alternatives to remicade

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gardenlady
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Date Joined May 2003
Total Posts : 3103
   Posted 11/23/2008 2:06 PM (GMT -7)   
1. does anyone know if lowered neutrophils is just a remicade thing or a TNF blocker thing? is humira or any other TNF blocker just going to have the same effect -- aside from driving me broke.

2. researching low-dose naltrexone. this does not make sense (although if it works, it works...) -- ramping up your immune system when it's already spazzed out?


is there anything i'm missing? anything else cool i ought to be looking into? back in the day, asacol didn't do the trick. imuran gave me headaches, which didn't encourage me to be a good little girl and take it like i oughtta (meaning every day). and i'm sorry, but methotrexate and interleukin and those are just straight up OUT. not sure if the whip worm thing is available in the US....

Post Edited By Moderator (Ides) : 1/15/2010 4:06:27 PM (GMT-7)


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 11/23/2008 5:48 PM (GMT -7)   
How low are your neutrophils? Does your GI think they are so low that you have to come off of Remicade? Or is there some other reason you want to stop? Humira can also cause abnormalities in the blood. Sorry I can't help you with the rest.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 11/23/2008 6:09 PM (GMT -7)   
Neutrophils were @ .9, and they cited normal as 1.5. I'm going to have the blood done again this week. The PA @ the infusion center seemed to think Remicade wasn't such a good idea, and I'm two weeks out from my last scheduled infusion. I'd have run it again before now, but my primary wanted me to wait until I was good and over a cold so that everything would be on the up and up. That was mostly for an elevated potassium level, though -- he was telling me if the sample is mishandled or something it can skew the results for that.

So far so good -- I'm not showing any symptoms. The neutrophils might come back up, I suppose, but right now I'm operating under the assumption that Remicade is no longer an option until we know otherwise. Hence, I've gone into research mode.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 11/24/2008 10:44 PM (GMT -7)   
What would the symptoms of low neutrophils be ??? What are the doctors telling you about cause?? Hope all gets better soon...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 11/24/2008 11:25 PM (GMT -7)   
The cause of low neutrophils would be Remicade, although I don't have any sypmtoms. Symptoms would be a lot like any other low white cell count from what I understand -- prone to infections (bacterial in particular), etc. I'm not symptomatic for high potassium, either (no cramps, heart palps, kidney failure...). Just call me Sara the Anomoly.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 11/25/2008 8:44 AM (GMT -7)   
OK Ms Anomoly,,,Wish I had an answer for you but call me Mr havn't got a clue. Hope you get some answers soon ...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 11/25/2008 9:01 PM (GMT -7)   
went and had blood drawn today -- should hear back tomorrow. man, my elbow hurts like a bugger -- not as bad as last time, but nothing to sneeze at, either. argh. at least i don't look like a junkie this time, though...gotta look at the bright side.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


janaynay
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/15/2010 12:20 PM (GMT -7)   
i'm having a terrible flare-up and my doc wants to put me on remicaid to get me off of prednisone (at least prednisone is the devil I know!) I found your post while doing a remicaid search.

Welcome to Healing Well. Please read our Forum Rules. Discussing marijuana even using a veiled reference is not allowed here. ~~ Ides, Crohn's Moderator.]

Post Edited By Moderator (Ides) : 1/15/2010 4:05:50 PM (GMT-7)

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