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baaadgut:(
Regular Member


Date Joined Nov 2008
Total Posts : 22
   Posted 11/26/2008 10:20 PM (GMT -7)   
I just stumbled upon this sight by accident and boy is it nice to hear that other people have the same things going on as me(too bad anyone has these issues at all tho) I have often felt that some of the things I have been through are unique and I have sort of been given the short end of the stick, so to speak.I have been reading over things that people have posted and so much has shed light for me and have gotten a lot of good advice.  Thanks to everyone.  I also like the fact that I can vent a little and have such wonderful support.  I often don't talk about what is going on because my husband worries so much and I hate to do that to him. 
 
I am a mother of three very active boys and did not think I had time to get sick.  I put off the D, and bloody stools for months until Christmas Eve two years ago when I could not stop throwing up.  I was hospitalized on Christmas Day with C-Diff and did not come home again until April,only to go back in two months to get all but 5 inches of my colon removed, which then came apart, which led to Emergency surgery and an ileostomy and another 5 week hospital stay.  I had the reversal in March but I have never really bounced back from all that, on the outside I look almost like my old self, but my guts tell another story.  Just had a scope and found that I have active C-Diff again - ugh!! (awfully sick and depressed about that. So after reading many different stories I am happy to see that I am NORMAL and I wanted to say a BIG
THANK YOU..Talk soon 
  

 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/26/2008 11:36 PM (GMT -7)   
Hi baaadgut,

I'm glad you found us....so sorry for all that you've been through, I imagine it is hard having a bag and still having to throw up and feel so sick...c-diff is a nasty infection but I've heard that they can clear it up with antibiotics so at least that's something...3 boys, yikes that would keep ya busy, too busy to get sick indeed, if only it worked that way LOL.

I'm sure others will pop into your thread to welcome you as well, this is a very supportive site and can definitely help with the venting among other things.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Tj1
Regular Member


Date Joined Jul 2008
Total Posts : 71
   Posted 11/27/2008 1:31 AM (GMT -7)   
Welcome baaadgut, You have come to a great place to vent, get advice and support. Glad you are here but hate the reason you came. This is a wonderful group of people. Sometimes we laugh, sometimes we cry, sometimes we go HUH???, But it is never boring. I hope you get to feeling better it sounds like you've been through it.

Tj
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 
 allergic to Asacol
 Colazal made it worse
 Prednisone 20mg X2 daily   
 Flagyl 500mg X2 daily
 First Remicade infusion 8-9-08
 
 Toprol XL --  Hypertension
 Insulin   --   Diabetes 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/27/2008 3:17 AM (GMT -7)   
A warm welcome to Healing Well! :-)   You will find wonderful friends and support here.  I look forward to getting to know you.  Blessings, Julie

Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/27/2008 8:40 AM (GMT -7)   
Hi and welcome for the last 2 Xmas's I have been sick and like you ended up in the hospital for xmas two xmas's away and sick for my last one .So will be hoping this year is better for the both of us. It is great to be with others here that are helpful and knowledgeable on so many issues that we get to share. Will be looking forward to spending our Xmas together this year. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/27/2008 4:47 PM (GMT -7)   
Welcome baaadgut, you certainly have been through quite a lot. Hopefully this Xmas you are well and able to enjoy the festive season.
Take care
Jo

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 11/28/2008 3:48 AM (GMT -7)   
hey , and welcome.. curious , why the scope to find out about the Cdiff? seems rather wastefull and slow . any way, im sure ( at least i hope) you were givin instructions on how to minimize the recurance of it and a good treatment regimen. good luck and keep us posted
randynoguts 



     http://www.geocities.com/randynogutsweb/


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 11/28/2008 4:34 PM (GMT -7)   
Welcome. :-D
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/28/2008 5:36 PM (GMT -7)   
I'm so glad you found this site! Maybe what we aren't going through is normal to the rest of the world, but it is happening nonetheless and we definitely need support. Something you will not be short of here. You're always welcome to rant, and people will definitely listen.

All I could think when I read your post is 'dear god' but it sounds like in spite of that you're able to keep a positive attitude...I think more than medication that is the most important thing. Everything else seems useless without the support and good outlook...Keep going the way you are :) And please keep posting here!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


baaadgut:(
Regular Member


Date Joined Nov 2008
Total Posts : 22
   Posted 11/28/2008 6:33 PM (GMT -7)   
Hey randynoguts!!
I was at the hospital to get my remicade infusion and as always my GI came in before they started the remicade, just to see how things were. I told him about what had been going on with my insides and the differences in my D and he figured that he would 'have a quick look!!' before the started the infusion.(not my fav kind of surprises--lol) and C-Diff was the find. On antibiotics and hoping it will clear soon. Do you have any good advice to stop a recurrance. I am always open to advice. Thanks
 


Syf
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/28/2008 9:05 PM (GMT -7)   
Make sure to take a good quality Probiotic.....be careful, some probiotics deteriorate in their bottle once the moisture gets to the capsule.....

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 11/28/2008 9:22 PM (GMT -7)   
Wow Badgut...seems you've had enough coal in your stocking! Glad you found us! Here's hoping you will have better times soon! Probiotics get my vote too! Especially during and after antibiotics! Need to get the good bacteria in your system soon to give you some extra fight status against the nasty C-diff!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 11/28/2008 10:27 PM (GMT -7)   
baaaaadgut.. yes clean everything ! the spores from the Cdiff will go airborne in the bathroom. they will be on the counter, towels, seats floor etc.. so then when you inocently touch the sink etc and then touch something else it transfers.. and can saty alive for a couple weeks if i remember right. even family members can be infected. . if you have the space maybe even using only one bathrrom at home would be helpful. bleach everything you can.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 11/28/2008 11:16 PM (GMT -7)   
Baaaad,
Hello, and welcome. It is alwys good to find the other Crohnies like us! We are all so different, it is always good to have some new friends/fonts to exchange war stories with. We are glad to find you too. Hope you have a great Christmas with your boys.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11

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