When was your most recent CT scan? The pulsating that you're describing is very similar to what I felt when I had an ano-rectal (sp?) abscess (located just above my anus). Nothing was visible from the outside, but the abscess caused my entire abdominal region to pulse and throb. It was so painful I couldn't localize the pain enough to tell my doc exactly where or what my problem was. If it's been a while since your last CT scan, I might ask for another and have them focus on your abdomen AND rear end. Sometimes these things are overlooked when they don't have a visible fistula from the intestine on an abdominal screening.
My symptoms are definitely improving on my current routine, but I'm still setting up an appointment for food allergy testing. My mother has very bad food allergies, and she is in a perpetual state of constipation and pain when she doesn't stick to her diet. I have the opposite problem (too much diarrhea), so it took me a while to suspect food allergies. Since your daily symptoms are similar to my mom's - you might think about being tested for food allergies. It is my understanding from other posts that there is now some type of blood test that can analyze 93 different allergies/sensitivities. Something to think about, anyway.
I'm so sorry you're in so much pain! But, you should never feel like you're wasting the doc's time. Remember, technically he is YOUR employee - YOU pay HIM. So, make him work for you like anyone else would that was receiving a fat check. Problems like this seem to create guilty feelings in many of us, when there is absolutely no reason for it. And, if you don't feel like your doc is on the ball and getting things figured out - you should seek out a second opinion. Remember - they're all employees interviewing for the job of making YOU feel better.
I hope you find some answers soon! And welcome to Healingwell!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."