When mind over matter no longer works...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 11/19/2008 1:24 PM (GMT -7)   
Ok, so this is bit gross, but I am having serious issues holding it in lately ... which I have never had before. When I have to go, I have like three minutes to go. I used to at least be able to do the mind over matter thing and be able to hold it, but I have had a few mishaps (maybe more than a few) over the last few months, which is worrying me. Is this going to get worse?

It's horrible b/c I have a 2-year old daughter and if I'm driving and need to stop, I have to first get her out of her car seat, etc. which just takes too long!

Any advice out there? Immodium..., Anything else I can take to help control it?
39 years old female, Dx'd 2000 Crohn's Colitis in entire colon
Allergic to Asacol/Pentasa/6MP/Immuran and many others (too many to remember)
Past meds: Cipro, Pred
Current meds: Humira (...and waiting for it to work)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/19/2008 1:39 PM (GMT -7)   
Have you kept note of which foods exacerbate this?
I started probiotics which helped tremendously along with the medicine my doctor prescribed so that I no longer have diarrhea unless I eat something to set it off. There are a lot of different kinds you can try.
I have heard immodium will help relieve this as well. Bentyl will also. It's an antispasmodic so it really helps with calming down an overactive system.
That's all I can think of right now, but I'm sure others will be along soon with great advice.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 11/19/2008 6:54 PM (GMT -7)   
Keep a food diary. With a 2 year old in the house it's a wonder you get to eat at all! I can't imagine having to get a child out of a car seat in that situation....I wouldn't make it either! Also you might want to take note of your normal time period between the time you eat something and the episode. I usually have to plan my outings around my meals as I have appx. 1-1/2 hours on a good day from the time food hits my lips to release time. Usually when this happens though I have eaten too much fat, some processed food or a trigger food. Read your food labels as well...you'll be suprised as to what is "hiding" in them. Judging from your online name please tell me you are not drinking carbonated drinks! YIKES! The sorbitol and/or artificial sweetners in them are a huge trigger for me.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 11/19/2008 7:08 PM (GMT -7)   

Post surgery in 04', I had to wear pads..I kept clothes in the car..I was on donnotal which helped..I graduated to short bowel syndrome..I did not have much time..This went on for two years till it calmed down..Foods that helped were bananas, oatmeal, and toast..I remember traveling was a nightmare..You got the urge and had to wait till the exit for a gas station only to have to wait in line and have an accident..I was the joke of the office of doing my work from the commode..I now have constipation at times which I probably would have prayed for back then..Romance back then would stimulate runs to the bathroom..My poor husband..Now back then, coffee & soda were big offenders..I am a big coffee drinker..I had to give it up for awhile and drink herbal tea..not the same!!

Cindy


Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 11/20/2008 10:08 AM (GMT -7)   
I don't have an easy answer for you, I just wanted to let you know you aren't alone.  I've had plenty of accidents as well.  Sometimes I think there just isn't anything to do to avoid them.  Often when I have an accident I have ZERO warning - like not even a second.  I just hope for the best and keep a spare pair of undies in my purse all the time.

dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 11/21/2008 10:07 AM (GMT -7)   
Thanks everyone for your replies. Yes, I really should keep a food diary.... although I've been saying that for 9 years now. It's just really awful especially when I'm with my daughter and I have to make a run for it, and she's laughing because she thinks running it's funny,which makes me laugh, which isn't good for the belly. Anyway, no, I don't drink diet coke, I don't know why I selected that as my "name" -- I think because when I was little I used to love it.

BTW - It seems like every food is a trigger food, really! So, I'm never sure what to eat! Ps - What's donnatal?
39 years old female, Dx'd 2000 Crohn's Colitis in entire colon
Allergic to Asacol/Pentasa/6MP/Immuran and many others (too many to remember)
Past meds: Cipro, Pred
Current meds: Humira (...and waiting for it to work)


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 11/21/2008 11:40 AM (GMT -7)   
dietcoke, I used to have constipation with my Crohn's but it's gotten in the last few years where I can't go until all of a sudden and I have maybe 10 minutes to get somewhere to go.  My husband laughs when we are in the car, trying to make it home and I tell him not to make me laugh or I will go!  I kept a food diary for years and have seen no pattern to this or specific foods that trigger it..it just decides when it wants to come...like it has a mind of it's own.  Luckily, I haven't had any accidents in the car and have only had to go in a parking lot once (luckily it was at night)...so, I am almost always able to make it to a McDonald's or something.  I agree that you should just keep something in your car in case of such a situation.  I've gotten now to where, if my husband and I go somewhere to hike or take photographs, I take a roll of toilet paper in the backpack on the trail...it has come in handy on several occasions.  Knowing that you are prepared makes it much easier to deal with.  I'm not saying you shouldn't keep a food diary...it's never a bad idea, I'm just saying I haven't been able to figure out the triggers with mine.     
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 11/21/2008 8:31 PM (GMT -7)   

I missed spelled it..It is donnotol it is an antispasmotic drug..I don't do levsin well, and I like bentyl,but I needed something alittle more..I know they tried me on anticholergenic drugs too..I know some doctor's will just tell you to take a larger dose of immodium..Donnotol was the only thing that kept it from just running right out of me..

Cindy


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/22/2008 10:10 AM (GMT -7)   
Hmmm...is there a connection in issues there? For me and you. I am missing 18 in. intestine and I've noticed that there is NO correlation to how I feel day to day. It doesn't seem to matter at all if I could eat it and be fine two weeks ago, this week, it's going to make me feel sicker then ever. And this is with homecooked items where I scrupulously chose what should go into the meal.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:14 PM (GMT -7)
There are a total of 2,734,466 posts in 301,216 threads.
View Active Threads


Who's Online
This forum has 151332 registered members. Please welcome our newest member, Blueswoman.
307 Guest(s), 13 Registered Member(s) are currently online.  Details
DQueen, PeteZa, Bloom93, jdcd57, mspt98, time2reclaim, aloha234, sam12, Red_34, Yarbo3, Gram4plus, Mister Mike, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer