Constipation? What?

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airila
New Member


Date Joined Nov 2007
Total Posts : 18
   Posted 11/24/2008 12:37 PM (GMT -7)   
So, my Crohn's has been in remission for about 8 years now.  I'm on asacol and 6-mp for maintenance.  I had a scope done last week and it showed very minor Crohn's related inflamation.  The problem is that for the past two years now I've suffered from chronic constipation.  When I was sick it was, obviously, quite the opposite.  My doctor doesn't seem to think it's a Crohn's symptom and she doesn't think it's related to my meds.  She's given me everything under the sun to combat it.  I tried miralax, ametiza, (zelnorm before it was taken off the market), and now lactulose.  Nothing really seems to help.  Has anyone had a similar experience? 

sjs0018
Regular Member


Date Joined Jun 2008
Total Posts : 35
   Posted 11/24/2008 12:56 PM (GMT -7)   
I take Mineral Oil. It is orderless, flavorless and cheap. Works great for me. My DR has me use it since I have tried everything and have had no releif.

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/24/2008 1:00 PM (GMT -7)   
constipation is a symptom (allbeit rare) of Chrons, actually if you search the sight, you will find that alot of people have the C version of chrons. Keep at it an d see how you get on. When I get C, i tend to drink alot of tropical juice, seems to get things moving alittle.
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 11/24/2008 2:24 PM (GMT -7)   
I don't know how rare C is as a symptom, even if it isn't the stereotypical one. There are several of us who have it as our main symptom. I've had this DD for years and D was never my problem. When I am sick, I'm constipated and have bouts with obstructions. Some here have gone through phases of one or the other. I'm sure some other C Crohnies will come along.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/24/2008 3:07 PM (GMT -7)   
Constipation is my big problem. Magnesium supplements help some. I'll have to look into the mineral oil too.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/24/2008 3:36 PM (GMT -7)   
There are stool softeners you can by I think dulcolax is one not sure of the spelling on that ask your pharasicist. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/24/2008 3:39 PM (GMT -7)   
I see you've already tried Miralax, but that is what helps me. I take one capful every day, in the morning. Good luck to you. Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 11/24/2008 4:10 PM (GMT -7)   
miralax once a day and metamucil twice a day...,and lots of coffee, that is my recipe for happiness. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Margie63
Regular Member


Date Joined Feb 2011
Total Posts : 95
   Posted 5/9/2011 4:06 PM (GMT -7)   
My daughter is on 6 mp, 50 mgs. and has been suffering from severe constipation. I do believe it is the 6mp because of our elimination of supplements. The myrlax doesn't seem to help. Not sure what to do either.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/9/2011 6:23 PM (GMT -7)   

I think the thing that’s difficult with C as a symptom, is (for me anyway), it seems so ‘on again, off again’ – one week its ok, the next week suddenly I’m impacted. There is no regularity (just like Crohn’s in general I guess)… so I find it hard to medicate this symptom. I also had chronic D before going into remission thanks to Remicade. I use Movicol sachets as recommended by my GI, but usually when I have to use them its because things have suddenly become dire and I’m impacted. Funny how it can sneak up on you. My GI also says its not a symptom of Crohn’s.

 


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1494
   Posted 5/9/2011 6:39 PM (GMT -7)   
My Daughter has always presented with C rather than D. I've haven't seen anyone suggest Senekot yet. That seems to help for her. Our GI feels it's fine to take up to 3 times a week. She also emphasized that Constipation can cause some harm if left unchecked. Plenty of fluid is another common treatment.

sooper
Veteran Member


Date Joined May 2003
Total Posts : 815
   Posted 5/9/2011 8:13 PM (GMT -7)   
*Phoebe* I agree.


As you can see there are people suffering the same thing. I alternate it seems between the two c and d . Constipation is extra tough cause I have a lot of scar tissue in my rectum anus connection. Keep trying out different things and try and hang in there.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/9/2011 9:45 PM (GMT -7)   
Hi Sooper, I'm the same! I have heaps of scar tissue, so it makes things even harder... do you have a surgery wound? I have a fistula surgery wound and constipation, I've often wondered if the two are somehow connected (maybe things can't 'get through' that well because of the twists and turns of the scar?)

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/9/2011 9:46 PM (GMT -7)   
C definintely makes you feel uncomfortable... I hate that full feeling. And then I get criticised from people around me for not eating enough, when I'm trying to give my digestion a rest!

sooper
Veteran Member


Date Joined May 2003
Total Posts : 815
   Posted 5/10/2011 6:30 AM (GMT -7)   
*Phoebe* I def think things also cant get through cause of the scar tissue is def a factor twist and turns. Even my D comes often with strain to fully initiate through the path that is my very tight anus. For me using the bathroom is a torturous thing 75% of the time. So much so I often think, well I know. That like in 2003 I will have a bag again, only forever. and it will probably be me saying lets do this. Which makes me cry a little cause I dont want a bag again :( I'm 30 now. The disease started in my anus after my first surgery so I figure in another 7 years if it continues to progress at even half the rate of the last 7 I will doomed to use the bathroom. They cant do anything to help other than a bag. Already tryed dilation, and there is too much scar tissue on anus to remove it surgically other than f course removing the anus which means bag. Often I get the spins on the toilet, sweating, shaking... no fun. But somewhere over the last 7 years it just became the norm. If you cant cant eat enough you cant eat enough. is my motto at this point. Some people dont understand how it feels to appreciate why you might eat a lot less than the average folk at times.
Going through hell? Keep going....

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/10/2011 6:40 AM (GMT -7)   
I take stool softners nightly in order to keep things softer and easier to pass. They keep me going at least once a day. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

TakillRa
Regular Member


Date Joined Nov 2010
Total Posts : 489
   Posted 5/10/2011 7:25 AM (GMT -7)   
OH yes constpation is not my friend i can tell you that... Mind you as of late, i have been ok..but it would get so bad , when i did go i felt like things were tearing apart in there!!! If it isn't one thing it's a fricken other thing..this D.D. just will not give anyone a break..hugs to you!!!!
5 years with crohn's
remicade
married for 13 years(been together for 20 this march)
39 years old with a lovely 8 year old daughter
"Bellydancer, Snakecharmer...Bellydance Snakecharmer!"...Beats Antique

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/10/2011 3:47 PM (GMT -7)   
Hi sooper,

Its nice to hear from someone else who has a similar problem. I never had an issue with this until a year or so after being on Remicade. I did have two surgeries in one year to treat an abscess / fistula, and I can tell there is scarring in there, quite a lot of it (because of times when there’s been impaction and the nurses have examined me or I’ve had the joy of manual extraction!)

Things have always been messed up in that area (skin tags etc), and now they’ve gone, but the scar tissue stops things from moving properly. I find it hard being a 20-something girl and having people criticise how much I eat or don’t eat. Sometimes I’ll just want to eat pears because I know that will help flush things out, but then I get strange looks. Oh well, I guess the older you get the less you care about what other people think of you!

I hope you don’t have to have a bag… what medication are you on and have you had in the past?

sooper
Veteran Member


Date Joined May 2003
Total Posts : 815
   Posted 5/10/2011 9:03 PM (GMT -7)   
*Phoebe* It is nice to bump into you : ) Airila sorry to jack your thread. I feel for both of you though, and everyone on this site. If thread jacking is an ill crime here just make this post into a topic mod's for *Phoebe* :)
Scar tissue sucks down there thats for sure *Phoebe*. Makes it tough. Your right the older you get the less you care what people think. ha. You gotta do what you gotta do. For me thats probably a bag unless I get some miracle and my butt just remits. Which it has never done, yet. Im at the brink with the rear exit abilities. I certainly care about a bag though and not to have one and have people be like eww including myself. I mean, I have had one for a year in 2003 to rest my colon after infection and resection. So im familiar and I by no means wanna put anyone down who has one by me whining about getting one. But especially romance wise chicks dont dig bags haha. Though I know, of course if someone loves you they love you etc. Its just trippy. Heart goes out to all with one. ;

Was tested so many times when I was younger 16 and on cause of tummy troubles and they could never find anything wrong. Just kept getting worse and In 2002 I got super sick and they finaLLY found a lot of inflammation in my ilium and made diagnoses. I started Pentasa I think it was. It did nothing and things just kept getting worse. Imuran is my main stay. It basically stops me from having cramps in my lower right abdamon at all which used to debilitate me and still can although not as frequent with no imuran. However, after the surgery in 2003 my butt went on fire and has never stopped mind you it was worst from 2006-2008 inflammation wise and now is just real bad cause of all the scaring but still inflammation and sores present. Right now I take imuran, and cortifoam and am currently doing a round of prednisone. I have tryed in the past Salofalk, Pentasa, Methotrexate and Remicade. I also did a study for VSL#3 a probiotic in 2003 with GI clinic here in Canada. That stuff is great by the way for good bowel movements. But still pains present with it and inflammation. Would def take that in addition to my imuran and cortifoam if it was covered by my insurance though. Oh and cipro and flagyl. Probably something else I have taken in there.

And hey... I guess at least your eating a pear : ) So you ARE eating something. Certainly better than nothing at all. hehe. Maybe I will try some pears tomorrow I havnt had one in a long time in fact. Anyway big hugs and try not to worry what people think about your appetite or eating habits just do what you gotta do to get by.

Post Edited (sooper) : 5/10/2011 10:53:08 PM (GMT-6)


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/11/2011 5:44 AM (GMT -7)   
Constipation is MY Crohn's problem. I almost never get diarrhea.

Hubby has a saying:

Here I sit, broken hearted.
Paid a nickle to poop, and only farted.

As if being a crohnie w/constipation isn't weird enough to the gastros and other doctors, what works for me and keeps me going once a day regularly w/comfortable consistency of the pooh is a One A Day Vitamin w/Iron. Iron tends to constipate most people, but it is the iron that keeps me going comfortably once a day. Just a once a day vitamin won't do it. AND it can't be a one a day w/iron that also has calcium. I can't "do" calcium. Even 300 IU binds me up tighter than a drum. Go figger!!!
My computer says I need to upgrade my brain to be compatible with its new software.

CD-89
Regular Member


Date Joined Dec 2010
Total Posts : 67
   Posted 5/11/2011 5:33 PM (GMT -7)   
I alternate between C and D with my Crohn's disease. My GI says this is for sure normal with Crohn's. I find the constipation to be really painful and uncomfortable, and I always experience a lot of bloating. My GI recommended a few different things to try. The first was psyllium fiber, which you can use for both constipation and diarrhea. I found this was not super helpful for me, but I have heard it work well for other people. Plus it tastes pretty nasty. I tried a few other over the counter "natural" laxatives, but nothing seemed to work too well. I just started taking Senokot and I find it works great. I take 1 tablet before bed, and it is definitely gentle, and brings me a lot of relief. Hope this helps! smilewinkgrin
Dx with Crohn's Disease: September 2010
Dx with Osteoporosis: March 2011

Current Medications:
Remicade infusions, 4 grams Salofalk, 150 mg Imuran
Tecta, Zopiclone, Calicum, Vit D, Iron, Zofran, Vit B12 IM injections - T3's and Ativan -prn
Picc line inserted in April 2011 for home IV, remicade infusion, and blood draws

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/11/2011 6:19 PM (GMT -7)   
Sooper, thanks for your lovely reply. I hope you don't have to have a bag, it sounds like you've been through a lot with trying to find a med that will work for you. My disease didn't respond to the lighter stuff (Pentasa etc) either - the only thing that worked for me and healed the perianal disease was remicade. I am very lucky that it worked for me, because I had all these sugery wounds that just refused to heal.

Its such a complicated illness, and presents in such different extremities, in different ways... I remember once having arthritis and thinking 'what next!?'.
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