i am in remission?

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dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/2/2008 6:19 PM (GMT -7)   
that's what the scope revealed. my strictures have opened some and no signs of inflammation. sooo...how come i don't feel like i am in remission? where is the pain still coming from? i suppose the extensive bathroom trips could in fact, be IBS as suggested by my gi. so, i think surgery will be called off for now. i am still a bit fuzzy due to the extra meds they gave me and the lack of sleep for a week but the scope itself went ok and i was some what conscious and alert. much more tolerable than last time. PHEW!

so, i am a wee bit confused. anyone have ideas or suggestions what is wrong with me? does remission keep you symptomatic and this is how i am going to always feel? could this be ibs now and how do i treat it?? cause if so, this sucks! thanks in advance.
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/2/2008 6:47 PM (GMT -7)   
This happened to me when I was in school, and I was told that the nerve endings can be educated / trained into transmitting pain. In other words, it's possible for them to keep on registering pain, even if there's no sign of irritation of inflammation.

You may also find that you just need to give it a bit more time. Remember, your whole body has been affected by your illness, not just your intestines. Keep treating yourself kindly, eat as healthily as you're able to (and don't reintroduce too much fibre at once), exercise as you're able, and get as much good quality sleep as you can.

I'd keep telling the doctors that I'm experiencing pain because it is possible that they're missing something. However, I'd also keep reminding myself that I'd been through an ordeal and that it might take a long time to recover.

The scope findings are very promising! I hope you start feeling better soon.

Ivy.
Co-Moderator Crohn's Forum.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/2/2008 9:16 PM (GMT -7)   
Did you have a colonoscopy only? Did he check your small intestines to see if it's CD free? If not then you should request he does that rather than him assuming via colonoscopy that your CD is in remission.

I too have IBS and CD, the best way to manage IBS is getting enough fibre daily (my GI told me to take fibre supplements daily and indefinitely and I've been doing so for the last 5 yrs with success) and regular exercise.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/3/2008 7:06 AM (GMT -7)   
thanks ladies! i do exercise about 20 minutes/brisk walk a mile every morning and occasionally jump on the elliptical over at my parents. i am wondering if my gi should follow through with the pill cam if my strictures will allow it. i am going to put a call into him today to see what our next plan of attack is. i am concerned about the pain thing now. is it all in my head? will the pain slowly dissipate over time so long as my guts don't get inflammed? i do feel thankful that from an endoscopic point of view i am in remission, just a tad confused. guess i better prepare for the next scene! :)
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

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