no good, horrible, very bad few days

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Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 12/2/2008 7:44 AM (GMT -6)   
So, I thought I was doing better. Was at the end of my second week after a humira injection and had been on the cipro for almost 2 weeks. Cooking Thanksgiving for 18 was tiring but good. I didn't eat much but I didn't get sick either and I felt strong enough on Friday to take a 2 mile walk--first time in months! Was due to take the injection on Sunday but things got crazy.

Sunday morning, I became the diarrhea faucet again. Mid Sunday afternoon, I had the worst panic-anxiety attack. Shakes, weakness, headache. D continued. Was in such a state, I couldn't do the injection. Codeine was helping but only for four hours---instead of 6-8.

Yesterday, I had two big poop accidents. Chills, shakes, fever, weakness, anxiety, pain and my r-v was POURING poo! Took my humira injection. Codeine still only working for a few hours. Losing more weight, headaches, muscle aches. ARGH!

What happened? How did I go from being so excited that the end of the second week wasn't bad to utter yuckiness? I'm behind in work and taking today off. A mess.

Thanks for listening. . .
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08; cipro; supplements: MSM, e, selenium, C, B complex, multi, iron

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 12/2/2008 9:33 AM (GMT -6)   
hey sammie, Im so sorry for what you are going through right now. I sure can relate, I seem to be having pooping accidents on a regular basis these days and just took my 3rd dose of humira, so i am hoping it will kick in soon. Hang in there your not alone, I hope things get better for you soon. Take care

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 12/2/2008 11:17 AM (GMT -6)   
Sorry your going through this. I know what you mean though. It sort of ambushes you at time. Like out of a clear blue sky, wham...But then again it can get better just as fast so hang in there and I hope its a short attack...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 12/2/2008 11:29 AM (GMT -6)   
Hugs Sammies!

I hope you feel better soon! This disease can be soooo frustrating!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 12/2/2008 11:31 AM (GMT -6)   
Dear goodness I'm sorry :( I'm on my fifth dose of humira and things are getting worse too wouldn't you know?
Let us know how you're feeling please. Again, I'm really sorry this is happening. It's astounding how frustrating things can get with Crohn's sometimes.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 12/2/2008 3:05 PM (GMT -6)   
Just going to throw this out there. Maybe one of your Thanksgiving guests gave you something that set you off? My FIL and my Step Mother both arrived with colds, so you know who's home sick today! Of course they were both better in a couple of days, while I'll be sick for weeks.

But whatever set you off, I hope you feel better soon.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Nov 2008
Total Posts : 22
   Posted 12/3/2008 1:34 PM (GMT -6)   
So sorry to hear about your troubles, how frustrating to go from on top of the world to what seems like rock bottom. Hope it all passes quickly and you can get back to two miles hikes. Take care and let us know how you are doing.. Sometimes its enough to make one want to SCREAM!!!!!

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 12/4/2008 12:33 AM (GMT -6)   
thanks so much for the support everyone. Today was so hard---I was up allllll night pooping so I was exhausted. Codeine did nothing. ??? Got to work and things were ok. But tonight my r-v gas gave me 3 poopy accidents. YUCK!!!! so depressing so gross.

How do we do this? I just don't know how I'm going to get through the next minute sometimes. I could win an academy award for improvisation.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08; cipro; supplements: MSM, e, selenium, C, B complex, multi, iron

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 12/4/2008 12:42 AM (GMT -6)   
think thats the ting i hate bout this dumb disease is that u can think ur good then BAM its going nuts im in a routine of haf good tum one day and D the next so im never sure wat to xpect,like the other day tum was great and then today D while at work......grrrrrrrrr how annoying can this disease get??/ part frm my face sweeling up frm the darn pred,i look so bung atm my face is huggggeee,D can be so tiring cant believe u wen tto wrk after being up all night wit D! ur a trooper
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 12/4/2008 12:47 AM (GMT -6)   
Everytime I think Im well - BAM - this insidious disease flares. Im always to scared to ever say Im in remission, because as soon as I voice it, I flare. Sorry to hear how tough you are doing it and I do hope the Humira kicks in soon for you.
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