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New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/28/2008 6:49 AM (GMT -6)   
smhair  I hope you all had a wonderful and safe Thanksgiving!  Hello I am new member and so glad to find this site.
I was just informed I have CD from a letter from the doctor who preformed the test.  He has placed me on Entocort and made an appointment for 8 weeks later.  So I am very confused as to what I will have to look forward to.  At the present time the Entocort is helping I still have some pain.  But I am feeling so much better than before.  Can anyone help me to know what the next step might be?   Thank you all.   Esmerilda

New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/28/2008 9:59 AM (GMT -6)   
confused  Kasper87 Thank you for the information!  And yes the found colitic in my colon and they placed me on Entocort 9 mg per day.   I seemed to be only having small flare up at this time.  With the pain in muscles and joints and lower right side.  Which is a wonderful blessing!  But I still have no engery.  And still have the painful flare ups.  I have printed off your email and I am very thankful for it.  Thank you again!  I have been searching the net for more information.  Is there a site or book that has been helpful to you?  I will be seeing the doctor next month and have been searching the net for information to be prepared for the visit.  Thanks again,  and hope you have a wonderful holiday!

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 11/28/2008 2:21 PM (GMT -6)   
You might find it useful to scan the posts on this forum for some weeks back, clicking on topics that relate to you. You might also check the Crohns=Colitis Foundation of America website, which has some good general information.And always keep in mind that every Crohns patient is different and that what one says or reports or suggests may or may not apply to you.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/28/2008 4:10 PM (GMT -6)   
Hi and welcome to Healing Well. I have found taking B-12 and a multi vitamin is helpful alot of us here have low B-12. I follow a low roughage diet and that has helped me. Your local crohn's and colitis society might have a book and some tapes thet they will lend. Glad you joined us. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 11/28/2008 4:14 PM (GMT -6)   
Welcome and hi. I take a multi-vitamin (prenatal). I avoid fiber as well as if I eat a certain food/dish that causes serious pain or more gas then I ever had before my last resection, I never eat it again. There should be groups where you can talk face to face about this awful disease found through CCFA (Crohns-Colitis Foundation of America) near you at a local hospital. We chat here on Tuesday nights as well as use this forum to work through issues. Best of luck to you.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 11/28/2008 7:43 PM (GMT -6)   
It really does depend on the person, but you can expect that
a) your medicine regimen will continue to make progress and you will stay on it to stay well or
b) it's possible it may only work for a little while and you may have to start a different medication or many different ones

My advice is to be extremely careful with your diet, keep a food diary, and do mild exercise if you can tolerate it. You really have to learn to say no to yourself when you want some of your favorite foods. Just remember that you could end up in the hospital for a few moments of consuming something for the sake of it tasting good. Also, drink plenty of fluids. Water specifically!! And keep posting here or in places like it..the support is amazing and really will help you through the difficult times. Ah, and really try to keep a positive outlook. Staying stressed, and there is no alternative, WILL make you more ill.
I wish you luck and let us know how your next doctor visit goes as well as how you're feeling until then!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

Veteran Member

Date Joined Oct 2005
Total Posts : 1245
   Posted 11/29/2008 5:46 AM (GMT -6)   
For Crohn's info, you will find a wealth of information here, as well as

Blessings! Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

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