New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/3/2008 11:56 AM (GMT -7)   
I was having 3-4 solid BM's a day for about two months, but now I am back to liquid and several times a day. I can't eat anything more than eggs, ensure, or apple sauce, and I noticed some blood in the stool today...

What do any of you do to keep yourselves from returning to a full blow flare? I'm going to try taking small doses of prednisone again(I was off for a month and a half *sigh*) and stay on a liquid diet. The only big problem at the moment is, aside from sleeping ALL the time from exhaustion, I have my finals this week and the next. That said, obviously there is a lot more stress, but also since I am so tired all the time it makes it difficult to get the necessary studying done. I might have taken a semester off were it not for the fact that school is my source of income and two other people are depending on my ability to bring my share of money in.

In short, I am stressed and at the beginning of a flare, and I desperately need to stop it or at least at bay until finals are over.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/3/2008 12:11 PM (GMT -7)   
Ok I am not a doctor, but while on vacation recently I flared. Didn't want to be down on my vaca, so I started a quick 10 day burst of Pred and it got it under control really quick. I started at 25 mg for 2 days, 20 mgs for 2 days, 15 mg for 2 days, 10 mgs for 2 days and 5 mg for 2 days. Yesterday was my last day of Pred, and I feel fine today.

It really does sound as if you are flaring though and you are diagnosed with Moderate/Severe Crohns and I only with mild Crohns, so you might want to contact your doc. But maybe the quick burst will quiet things down enough and give you a little energy to get thru finals. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/3/2008 12:16 PM (GMT -7)   
Thank you!! I may have to try that. I have to call my doctor's office today anyway because they have to approve my pentasa refill. Goodness knows why...I thought I had more refills on it haha..

You didn't get any headaches or mood swings or the like though?? I'm pretty desperate to try anything to keep this thing away.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/3/2008 12:42 PM (GMT -7)   
Hey LMills, I found eating lots of mashed potatoes and chicken helped calm my bowels when I was in a flare. It kind of feels likes the mashed potatoes coat your bowel and slow things down. I also found using immodium when I had to do the important things helped reduces the amount of BM's for a short period of time. Might help while you are taking your finals. Drink plenty of water as well. It helps keep you flushed and hydrated. Honestly I found it gave me lots of energy. I used to drink up to 12 to 14 cups of water a day just to get rid of my cravings for all the bad foods and kept me feeling full. Good luck with your schooling and hope you get better. :)
Age:22/6"1'/138lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Warfarin, Prednisone :(, 6mp :( NOT WORKING
Problems:Fissure and Tags on rectum, blood clots, ChronicUTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s
Procedures: 3 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 12/3/2008 12:44 PM (GMT -7)   
Oh and another thing eggs and applesauce are high irritants when it comes to your bowels and maybe if you avoided them that might make the difference, but every one is different. Well anyways hope all the best for you :)
Age:22/6"1'/138lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Warfarin, Prednisone :(, 6mp :( NOT WORKING
Problems:Fissure and Tags on rectum, blood clots, ChronicUTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s
Procedures: 3 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/3/2008 12:55 PM (GMT -7)   
No I got no side effects except a little increase in my appetite, but other than that I was okay. It helped with the energy levels too.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 12/3/2008 1:41 PM (GMT -7)   
I tried the quick burst Pred thing in '06 when I thought I was starting a flare. seemed to work..

Matthew

ladybugcrohnie
Regular Member


Date Joined Mar 2007
Total Posts : 35
   Posted 12/3/2008 2:04 PM (GMT -7)   
I feel your pain!  Are you staying away from Caffeine and fresh fruits and veggies? That usually  helps me.  Meat, eggs, goat cheese & goat yogurt are the staples of my diet when I am in a flare.  Sounds weird, but I do very well on the Makers Diet.  I stay away from any dairy that comes from a cow as well as processed foods and any baked goods/breads.  Good luck with the flare and finals!
28 yr. old female
Humira
probiotic
Fish Oil
Maker's Diet
DX in November 2003
no surgeries to date


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/3/2008 3:06 PM (GMT -7)   
Hi Hope you can get yourself out of this in a hurry. No new advice to add just a hope for you feeling better soon. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/3/2008 6:26 PM (GMT -7)   
Thank you guys.. I will definitely take all of your words into account..couldn't talk to the doctor today so I will try again tomorrow..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/3/2008 10:55 PM (GMT -7)   
(((LMills))) Im sorry you are going through this.
I would do the quick burst of pred thing too, hope it gives you some relief.
Jo

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/6/2008 3:31 PM (GMT -7)   
All right..I have another question! As of late when I lie or sit in such a way as to put pressure on the lower right quadrant it will make my entire body spasm. Not so much fun when I am trying to sleep and have to keep moving around to find the right position to make that quit. And I'm sure most of you know moving around that way makes your stomach work so you just end up running to the latrine and making all of it seem a moot point anyway.

I'm just very frustrated because it doesn't seem like the humira is doing anything...I slept until 5:15 pm today too and I still have two finals to study for coming up on Tuesday and Wednesday.

If anyone has had any experience with odd spasms after putting pressure on certain parts of the stomach though it would be really appreciated...I'm not sure what to think.
Ah, and I haven't been able to eat either. So much fun!!!! :D
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 12/12/2008 10:47 PM (GMT -7)   
i only thingi notice when i lie dwn atm in on my back dunno if its frm work sitting all day and not moving much or wat ever just feels like pressure on my back :S and i usually end up getting things moving along at night coz of rolling over......its so weird wen that happens pretty much as soon as i lie dwn and i roll frm my rite side to my left my tum startes going nuts and i haf to get up and go toilet,have you strted ur pred yet? im in a flare atm and haf been for bout 2 mnths now strted on 40mg dropped to 35mg and got bad so now im staying on 40mg til my scope so i can work.....my GI offered me some immodiom but he sed the pred wld be safer for my crohns.Maybe when you put pressure on a certain bit it mves something along and the rest of ur tum starts mving the rest of it along :S i discover a persons bowels can do some weirdd things at times.
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:48 AM (GMT -7)
There are a total of 2,735,830 posts in 301,337 threads.
View Active Threads


Who's Online
This forum has 151437 registered members. Please welcome our newest member, stevclemon.
284 Guest(s), 9 Registered Member(s) are currently online.  Details
TOOTY, Bucko, magoo2, Pratoman, NiceCupOfTea, fibrocushie, houseboy, Not-there-yet, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer