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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/22/2008 11:05 AM (GMT -7)   
Well. I'm trying like anything to get whats in my gut out. I was working on my nephews' birthday so never got to get him a good gift or take him out or anything. So today, the plan is dinner/movie/bookstore.

Seems every so easy doesn't it? And then I wake up and have only been able to stomach some Ensure and still had to go 4x in 2 hours. I'm going to force my body to listen dernit :-) . I don't want this stupid disease to take away everything. Its taken almost everything as it is. I can barely work. I'm broke. I'm paying what I do make on Pentasa and bills and doctor visits. So I am plain just not going to let my plans for today to get screwed up. AM NOT.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 11/22/2008 11:13 AM (GMT -7)   
Thats right, you tell this DD whats up! I do the same thing when I know I'm going out...like today my bestfriend is takin me to the Cheesecake Factory for lunch for my birthday (which was a month ago, but I was in the hospital having a freakin bowel resection) Ive found it helps if I dont think about my stomach while I go out I'm usually "ok", I dont mean like disregard it or anything, but dont over think things too much like "what will happen if I eat this....?   I wonder where the bathroom is?" ect ect.  Just enjoy yourself and take it easy.  If you feel your stomach is going to act up after dinner, go to the bathroom before you leave, then maybe try and go again right before the movie.  I hope you have a great day!

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly), 5mg Pred (tapering), Nexium, B12 injections.
 

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/22/2008 11:44 AM (GMT -7)   
Immodium might help too...just anything safe to relax those muscles while you're out.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/22/2008 10:23 PM (GMT -7)   
I would try the Imodium too, good luck and dont let this DD rule!
Jo

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/25/2008 5:13 PM (GMT -7)   
We had a GREAT time. First off, I ate before I left the house, then snacked on just a bit of garlic bread and sauce while everyone else had calzones and pizza (so big on my no-no list). Still, it was nephew's belated birthday party so we ate, then we wondered around Barnes and Noble (so my idea of heaven on earth...I AM a degreed library tech.) where I got my nephews a book each. BTW, we'd eaten at Minsky's where my nephews played games and even I found it in to to attempt a game of pool which I MISS doing as just a fun activity. Hubby won...but then...he had unfair advantage since I can't straighten my arm. BeYOND that stuff, we went to see BOLT in 3D. It was awesome. Even if I erm...passed gas through most of the movie (no one else was around...yes, I'm still blushing). Still, we had a GREAT time. I wish we'd been watching Twilight though since that's what I personally and dying to watch but I'll catch it next week maybe. A treat to me for surviving the holidays.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

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