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Artzichic882
Regular Member


Date Joined Dec 2007
Total Posts : 29
   Posted 11/21/2008 3:49 PM (GMT -7)   
As some of you might remember, I went on the Specific Carb Diet a month ago when I was still on Prednisone and Pentasa. I felt better then I have ever felt! I was symptom free.....until a few days ago when I went off the prednisone. My dull constant pain where my affected area is back and I have had a few cramps, mainly after eating.

So my questions is, do I keep trying the diet, if so, how long should I keep at it?

How long did it take all of you to feel "normal" on the diet? Maybe I have too high of expectations.

Thanks in advance!
Diagnosed with Crohn's Disease at ileum 2.5 years ago.
Currently on: Prednisone & Pentasa


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 11/21/2008 4:38 PM (GMT -7)   
stick with it. your body needs time to adjust being off the prednisone and compensating for that. be patient.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 11/21/2008 4:44 PM (GMT -7)   
My advice would be to stick to it and modify your diet a bit. I'd stay away from all nut flour products and cut back on fruit/honey.

Artzichic882
Regular Member


Date Joined Dec 2007
Total Posts : 29
   Posted 11/21/2008 8:55 PM (GMT -7)   
Thank you for the feedback. Do you think I should also try to stay away from peanut butter?
Diagnosed with Crohn's Disease at ileum 2.5 years ago.
Currently on: Prednisone & Pentasa


Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 11/21/2008 9:02 PM (GMT -7)   
For sure. Peanut Butter is the worst.

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 11/21/2008 9:32 PM (GMT -7)   
You *will* have progress and setbacks on this diet, but- if you stick to it the way it is written- there will generally be an improvement in your overall condition. If it has had a positive impact for at least 4 weeks, that's a good sign there will be continued improvement.

Keep a food log. I've found that it's stomach pain (within an hour) with certain types of foods, gut pain (within 2-4 hours) after that, and for some items "fallout" begins 24-48 hours later. Work backwards from the symptoms to determine the offending component. In this case, yeah- I'd wager it's peanuts.

Interestingly, I can usually have almost unlimited quantities of peanuts for one day, but if I repeat it the second day, things get worse. So I can alternate days, or I can make it every third day, or whatever. I think it's probably due to continued growth of "bad" flora in the gut; if they're fed a single "meal" in a day, they can grow- but without being fed the second day (what with their exponential growth curve going on), there's not enough to cause problems.

Anyway. That's how I model it. It's consistent with what I know about growing organisms on shaker tables in the lab, anyway! tongue

Artzichic882
Regular Member


Date Joined Dec 2007
Total Posts : 29
   Posted 11/22/2008 5:46 AM (GMT -7)   
I am positive it was the spoonful of peanut butter I had yesterday. I am back to eating the safe things from the beginning and we will see what happens.
Diagnosed with Crohn's Disease at ileum 2.5 years ago.
Currently on: Prednisone & Pentasa


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/22/2008 9:24 AM (GMT -7)   
homemade peanut butter?
SCD since 01, remission since 01, occasional Arby's breaks :)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 11/22/2008 12:45 PM (GMT -7)   
I once had some pretty serious problems with peanut butter that had a tiny amount of chocolate in it. Since then- absolutely NO chocolate, and very little peanut butter.

I find cashews are more easily tolerated on the SCD, although they give me problems, too. Pecans are very safe, as are macadamias- although the cost of those is self-limiting!

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2831
   Posted 11/22/2008 2:30 PM (GMT -7)   
I am not a hard core "legal vs illegal" type as regards the SCD (rather I go by what works vs what hurts; my diet is a low carb SCD because the higher carb things hurt me.... but I am not the greatest example as it never gave me full remission, even though it dampened my symptoms) but peanuts and peanut butter are legumes and are not legal on the diet. I'd temporarily cut out all nuts and nutflours, fruit and honey completely and reintroduce them one at a time later.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 mg pred, 100 mg Imuran
TCM, Probiotics (Primal Defense and others), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/22/2008 4:40 PM (GMT -7)   
Known a few people that think u can just buy roasted peanuts off the shelf and make peanut butter. Doesn't work that way, a few of them even having better results with peanut butter when they actually make it the right way :)
SCD since 01, remission since 01, occasional Arby's breaks :)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/23/2008 12:22 PM (GMT -7)   
How much prednisone were you taking when you went off it?

Artzichic882
Regular Member


Date Joined Dec 2007
Total Posts : 29
   Posted 11/23/2008 12:23 PM (GMT -7)   
I was down to 10 mg. I started 6 weeks ago at 60 mg and tapered 10mg each week.
Diagnosed with Crohn's Disease at ileum 2.5 years ago.
Currently on: Prednisone & Pentasa


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/23/2008 11:17 PM (GMT -7)   
Whenever I tapered off prednisone, my doctor had me go all the way down to 5mg, and then take 5 mg every other day for a while before quitting. Maybe you needed to taper just a little bit more for your body to get used to making its own cortisol?
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