary, but in the end - you just have to evaluate your quality of life and weigh that against the possible side effects. I had great success with Remicade for several years before it "wore off". By then, I was fed up with the "biologics" so I didn't really give Humira much of a chance before I stopped it and chose more "alternative" routes. With the Humira, I just couldn't bring myself to "shoot" up that stuff every two weeks - it gave me the heebee-geebies and the shots hurt like the dickens (although I know not everyone finds them so painful)... it was much easier for me, psychologically, to get Remicade because I felt "monitored" and that someone else was in control... that made a big difference for me. Also, the Remicade started working for me almost immediately, whereas the Humira was a little harder to notice improvements with. But I'm just one person, with one set of experiences.
I'm glad you found us, Miss Mouse. I wish you all the best in your treatments, and never hesitate to ask ANYTHING on this forum. The people here have kept me sane for almost 5 years!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."