"fightingcrohns" posted this and I moved it as it was buried in another thread......Lyn.
Hi moved your post to here so you have a thread of your own and ppl will give you the input you are lookin for ......
This is a great group of ppl and they will help if they can I am sure of it ...Lyn
Post Edited (Howlyncat) : 11/25/2008 6:47:16 AM (GMT-7)
..POSTED ....BY new Member .........***..fightingcrohns ***
Post Edited (Howlyncat) : 11/25/2008 6:44:01 AM (GMT-7)
Post Edited By Moderator (Howlyncat) : 11/25/2008 6:45:28 AM (GMT-7)
If you don’t want to move to Remicade right away, you could give total enteral nutrition a try (special liquid diet used in place of regular food for several weeks in order to induce remission). It’s an old treatment for Crohn’s disease but can be quite effective, especially in children. There are various formulas available but they all seemed to work about the same (e.g., Peptamen, Vivonex, Elemental 028, Optimental, Ensure, etc.). If it’s going to work, you’ll generally see improvement begin within 10 days. If she could get to remission that way, it could give her a chance to let 6-MP take effect, to see if she could use the latter as a maintenance medication. If you want more info about going this route, there is a support board for parents of kids with Crohn’s and some of the parents have kids who have used enteral nutrition: http://www.dragonpack.com/ibdsupport/parents/
Post Edited (MMMNAVY) : 11/25/2008 10:56:44 AM (GMT-7)