Fustrated and worn out

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broach
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 11/25/2008 6:01 PM (GMT -7)   
Hi there everyone.
I am in desperate need of some advice/ guidance. Since early August I have been in agony with my abdomen. Explosive diarrhea, can't control bowels. I finally got to see a GI dr and I thought that he was amazing and that we were on the right path. He believed that I have Crohns due to the check list of syptoms and family history (every woman on my fathers side has it). He started me right away on Asacol 3 tabs 3 times a day on Sept 4th. Now the some of this may be my fault because I didn't have health insurance at the time so we held off on the scopes and any elaborate tests. After about 2 weeks on the meds and a serious diet change/ restrictions I started to feel some what better and bowels were controlable. Then I got constipated and then partially blocked luckily with some medications it cleared. But after that the pains came back with a vengence but not in the lower abdomen but in my upper area particullary where I had my gall bladder removed. I kept telling my dr and he put me on tramadol, which didn't help just made me bump into things. Then the following week the pains are still there no better but when I move and sit a certain way I feel like I'm squishing something by my liver. Now for about a month and a half I talk to my dr about this and he basically ignores it and throws every narcotic at it. Diarrhea still off and on on a daily basis. FInally have health insurance and have the colonoscopy. He sees nothing but takes biopsies. When I wake up I'm in the worst pain in my life in my upper abdo. They make me take GasX no help there. I get home and the pains are still agonizing, call my doc and he sets me up for a CAT for the next day. The CAT is normal but the radiologists thinks they see scar tissue build up from the gall bladder surgery. My dr puts me on nexium, xanax, tramadol and continue the asacol. Then he goes away, my PCP sees me for a check up and reads his partial report and he thinks it may be IBD now. So she adds in Zoloft. I ask about a MRI to see the scar tissue but she says just take the meds. I feel like they are just pushing meds on me and doping me up to be Mary Sunshine. I sort of feel like getting a second opinion. Even on the meds the pains are still there pinching, stabbing shredding. Although I skip the Tramadol... I do need to function.
Does anyone have any advise or has gone through something similar? Any help will be so appreciated.
26 year old female Veterinary Technician. Going through the diagnosis process since August, the fun tests start when I get health insurance in Novemeber!! Currently on Asacol 3 Tablets 3 times a day. Gall bladder removed for malfunction 11-20-07


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/25/2008 7:50 PM (GMT -7)   
Crohns is an IBD, but this is excessively rough. Have you had a small bowel follow thru yet...or did I miss that
sorry you have gone thru so much
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 11/25/2008 8:00 PM (GMT -7)   
It sounds like you need a second opinion to me. You've been through quite a lot already, and there's no need to ADD to the stress by not really trusting your doctor. Find a GI that listens, and that you're comfortable with. A lot of doctors DO just throw meds at us and expect us to shutup and be happy. If that's what your doc is doing, find another one - for sure.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


broach
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 11/25/2008 8:26 PM (GMT -7)   
I have my endoscopy on the 3rd of december. I've started researching GI docs in NY for after all my test results come back. Thank you so much for replying!!!!
26 year old female Veterinary Technician. Going through the diagnosis process since August, the fun tests start when I get health insurance in Novemeber!! Currently on Asacol 3 Tablets 3 times a day. Gall bladder removed for malfunction 11-20-07


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/26/2008 7:58 AM (GMT -7)   
I'm glad to hear you seeing another doctor. I think the sign of a good doctor is one who will not only grant your request for certain painkillers, but will also look for alternatives in the interest of healing you. I'm sorry to hear you're having to experience this, but it sounds like you're on the right path. I hope they find the right medication for you :) Emphasis on the m word.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret

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