Tylenol, something new to avoid?

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patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted Yesterday 7:40 PM (GMT -7)   
As we enter the allergy/cold/flu/ick season, I was just curious to see who else has been given a

No "Non-steroidal anti-inflamatory" drugs (NSAID's) rule?

My doc had me nix tylenol, cold pills, etc. because of their NSAID content. He thinks it wasn't the colds/ickies that put me into a flare last winter, but rather that it was the medicine I used to treat the colds/ick. So far, I seem to be doing a lot better this season. It's hard not to pop a sudafed when my head feels like it's going to explode, but I've found other relief, and my belly seems to be happier for it.

Just thought I'd throw it out there and see if anyone else has been given similar instructions and is noticing anything different from it.

Also, if anyone out there isn't aware of the "possible" negative effects of NSAID's, it's something to think about. Especially if you're prone to catching every stupid little bug that people pass around. Mind your over-the-counter meds and what they might be doing to your belly... even good ole tylenol!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted Yesterday 8:31 PM (GMT -7)   

Thanks patient, this is definitely something to keep in mind. My doctor has never suggested staying away from tylenol etc, only advil.

I will ask him about this this week when I see him. Thanks.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted Yesterday 9:14 PM (GMT -7)   
I'm unaware of Tylenol products containing NSAID's, although I've never used their cold products (I always use Contact C with no issues)...Tylenol in general doesn't contain NSAID's and my GI has told me it's fine to use because of this.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted Yesterday 9:43 PM (GMT -7)   
yes...any chance you or he confused the two? I was told ibuprophen (Advil) was the no-no, while acetaminophen (Tylenol) is fine.

Ever had your vit. D3 blood levels checked in the winter? More and more research is coming out supporting supplementation of "the sunshine vitamin" during the winter when we don't get enough of the real thing. They're saying it can make a difference in whether or not you are "catching every stupid little bug that people pass around". Some doctors are recommending 2000+ mgs for an adult during the winter. Just made me think of it when you mentioned catching too many bugs....
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted Today 3:38 AM (GMT -7)   
Tylenol is one of the few meds we can take. Tylenol is not an NSAID.

An example of NSAIDS are Advil (Ibuprofen,) and Aleve (Naproxen.)
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Today 5:16 AM (GMT -7)   
Hi I didn't realize that sudafed has the other ingredients in it but if I get a cold will look at the ingredients before swallowing things down.I haven't gotten one this year so hope my luck continues. Thanks for the heads up. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted Today 7:19 AM (GMT -7)   
Yes I think there is some confusion here. Tylenol is allowed for Crohnies, but Ibroprofen and Aleve type meds are not allowed.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted Today 11:04 AM (GMT -7)   
I must have misunderstood the doc - lord knows it has happened before. Sorry for any confusion.

I've always known to avoid Advil and Ibuprofen and others like the plague (as do most crohnies I think), but I was upset when my doc added Tylenol to the list and must have mixed it all together in my head.

The end result is still the same though - just forget that I called Tylenol a NSAID.

I know that "Tylenol is allowed" for Crohnies... but nixing it seems to have helped me quite a bit, so it's still something to consider as we enter the cold medicine season. I know that last winter I was downing cold medicine like a fiend trying to be "okay" enough to go to work... it never occurred to me that I could be perpetuating an entirely different cycle of ICK just by drinking Tylenol Multi Symptom or whatever...

It's great that some of you can take Tylenol without problems. I'm just starting to think that some of us aren't so lucky... myself included.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted Today 11:11 AM (GMT -7)   
like pb4 I didnt think tylenol was considered a NSAIDS at all. But I do agree that cold medicine and such would definetnly trigger flares.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted Today 11:19 AM (GMT -7)   
The following excerpt is from the New York Times Health Guide Online. Not sure how reliable of a source it is, but the study that they mention concluded that "NSAIDS... are as safe for patients with IBD as for other people..." and that they are only "thought" to cause problems. Most people on here would say otherwise. I'm just wondering if 10 years from now they'll be saying the same thing about acetaminophen, although I truly hope not!

"Pain Relievers

Acetaminophen (Tylenol) and nonsteroidal anti-inflammatory drugs (NSAIDs) are used for relieving mild pain. NSAIDs include aspirin, ibuprofen (Advil, Motrin), naproxen (Aleve), and celecoxib (Celebrex), the only COX-2 inhibitor left on the market. NSAIDs have been thought to cause symptom flare-ups in patients with inflammatory bowel disease (IBD). However, a comprehensive 2006 study concluded that these drugs are as safe for patients with IBD as for other people, and that they can help prevent relapse as well as provide short-term pain relief."

Anyway, my point is... just because they say something is okay doesn't mean that it is.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted Today 11:35 AM (GMT -7)   
You know Patientspiders I cannot take Tylenol Cold medications myself. I can take Tylenol for a headache, but any of the cold medications by Tylenol DO make me sick, so maybe it isn't the Tylenol thats the problem but the cold meds. Just a thought.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted Today 11:54 AM (GMT -7)   
Uh yeah, Tylenol is the only over the counter one I can take, because it doesn't contain NSAIDS. I'm one of those people who almost died after taking aspirin for headaches, and almost bled to death. I've never bled again like that since I took NSAIDS out of the picture. If they took Tylenol away, I'd have NOTHING to take for pain. So that isn't happening here! As it is Tylenol doesn't work as well for me as NSAIDS do. But as someone who has chronic headaches, I have to have something!

I take sudafed for colds (just the plain stuff, nothing added to it), really helps unclog my nose. But always Tylenol for the pain.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

Post Edited (Jen77) : 12/3/2008 11:57:32 AM (GMT-7)


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted Today 6:42 PM (GMT -7)   
I take prescription strength NSAIDS with the blessing of my GI. My crohns is completely under control the muscle spasms and muscle inflammation that I get isn't. The only thing that helps are NSAIDS.
Jodi

Remicade and 6MP


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 12/4/2008 9:06 AM (GMT -7)   
Hey Patient - You know what else it could be? Not the acetaminophin (sp?) itself, but the "stuff" they use to put the pill together. It could be the "fillers" that bother you - gelatins or starches or whatnot. I know you've gone gluten-free and very strict with your diet and it very well could be that you didn't even know it, but the "stuff" in the pills aggravates your guts. For that very reason I actually take a "starch free, filler free" vitamin just to make sure my body absorbs the vitamins I need. So, I think you're on to something, even if it's not the actual med itself.

RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 12/4/2008 9:18 AM (GMT -7)   
You know, the only thing I can take for stuffy nose is Benadryl, eveything else interacts with my meds and gives me panic attacks - not nice. But I have no issues with Tylenol.
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/4/2008 2:17 PM (GMT -7)   
Stef17 could be right, it could be the 'Cut' or 'Filler' in the medication and not the medication.

That study is odd because I've never met a dr that would say ok to taking NSAIDs especially for a more severe case.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 12/4/2008 2:25 PM (GMT -7)   
I'm starting to think that maybe there are TOO many possibilities to ever be able to figure this out. What a pain.

Thanks for the suggestions though, for sure. I'll have to pay extra-super-close attention to everything. It's so weird how different we all are too - I mean - what is deadly for one is fine for another... never is simple, that's for sure!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 12/4/2008 4:16 PM (GMT -7)   
I took Tylenol Cold for the first time months ago. I went out to dinner that night (only a few hours later) with my in-laws and all of a sudden I got horribly stomach sick (all I had eaten was a roll, salad, and some mashed potatoes at that point, and everyone else had eaten the same). I actually had to spend the night at their house b/c I couldn't leave the bathroom. My flare up got worse and I ended up on a liquid diet for a month thereafter. I cannot be positive that the medicine caused my stomach problems to intensify, but I will not take it again.

However, I can handle regular Tylenol just fine, but I use that only when things get really bad.
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/5/2008 10:17 PM (GMT -7)   
Um...its possible that your liver is working harder and that's why you "MIGHT" have to avoid acetaminophen. I have liver damage so whenever I get bloodwork done, it always reads elevated whether I've taken pain meds or not. Just be careful with it b/c it could be that gallstones and etc. can put more work on the liver. Just a silly insight.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)

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