two painful scopes back to back?

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dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 11/30/2008 7:17 PM (GMT -7)   
what are the chances? i know a few of you experienced pure HELL when having a scope done. but has it happened twice?? i have a scope on tuesday (SOO looking forward to the liquid diet tomorrow and the delicious taste of halflytely tomorrow GAH!) and am extremely nervous about having a painful scope again. rewind to my first scope, i had a lot of inflammation going on and my gi had to pop the scope through some of the strictures. also, my blood pressure dropped so they could not give me any more pain meds while i was in a drugged out, but very conscious state crying in pain and grabbing for the nurse. needless to say it left me with a bad memory and tuesdays appointment has got me quite apprehensive about even going. i had to take ativan for the first time in a long time i've got myself so worked up :( i know the inflammation has come down somewhat and those thickened areas are more than likely just scar tissue but i am wondering if he is going to have to pop the scope through again and if so will i be in severe pain again. confused

on another note, my gi has referred me to a surgeon in worcester, ma for january 23rd. he is the chief for colorectal surgeries and also specializes in minimal/least invasive surgery as possible. if he does not recommend surgery, it will be great to get some more incite on my guts nonetheless.

thanks everyone, i would really like to hear your stories, good or bad, so i know what i can possibly expect.


.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

Post Edited (dustspeck) : 12/1/2008 7:06:20 AM (GMT-7)


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 11/30/2008 8:19 PM (GMT -7)   
I have had some very painful scopes. But mine were due to the the pain meds not working or the IV's being blown. If possible try to get them to give you the most medication possible before they start. It always amazes the staff how much medication it takes to work for me. I am a small (5') woman and they give me twice the amount that they give a 300lb man and I'll be wide awake asking for my book, while the man next to me is snoring away. I've built up a tolerance to pain meds over the years.

By the way, I'm in MA too. Best of luck with the scope
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/1/2008 4:28 AM (GMT -7)   
Hi Stephanie, I would ask you doctor to have you put to sleep. Anytime I have had a scope I am put to sleep or my Gi doctor could not do the test on me.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/1/2008 5:31 AM (GMT -7)   
Hi My last two scopes I was put to sleep so don't even remember having them.You will just have to tell them i guess that the pain meds don't work and that you need to be sleeping if that is your wish. I know I had one years ago and no fun at all .So I would tell my Dr. ahead of time now I ask will I be sleeping .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/1/2008 6:39 AM (GMT -7)   
Ask for propofol (diprovan) for the scope. It is a short-acting general anesthetic. And ask WHY this second one so soon. Is it going to change your current treatment? The colorectal surgeon is most likely going to want to do his own colonoscopy. I would just have to question what benefit this second scope is going to provide and if the answer isn't satisfactory to you, refuse it.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/1/2008 7:31 AM (GMT -7)   
I had a really bad scope a few years back, and when I was going in for the next one, I explained how bad the previous scope had been and that I had not been given enough medication to be sedated.  I told them I have a strong tolerance to medications and requested that they be sure to adequately sedate me and they did.  Good luck!

Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/1/2008 9:56 AM (GMT -7)   
thanks so much everyone! i will talk with the nurse before they get my meds set up and explain that last time was very painful and ask what we can do to insure that we won't have a repeat. i am also going to ask my gi about the surgeon needing a scope, too. i wouldn't think so, right? seeing as they are affiliated and it will be still be an updated scope when i see him in january. if that is the case, my gi will be getting a scope done by me personally ...with MY BOOT!

zanne, do you see anyone in worcester or do you go to boston? my gi asked if i wanted to see a surgeon in boston or worcester and i chose worcester.
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/1/2008 1:53 PM (GMT -7)   
I see someone in Stoneham and someone in Boston. Lucky me, the more the merrier. But I'm actually only about 30 minutes away from Worcester, I'm north on 495.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/1/2008 2:21 PM (GMT -7)   
and i am just the opposite, i am south of 290, when it turns to 395, just before connecticut! my gi is in milford (though i need to change to someone in worcester) and the surgeon is in worcester. i hope i made the right choice in going with someone in worcester rather than boston. his name is justin maykel and he seems to have some good credentials. let's hope!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/1/2008 3:02 PM (GMT -7)   
I guess the best we can do is trust our instincts and the doctors creds. My 2 doctors trained together so they have a good working relationship. I only see the one in Boston once a year, just to "check in". But its good cause he's head of GI at Beth Israel and so he's up on all the latest and greatest. As long as you feel comfortable and you can talk to your doctor, I think thats what's important. Best of luck with your scope.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/1/2008 11:14 PM (GMT -7)   
DustSpeck, do NOT wait until they are setting the meds up to ask the nurse! In most states diprivan (propofol) REQUIRES administration by an anesthesiologist whilst the usual "conscious sedation" meds DON'T. It may well be that they can NOT administer propofol where you are scheduled for this scope. Or that they have to schedule the anesthesiologist ahead of time. You NEED to talk to your gastro BEFORE this scope about what meds will be used for this scope.
 
I can't imagine a surgeon NOT wanting to see for himself BEFORE surgery, either via a CT Enterography or a colonoscopy, depending on the area.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/2/2008 8:23 AM (GMT -7)   
omg, i need another ativan :( now i am really worried!!! i had to fill out some paperwork for today and it is noted that i am worried about having another painful colonoscopy. AND i am going to question my gi about the surgeon wanting to do a scope again as soon as next month?????? i do like the fact that i have a mini interview with the nurse before i even get changed so i hope this will help in the proper sedation for me.

'scuse me while i go have heart failure :'(
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

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