Some advise on Pred

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/29/2008 1:40 AM (GMT -7)   
Hi Guy's
 
I am due for colonoscopy on thursday next weeks. Oh the fun. I spoke with the doctor yesterday and he has advised that I should now stop the pred in prep for the colonoscopy. I have been on them just a little over two weeks and I am scared that just stopping them would harm me in some way.
 
Also, once you stop the pred, how quick did you suffer your next flare? Was it straight away or a few day/weeks/months?
 
Many Thanks Folkks.
 
God Bless.
 
 
Conor
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/29/2008 3:27 AM (GMT -7)   
Conor, did he say why he wants you to stop the pred for the Colo? I would call back to just make sure that he doesn't want you to taper over the next few days. Maybe someone else will come by and be a little more helpful than me, lol! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/29/2008 6:22 AM (GMT -7)   
Hi Conor how much ored. are you on now? I don't know why he is taking you off it maybe others know. Going off a high dose might cause problems as far as I know a person is supposed to taper slowly ,how long have you been on the pred now? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/29/2008 7:07 AM (GMT -7)   
Hi Guy's,
 
I have been on the pred now for a little over two weeks. I am currently on 50mg, he seems to think that it will be safe. I am worried from what I have read that you should not just stop taking the pred and be wined off of it.
 
Also, It has finally started to work for me and I am worried about flaring again so soon after getting over an 8 month flare.
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/29/2008 10:11 AM (GMT -7)   
I too am really surprised that he wants you off it for the c-scope. I have never heard of that before. You must always taper Prednisone. You could have serious adrenal problems just stopping cold turkey like that. I would call him back and ask if maybe he doesn't just want you to not take the day of the c-scope. Personally, I would not stop it. Good luck!!!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/29/2008 1:46 PM (GMT -7)   
Hi Giys,
 
thanks for the responce. Nope, he has asked me to come of it for this week until my scope. Can I ask, when you guys use pred, and when you stop does your chrons start back again straight away? Or, does your chrons stay in remission? I have heard some people say that if it is a sudden stop, your symptoms can co9me back very quickly and with a passion.
 
Advise much needed please.
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/29/2008 2:16 PM (GMT -7)   
Hi Conor,
Stopping the pred when you are taking 50mg sounds drastic to me, it seems you have been on it enough time to taper not stop altogether. I have had numerous colonoscopies while on various mgs of pred, so I dont understand why you need to stop so abruptly. Please ask for your Dr. again if this is right.
Good luck
Jo

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/29/2008 2:28 PM (GMT -7)   
Hi Jo,

I think it is down to the fact that they want to get it whilst the disease is still active. Although, going by what they seen last time, I could not understand why it would not be. LOL.. My stools have returned to normal this past few days, no D at all and good fiurm stools. I think this is a sing that things are clering up. ALthough, my body still hurts like hell. I tried ringing him, but he is not there now until monday. So, I will stop them as ordered and hope for the best I guess.

Jo, when you topper of the pred, does your chrons flare up again?
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 11/29/2008 2:34 PM (GMT -7)   
Yes, as soon as I get to 10mg thats when I start to flare again. I have been on the pred for nearly six years straight now and am currently at 12.5mg and tapering (for the fat lot of good it will do lol).
Jo

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/29/2008 3:10 PM (GMT -7)   

Hi Jo,

WOW! That is a long time to be on those drugs. How have you managed to get on with it whilst on them? I am sorry that you get it that bad. I have not taken the pred today and it is strange. I have had a massive headache all day. My tummy is hurting again and my legs feel like they are 90. LOL..

 

Heres hoping thursday brings good news!


DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


poo
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/29/2008 4:43 PM (GMT -7)   
Hey, Conor. Taking Prednisone of high enough doses for long enough periods of time can cause your adrenal gland to stop producing cortisol (your body's natural steroid). Then, if you stop, you can end up in the hospital. Many folks with Crohn's are on Prednisone for long periods of time. The key here is the dose and duration. I'm GUESSING that your doc thinks 2+ weeks @ 50 mg/day was not long enough to cause the adrenal gland to stop producing. BUT YOU SHOULD ABSOLUTELY CHECK WITH YOUR DOCTOR TO BE SURE THIS IS THE CASE. No sense ending up in the hospital because you didn't double check. Be well and safe!


 
Lisa (poo)
 
========================================================
 
Diagnosed with ileal-colonic Crohn's Disease in early 2006.  First flare lasted January-April 2006.  Now in my second flare--it started softly the end of August and began yelling by mid-October 2008.
 
Symptom buffet:  fissures, iritis, labial lesions, mouth lesions, dacroadenitis, nose inflammation (bizarre!), arthritis pain in shoulder, wrist, ankle, knee and back, hives on hands that spread out in rings, various hives and raised red "bite" looking marks on legs and around anus some of which itch like the blazes
 
Pentasa 4g/day (will be tapered)
6 mp 50mg/day (brand new, just started)
Cipro 500 mg/2x/day (for fissures)
 
Need to start up those supplements again!
 
======================================================
 


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 11/29/2008 9:16 PM (GMT -7)   
thnk the head ache wld be frm the pred,ive never dropped that quickly i wsa on 40mg but i dropped to 35mg and my tum has gone completly nuts again so im going back up to 40mg tom morn,not looking frward to going back on 40mg my face is huggee and think im going to be needing a scope in a couple of weeks too :(
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 11/29/2008 9:37 PM (GMT -7)   

I have gotten headaches from getting off the prednisone...

I was on 80 mg not that long ago.  Because I am already overweight, and was before I got Crohn's, my internist advised me to drop it by 20 mg a week.  My opthalmologist is the one that put me back on it.  Anyhow, I ended up doing 80 for two weeks, then 70 for one, 60 for one, 40 and when I got down to around 40, I flared.  I notice my flares tend to have the same cycle of symptoms and I am getting pretty close to where my eye flares up. 

Anyhow, my GI told me that if you taper too quickly, it can cause the Crohn's to flare and I believe that is what happened to me.  They started me on Remicade in hopes it will help stop the flare I am in and I really hope it does because when the eye flares, it is very painful!

Right now, I am down to 15 mg and wish I could just stop this drug!  I have been off and on it for almost a year.  Everytime I get off, I end up back on it.   sad  

Best of luck and keep us updated! 

 


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/30/2008 2:38 AM (GMT -7)   
Hi Guys,
 
Thanks very much for the reply's. I have stopped the drug as instructed and thankfully, thus far, I am not feeling to bad. How long did it take you guys to start flaring again? Was it days, weeks or months? Did the pred bring it back under control? I am hopeful that come thursday, we can come up with a long term solution to this and get a steady drug.
 
I am desperate to get my life back on track, without the worry of a flare ever 3 months!
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/30/2008 3:53 AM (GMT -7)   
Conor, I wish I could help you. I have been on Prednisone for almost 3 years. I started at 60mg and would flare after each taper, almost immediately. I have been at 12mg for the past year. I am currently trying to drop by 1mg a month. Hopefully, if all goes well, I will be Pred-free in 12 months. (Wishful thinking!!!) The best of luck to you. Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/30/2008 4:22 AM (GMT -7)   
Hi Julie,
 
that is a long time to be on a drug that they say is only short term! How have you managed it? I am gonna stop wprrying and trust the doctor! LOL... I just want to get long term treatment started and start being a father to my children again. lol... thats the hardest bit about it all.
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/30/2008 4:27 AM (GMT -7)   
Hi Conor how are you today when I went off the pred. I googled prednisone withdrawal symnptoms. I think they did mention headaches in that. Perhaps like mention 2 weeks is not long enough to be worried about it but be aware of when you need to seek help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/30/2008 4:40 AM (GMT -7)   
hi gachrons,

I am not to bad today. I am a little feed up with this whole thing! How have you guys dealt with this for so long? I got to say, I am quite amazed at how well you guys deal with all of this! It is doing my ead in already. lol...
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 11/30/2008 5:41 AM (GMT -7)   
Conor, I call Prednisone a "necessary evil." It helped me tremendously, but then I became steroid dependent. I hate it. Has the doctor discussed any other medication options with you? I wish my GI had started to treat me aggressively right from the beginning with other meds and didn't keep me on such a high dose of Pred for so long. I feel this was part of the problem. Others here on the board take Entocort, which, from my understanding, doesn't have as many side effects of traditional Pred and is easier to get off of. Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 11/30/2008 6:32 AM (GMT -7)   

Conor,

After coming down that fast, I would put my Dr's number on my speed dial and if I got sick, go right to the ER. I could never tolerate that kind of drop. Adrenal attacks can be fatal!

Dr's are not always right.

Dave D

P.S. Put 60mg of Pred in your pill box and carry it with you...just in case.


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again. Started Remicade every 4 weeks plus 20mg of Prednisone per day. Six months and seven infusions later, good eye is back to 20/14. Bad eye is 20/70. Had cataract surgery on June 05 on bad eye. Eye returned to a correctable visionary level of 20/40. Life looks good (literally) today.
Married with 4 grandkids.


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 11/30/2008 12:14 PM (GMT -7)   
Hi Guys,
 
thanks for the info Julie. My doctor wanted to being this DD under conrol ASAP, hence the reason that he gave me the Prednisolone. I have been really ill today. MASSIVE HEADACHE, whites of the eyys have turned yellow, stomach is only having minor pains though. GO figure.
 
I called an NHS nurse and spoke to her about the pred. Gachrons, it seems that you are right. She feels that the docotr might think that I have not been on them long enough for me to have any type of reaction. She suggested that they generally go on the rule of 3 weeks use and the tapper, but sometime it can be two.
 
Dave D, thanks for the advise. I am keeping the pred on standby, I feel any sicker and bang they go down the throat. LOL.. Davie, looking at your sig, you have been through quite a bit with this DD. Well done mate! You got courage.
DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 12/1/2008 3:15 AM (GMT -7)   
Conor, I just wanted to see how you are feeling today...... Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 12/1/2008 6:44 AM (GMT -7)   

Hi Julie,

 

I am in a state today. Headache all night and cannot sleep. Tummy pain still away thought which is a blessing! Hopefully, in the time I was on the pred, they have worked to kill of the disease. I can only hope. Thanks for asking my friend.


DX November 2008 - after years of searching for an answer
 
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 9:28 AM (GMT -7)
There are a total of 2,732,557 posts in 301,031 threads.
View Active Threads


Who's Online
This forum has 151190 registered members. Please welcome our newest member, nakertar.
256 Guest(s), 12 Registered Member(s) are currently online.  Details
Georgia Hunter, George_, sheepguy, Psilociraptor, Bololidat, Michael_T, Almost a 10, Huddie, ChickNorris, Mustard Seed, Traveler, kodaska


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer