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chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 12/1/2008 8:16 AM (GMT -7)   
Videos discussing MAP and Crohn's disease have been posted at www.youtube.com/ibdvideos

They are must watch. Professor Hermon-Taylor and Dr. Behr.

chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 12/2/2008 7:42 PM (GMT -7)   
A relatively new (Dalziel 1913) but actually fairly old (2002) article on MAP and CD. The last few paragraphs are especially good. Reads like a novel.

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EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/2/2008 9:56 PM (GMT -7)   
Hi chocolatestains! Welcome to the forum!

The videos you posted have made the rounds here before, but it's always good to see them come back for anyone who didn't see them the first time! There are many folks here, myself included, who believe MAP may very well play a role in--if not actually be the cause of Crohn's. I read everything I can get my hands on about it. The similarities between Crohn's and Johne's are remarkable and freaky.

Thanks for posting!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


PaulieV
Regular Member


Date Joined Sep 2004
Total Posts : 152
   Posted 12/3/2008 7:17 AM (GMT -7)   
To inform all of you, I have been talking via email to the doctor in europe who is working on a MAP vaccine (Dr. Taylor). He was just in the US in Washington DC to give a presentation on MAP to our country. Kinda funny how the US is looking at him and his research. If you want more information please feel free to contact me.

chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 12/3/2008 8:55 AM (GMT -7)   
Hi EMom,
Yeah as similar as you are going to get considering they are different hosts - host parasites interaction will produce different disease phenotypes, first year microbiology that a lot of doctors seem to have missed.

Hi PaulieV,
The presentation by Dr. JHT at youtube.com/ibdvideos is from when he was in Washington



I guess we need a groundswell of patients to start asking the charities and government why MAP is not being researched more and why Johne's is being allowed to become an epidemic.

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/3/2008 9:08 AM (GMT -7)   
Hey Chocolate stains, I want to welcome you to Healing well, we love getting new members which is probably literally hourly. You'll come to see that HW is a great meeting place on basically neutral ground, no one judges.

My name is Chris and if you ever need someone to talk to please give me a 'ring' '?' lol, dont really know how to put that, send em a post or talk to me in the chat, I'm in the chat every single day.

Loove the name, thats pretty good thinkin.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/3/2008 3:29 PM (GMT -7)   
PaulieV said...
To inform all of you, I have been talking via email to the doctor in europe who is working on a MAP vaccine (Dr. Taylor). He was just in the US in Washington DC to give a presentation on MAP to our country. Kinda funny how the US is looking at him and his research. If you want more information please feel free to contact me.


Does Dr. Hermon-Taylor expect the vaccine to stop Crohn's in people who already have it? Or is this a "preventative" for folks at high risk? I'm not much on vaccines...
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 12/3/2008 4:45 PM (GMT -7)   
Primarily the hope is that it will 'cure' those with CD. And I am not positive as to whether or not it will be used to prevent disease in those at risk groups. I guess that will depend on its efficacy and our ability to develop better ways to determine who those at risk groups are.

They need to raise money for human trials in people with CD. They first need to do safety trials with healthy individuals, but there are provisions in the regulations that might allow them to go straight to CD trials because the viral vector being used in the vaccine is already recognized as safe and in use.

If you watch the presentation, another avenue forward as far as treatments might be J&J's drug that would be able to target MAP specifically, and most importantly be able to kill dormant MAP, something none of the current antibiotics are able to do, and because MAP can remain dormant for so long it is almost impossible to completely eradicate it, which is why most people that have been 'cured' on the antibiotics remain on low doses of them indefinitely.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/3/2008 6:40 PM (GMT -7)   
Thanks, chocolate! That clarifies it for me. Also, I'd seen Dr. Hermon-Taylor's youtube videos in the past (old ones), but it sounds as if these are brand new ones from his recent visit here to the States? (sorry, kinda slow today) I will take a peek! I watched the Dr. Behr video presentation to the CCFC several weeks ago. Thanks!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 12/3/2008 7:23 PM (GMT -7)   
Yes the video posted at ibdvideos is from the recent presentation in Washington. It has some of the same content as the presentation Dr. JHT gave that was posted on youtube before by the Spaniards.

I see your son is gradually using the SCD. I had used it for a number of years - I still often make the butternut squash. One thing I would comment on the SCD in the negative is that it 'okays' a lot of honey, probably too much honey; otherwise, it is a great diet.

David

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/3/2008 9:27 PM (GMT -7)   
chocolate_stains said...
One thing I would comment on the SCD in the negative is that it 'okays' a lot of honey, probably too much honey; otherwise, it is a great diet.


So David, do you restrict carbs? Is that why you say the SCD allows too much honey? Just curious. smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 12/4/2008 6:35 AM (GMT -7)   
I think it allows too much honey because too much honey will feed bad bugs just the same as will too much white sugar, albeit not quite as much.

I personally generally don't eat dairy (or casein), red meat, gluten and i try to limit sugar
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