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andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 11/20/2008 11:05 PM (GMT -7)   
I have to go to work in 2 hours and I am feeling like crap. I havent been able to get my butt off the toilet all day so looks like i will have to yet again fill up on imodium and then I block up (great huh). I wish this darn disease would give me some peace. I am soooo over it yeah . Taking the night off is not an option for me either cause I need the money, I am starting to fall behind with my bills and I cant let that happen, so off to work I go. Thanks for hearing me out. I am so glad I have you all to chat to and you all understand where im coming from.
take care
andorable

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/21/2008 2:56 AM (GMT -7)   
hi andorable, I now what you are going threw. when I was first diagnosed with CD I would go to work and then have to leave earliey not feeling well and having bad D. Have you considered Remicade or Humira? I am doing Remicade for 5 years its been a wonder drug for me.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 11/21/2008 4:19 AM (GMT -7)   
I am right there with you. :) I "gut" through work each day dealing with a great deal of pain and nausea. When the "D" gets too bad, I take anti-d medication, which helps in that department. Since I just started a new job just over two months ago, I don't dare take off yet. Everyone (boy news travels fast) knows about my CD, which I don't really mind as long as they are nice about it to me... never really cared what folks think anyhow. I have been working 9 - 10 hour days every day and many weekends as well.

Hang in there and know you are not alone. We do what we must to survive

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 11/21/2008 6:30 AM (GMT -7)   
thanks guys, I had to leave work early but got through 4 hours. I have been on remicade for quite some time and built up antibodies against it so now on humira but no different just yet. I hope it does help me I take my 3rd dose of humira this wednesday

cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 11/21/2008 7:34 AM (GMT -7)   
After my surgery in 04', I would wake up about thirty minutes earlier and take donnotol & phenegren and go back to bed for thirty minutes..It did help..My last job I worked only a few minutes from my house so I always tried to go lay down for that hour..I have spent many of years now dragging myself to work & limping through a work week..We just moved so I know I will have to find a new job with a commute again and no chance of going home and laying down on a lunch break..A desk job is all I can handle..When I started my last job in Sept of 07', I was frequently late for work due to D..I always have an issue of nausea first thing in the morning it has never gone away..It is similiar to morning sickness due to pregnancy..I still take phenegren every morning..I had two weeks of vacation time built up so I have been off for three weeks now..First week now with no pay, and I know I can't afford much more..I want to go back to work part-time instead of full time..but don't think the budget will allow it..
Cindy

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 11/22/2008 10:59 AM (GMT -7)   
Here is an idea I use. If I have to be in one place for 6-8 hours, I take two dose cups of Pepto Bismo. For me that stops the BMs for maybe a whole day. I take it until my stools turn black then stop until they return to the natural color so I don't block with it. I used to take liquid Immoium in addition to my 9 tablets per day but have found the Pepto Bismo faster and cheaper. If my stomach starts to churn while sleeping, I take a dose then and go back to sleep.
I have been on Remicade for a year but had a reaction so had to stop. Now I'm back on Imuran, not desiring to take Humira, if I can get away with it.
Try it,
Dave D
Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again. Started Remicade every 4 weeks plus 20mg of Prednisone per day. Six months and seven infusions later, good eye is back to 20/14. Bad eye is 20/70. Had cataract surgery on June 05 on bad eye. Eye returned to a correctable visionary level of 20/40. Life looks good (literally) today.
Married with 4 grandkids.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/22/2008 3:46 PM (GMT -7)   
Andorable, have you talked to Centrelink? They might be able to help you, so you're less dependent on work. You really sound very unwell to me - it must be so hard for you to keep going to work when you feel so terrible.

Ivy.
Co-Moderator Crohn's Forum.


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 11/23/2008 5:40 PM (GMT -7)   
My d is worse in the am, so I get up about 2 hours before I have to leave for work, as i have a 45 minute drive. I have my ensure breakfast, take my meds and by the time i have to leave i am usually able to make the drive. woohoo!

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 11/23/2008 9:31 PM (GMT -7)   
i had *****y remarks bout taking a couple hours off wrk for a MRI.......yuuuppp getting really sick of it aye 0_o
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 11/24/2008 6:53 AM (GMT -7)   
Hey everyone thanks for the replies, Ivy I am on a disability pension now but I work casually to subsidise the very small amount that centrelink give you. My rent alone is pretty high, so I have no option but to try to earn a bit of extra money. But not only is it a money issue its also for self esteem, I feel like if I cant get out amongst people I may as well not be here, so I see it as good therapy too. Im the same survivor where I need to get up at least 2 hours before I go anywhere but I mostly work at nights and lately my gut has been playing up so badly that it makes no difference what time of the day it is. Dave what is pepto bismo?? I have never heard of it. Thanks guys

survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 11/24/2008 2:17 PM (GMT -7)   
i switched from variable shifts to a day job- if that is an option for you, you should consider it. It is definitely less stressful on your body, which is important in IBD
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