Spindy--as a Crohn's sufferer for more than 20 years, I know the difficult decision ahead of you! I chose to have a proctocolectomy this past February and although the decision was right for me, it's not for everyone. I would just suggest (as it has already been done) to visit the "ostomies" forum...there are many helpful posters who might have some answers.
I wish you the best with your health!
Thanks for posting on the Ostomies section. I wrote you a reply.