whats making me feel so bad?

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Regular Member

Date Joined Sep 2008
Total Posts : 36
   Posted 11/23/2008 11:00 PM (GMT -6)   
okay little background, I was in the hospital week before last and they started me on Pentasa, 500mg x2 three times a day. I'm also on cipro, 1 three times a day, and flagl 1 2 times a day. since i got out I have been taking my medicine like a good boy. i have been feeling like utter crap. today i slept most of the day and ended up missing two doses, suddenly I'm feeling stronger, hands not shaky, etc.
i really do not think it has anything to do with teh sleep i got. I have been doing allot of that this past week, and the change was too dramatic.
my question is whats got me feeling so ad when I take it? I want to be able to discuss this with teh doc on Wed when I go for a check up after getting out of the hospital.
I shed tears when I found this place...I have felt so alone for so long...Its good to know there are caring ppl out there who can understand where I'm coming from.

Veteran Member

Date Joined Jul 2005
Total Posts : 731
   Posted 11/23/2008 11:06 PM (GMT -6)   
Out of your list of meds, Flagyl is by far the one I've had the worst luck with. It just made me feel like utter crap. So did Purinethol (6mp) but it was in more of a "systemic" way... I just felt crazy on 6mp. I wish I could point my finger and go BAM- THAT's the ONE, but really - it could be any of them. If you're going to stat sleuthing it out, though, I would start with the Flagyl. Wicked strong nasty stuff!

Good luck with everything...
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 11/23/2008 11:07 PM (GMT -6)   
Might it be the cipro? I know it always makes me sleepy; I can't imagine having to take it three times a day.
Co-Moderator Crohn's Forum.

Regular Member

Date Joined Sep 2008
Total Posts : 36
   Posted 11/23/2008 11:14 PM (GMT -6)   
well i'm in the position that I have to go back to work this week. short days and only 4 of them as Thanksgiving is apaid holiday for me. I think I'll take everything else except the Flagl till I get off work so i can make it through my day as a trial tomorrow and see how it goes. if I'm not so nausus (sp) i know i can make it through a shift with fewer headaches. (i'm on my feet and on the go most of the day)

i also find it ironic that that i'm taking a med that is so close to my SN, which is kind of a joke. i needed a SN years ago, even before i was DX. it was a typo i messed up typing and there it was and i just kept it.



I shed tears when I found this place...I have felt so alone for so long...Its good to know there are caring ppl out there who can understand where I'm coming from.

Post Edited (cinpro) : 11/23/2008 10:17:52 PM (GMT-7)

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 11/23/2008 11:16 PM (GMT -6)   
Well, I hope it's just your body adjusting to all the meds.

Are you taking enough food and liquid with and around your meds?--especially liquid for the cipro. With flagyl, I had to try a number of different foods to keep the nausea at bay. And I had to take it with a meal. Cipro I can take on an empty stomach but need a lot of liquid.

(Ultimately, flagyl made me paranoid! There's a small percentage of folks who react this way.)

How are your vitamins? Taking a multi? Potassium level low? That could cause the hands shaking, etc..

As for the rest. . . sigh. I don't want to admit it, but I am a TON better with a whole day of sleep. But who has time for that? Right? I'd have to quit my job and sleep 3/4 of each day to feel better. Right now, I am a diarrhea faucet again and exhausted.

I wish you luck and hope you get a chance to talk to your doc sooner.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08

Veteran Member

Date Joined Oct 2005
Total Posts : 1245
   Posted 11/24/2008 4:07 AM (GMT -6)   
I had to take Flagyl a couple of years ago for C-Diff infection. That medicine made me more sick than any other medicine I have ever taken. Good luck to you. Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

Regular Member

Date Joined Sep 2008
Total Posts : 36
   Posted 11/24/2008 6:25 PM (GMT -6)   
well i did w/o the Flagl today, and did rather well for a first day back to work i think. i made it through a 7 hr shift with a 30min break and only had a couple close calls getting to the BR. everyone was was really cool and supportive. I swear that 7hrs felt like double most of the day, toward the end I was getting more used to being on my feet all day.
I shed tears when I found this place...I have felt so alone for so long...Its good to know there are caring ppl out there who can understand where I'm coming from.

Veteran Member

Date Joined Oct 2004
Total Posts : 3926
   Posted 11/24/2008 6:38 PM (GMT -6)   



     I think its your meds, too. Anti-biotics often make me feel like I have the flu. I've taken Cipro before, with & without side effects.

     :-) You should adjust after a short period, we all hope..

        And with CD, everything seems to take its own sweet time.



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