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Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/24/2008 9:14 AM (GMT -7)   
Since I cant have coa coa I was gong to try coffee...I know the pink stuff is legal, but what about the blue stuff..."Equal"? is it legal

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/24/2008 10:51 AM (GMT -7)   
No, Equal is not legal. Neither is Splenda.
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 11/24/2008 11:11 AM (GMT -7)   
Saccharin (the stuff in the pink packet) is the only recognized artificial sweetener. I have some maybe once or twice a week, in iced tea, usually when I grab a "protein style" burger at "In 'n Out Burger."

You can always add honey. They even make it sealed in little straws so you can take it on the road. Heh.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/24/2008 11:33 AM (GMT -7)   
Good point, Osprey! I use honey in my coffee every morning!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/24/2008 3:14 PM (GMT -7)   
I just started eating homemade yogurt the other day, and honey sure makes it yummy!

kelliej
New Member


Date Joined Nov 2008
Total Posts : 18
   Posted 11/24/2008 3:25 PM (GMT -7)   
I did not realize that artificial sweetners can irritate someone with crohns. My daughter is newly diagnosed and I'm still learning the dos and don'ts. Thanks for any input.

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/24/2008 4:26 PM (GMT -7)   
Oops I had some today...I wont do it again

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 11/24/2008 4:33 PM (GMT -7)   
kelliej> It's not about whether artificial sweeteners bother those with Crohn's. The thread was started for people who follow a particular type of diet- one that avoids certain types of sugars- in order to manage their Crohn's more effectively. It's called the SCD Diet, and if you search for "SCD Diet" and "Breaking the Vicious Cycle" (that second one is the title of the book by Elaine Gottschall), you can find lots of information on the web. You may also be interested in "Pecanbread," which specifically addresses the use of the diet with children:

http://www.pecanbread.com/new/success1.html

The root of it is that it seems that many cases of Crohn's are caused by long-term consumption of inappropriate carbohydrates. The body doesn't always digest them quickly enough, so they end up feeding certain types of bacterial flora in the gut. If this growth gets out of control, it's impossible (or nearly so) to get back to normalcy. There is probably a genetic component as well. Anyway- if the patient knocks the sugars out of the diet, the disease may be easier to manage. A few studies put the efficacy rate at about 85%, but it takes considerable discipline. It can take years, but a few people- stress "a few"- claim what is either a cure or a deep remission after 2-3 years or more on the diet.

I'm one of the lucky ones. I started the SCD on 19 December, 2007, shortly after discovering if I took wheat and related products out of my diet made me feel much, much better. This was shortly after I was diagnosed; I was on meds for about a month, and I stopped taking them. My weight loss reversed immediately, and I put on 13 pounds in about 3 months. Other symptoms have slowly fallen away to where I am back to "normal," whatever the heck that is for me. Many do not find this level of relief; the ones who do often don't come back to relate their success, so stories of people getting off their meds, etc. are kind of rare- but they can be found on the web.

Anyway- the Gottschall book is inexpensive, and worth a read. It's good stuff.

kelliej
New Member


Date Joined Nov 2008
Total Posts : 18
   Posted 11/24/2008 4:57 PM (GMT -7)   
Osprey

Thanks for the information. It is nice to know that there is a chance( even a small one) that you can be med free with this desease. It is my daughter (15) who was just diagnosed and she is already on so many meds. I will defintly read the book by Gottschall.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/24/2008 5:23 PM (GMT -7)   
kelliej, welcome! My son was diagnosed shortly after his 15th birthday. He was put on prednisone for 8 weeks, which he hated--like everyone does. He was also put on Asacol at the time and continued it for a little over a year. We started the diet in Sept. of '07 and in June of '08 his doctor told us to discontinue the Asacol.

Osprey knows his stuff and explained the diet well! Also, if you choose to try the diet, it may be helpful to know there are many Specific Carbohydrate Diet (SCD) compliant cook books available at your local book store or online. They are fabulous and make the transition less daunting!

My son is so happy to be able to take control of this through diet that he has never looked back. He only complained the first few days of the diet and now occasionally reminisces about his old favorite foods which he no longer eats. He soooooo doesn't *ever* want to experience prednisone again that he's happy to comply with his diet. Thankfully it is working for him!

Good luck! smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)

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