I need advice on allergy testing....

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted Yesterday 10:10 AM (GMT -7)   
I know several of you have been tested for multiple allergies, but I'm mainly interested food allergies that may be adversely effecting my gut (ie yeast, dairy, etc). I finally have an appointment to see a specialist, so I want to have my questions all lined up.

What tests have you had?
What did they tell you?
How insanely expensive were the tests?
Any tips/advice?

Thanks guys!

P.S. I have decided to reintroduce gluten to my diet to see if an allergy/sensitivity will show up in my upcoming tests/biopsies. I know how tricky gluten testing is... but that is the only diet modification I've tried in the last couple years.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted Yesterday 1:54 PM (GMT -7)   
It is about 2,000 dollars here.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted Yesterday 2:13 PM (GMT -7)   
I chose not to have alergy testing done because it would require being off all immune suppressent drugs for a number of weeks and I am not healthy enough to concider doing that.
Sj

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted Today 10:52 AM (GMT -7)   
I had regular allergy testing done and only had to lay off of the antihistimines for a week...nothing else had to stop.  I only paid about $80 after insurance paid their part - a $30 co-pay and then another $50 something for the tests.  But, I just had basic allergy testing...no specific foods.  He only does those if you think you are allergic to something specific, which I didn't think I was. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted Today 1:40 PM (GMT -7)   
From what I've read (and been told by my allergist/immunologist), you only need to stop antihistamines for a few days in order to be allergy tested. You can continue with immunomodulators/suppressants (like imuran, 6-mp, remicade, humira, etc). I just got allergy tested (again) last week.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted Today 7:21 PM (GMT -7)   
Maybe we're talking about two different kinds of allergy testing and that is the reason for the varying experiences and price?

To my understanding, "normal" allergy testing involves the obvious things like pollen, grass, mold, etc.. mostly environmental allergens...?

The allergy testing I want is for food... I remember someone on here saying that they had a blood test that tested them for 93 different food sensitivities/allergies, or something along those lines... THAT's what I'm after. The tricky stuff. And I don't "suspect" anything in particular other than gluten, but hopefully that isn't a prerequisite for testing... I mean... if I knew, or thought I knew, which foods were giving me grief I would just nix 'em. My problem is that no matter how good of a food diary I keep - things just never add up the same.

So CONFUSING!
Thanks for your help guys.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 12/3/2008 11:17 AM (GMT -7)   
From what I've read (and been told by my allergy doc), food allergy testing is just simply not that reliable.  I was tested for about 50 food allergies using the standard scratch tests on my back, and I came up positive for a few things.  So I removed them from my diet but didn't notice a thing.  When I re-introduced them back into my diet I didn't have any reaction either. 
 
My allergy doc said that food allergy scratch testing isn't very accurate.  It's pretty good at predicting negative reactions (ie, if the scratch test comes back negative, there's a good chance you aren't allergic).  But it can have a lot of false positive reactions (the scratch test for a particular food is positive but you can eat that food with no reaction).
 
There are other types of food allergy testing, including blood tests and stool tests looking for certain antibodies, but those aren't backed by solid science.  So I'd say they're even less reliable than the scratch tests, which aren't that great to begin with.
 
You might be talking about food sensitivities, which are even more difficult to diagnose.  There are labs that will do blood or stool tests for these, but most medical doctors don't put much stock in the results.  There may be some value for you to do this - so I'm not saying it's total bunk - but just know that the mainstream medical community is skeptical of these types of tests.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 9:51 PM (GMT -7)
There are a total of 2,731,951 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151137 registered members. Please welcome our newest member, Country girl2.
273 Guest(s), 2 Registered Member(s) are currently online.  Details
NewspaperLover, Fairwind


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer