Entocort, Prednisone, Azathioprine, and Controloc have not worked

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NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/23/2008 11:24 PM (GMT -7)   
The story begins after the school semester ended in late June. I took a plane flight from Europe to the US with just enough medication to make it for the flight. Then my flight gets canceled, and I am without Asacol (I take 12 tablets daily) for about 2 days. I begin to get blood in my bowel movements.

Mid-September 2008, I go to my gastroenterologist and I faint. Why? Who knows. Probably because of the blood loss. I go to the hospital and get a colonoscopy. It was found that my colon was very inflamed. The doctor noted that she could not get into my small bowel. I was given Entocort EC for 8 weeks (3 pills a day for 6 weeks, 2 pills a day for 1 week, and 1 pill a day for 1 week). The blood was still in my stool after 6 weeks of Entocort EC

Mid-October, I have lots of fevers and I almost passed out a few times. I went to the hospital and I was given hydrocortisone via a fluid (like an IV) into my colon or bowels via a tube twice a day. I had less blood from that. When I was discharged from the hospital, I was given prednisone (1.5 pills each day for 2 weeks, 1 pill a day for 2 weeks, and .5 pills a day for 2 weeks), azatrioprine (1 a day), controloc (1 a day), potassium (1 a day), and iron (1 a day). After 3 weeks, I still have more or less the same amount of blood in my stools. However, I do not go as often to the washroom.

I am going to have another colonoscopy Tuesday. What will happen after this is in question? I do not have any stomach pains at all. I had them before I was put on Entocort.

My huge, huge problem is that I get monstrous acne from the medications I am on right now. I was never on Azathioprine or Contorloc before, so I cannot say if they are causing the acne, but I can confirm that prednisone gave me lots of acne when I was first diagnosed with crohn's in January 2005.

I am wondering what could be the next step for me? Different medications? Surgery? Between 2005 and the summer of 2008, I had no problems iwth crohn's, other than having abscesses for a while.

Can someone please give me some insight on what could be the next step for me? I do not want to go on prednisone any more because of the acne i am getting from it. I am in school right now, and I do not feel like going at all because of the acne.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/24/2008 2:59 AM (GMT -7)   
Remicade was what helped me. Good luck to you! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


kyle Nelson
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 11/24/2008 5:25 AM (GMT -7)   
have you tried any SERIOUS diet alterations? my personal experience: i have NEVER recovered from any flare by taking medicine. The one and only thing that has worked for me is diet modification. i still have never needed surgery up until this point. im not a doctor, but if i were you (before going off and getting surgery), i would try a total clear liquid diet for 5 days (if possible) and then very low residue diet after that (with plenty of fluids still). there is plenty of info on how to do these diets correctly online. again, i dont know what works for you, but i know what worked for me. good luck.

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/24/2008 7:01 AM (GMT -7)   
A liquid diet might be a good idea. I am going for the colonoscopy tomorrow. The problem just is what should I have in a liquid diet? I get acne from foods and liquids with sugar, which means just about everything.

Miss3
Regular Member


Date Joined Sep 2008
Total Posts : 97
   Posted 11/24/2008 9:24 AM (GMT -7)   
I was told to boil the heck out of a chicken leg quarter for like five or six hours. Apparently the 'bone' broth has healing power. I would use a little sea salt and parsley in the broth for a little more flavor. I'm not sure if that is true or not but it can't hurt. I've been thinking about doing all liquids after the holiday for a few days and see if it really helps. I would try tea with honey for breakfast and broth for lunch and dinner and tea with honey again in the evening. You can do chicken broth for lunch and beef broth for dinner for some variation. I would make sure it's homemade broth, not out of a can or anything.

Miss
 
LDN


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/24/2008 10:28 AM (GMT -7)   
That actually sounds like a good idea - even tasty. Thank you.

I am so worried right now, because I am in Poland right now because I study here. I hope that they have remicade. When I showed them that I was on Entocort EC, they said that they do not use it to treat UC.
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