colonoscopy looked fine...what now

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lawgirl99
Regular Member


Date Joined Oct 2008
Total Posts : 22
   Posted 12/4/2008 6:46 AM (GMT -7)   
so i had my colonoscopy and it came back with nothing. The doctor did some biospies and they were fine too. All my bloodword was fine. He had me try some fiber stuff and that did not work. Still having constant dirrhea and the pain on my left side and middle of stomach and sudden urges to go to the bathroom a short while after i eat. I also recently went to my regular doctor and was diagnosed with hs, or Hidradenitis Suppurativa. It is a very severe case of it and I sometimes get these things they call fistulas. I was reading online and it said that it could be linked to chrons or some sort of IBS. My mom said that it took a long time for the doctors to diagnose my aunt with colitis and she she thinks she had a colonoscopy that looked fine. I'm beginning to think that this is all in my head. My question is could I still have chrons or some sort of ibs and my colonoscopy look fine. It's beginning to drive me insane and it seems like things are just getting worse. it's been going for like 8 months now and i am constantly getting migranes. I have not lost any weight which i know is usually common i think.  I have to go back on the 17th, hopefully we can figure something out.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/4/2008 7:55 AM (GMT -7)   
Just because the c-scope came back clean doesn't mean you don't have Crohns. And I believe IBD is the only condition you have if you have fistulas.

How about requesting a pill cam??? This will look more closely at the Small Bowel which the c-scope can't see. Sure sounds like Crohns to me.

Good luck,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/4/2008 9:22 AM (GMT -7)   
well, if you are crazy, then that makes two of us! i just had a scope on tuesday and my crohn's is in remission. no signs of ulcerations and my gi was able to fit the scope through my strictures with no problem. but, i still have urgent d up to 12 times a day and have upper abdominal pain and strange poking feelings on my right side. i also feel i am combating fatigue. i will have the results of my biopsies next week. my gi is leaning towards ibs or another type of "production" disorder. whatever that means :)

so you are not alone. although i am quite happy about my crohn's being "in remission by an endoscopic point of view", i still feel there is this big question mark staring me in the face again.

good luck on the 17th!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/4/2008 1:25 PM (GMT -7)   
Hi The only other way to check for crohn's would be the small bowel .I did read up on the hidradenitis supp. and they have a fistula or tunneling when the sores get infected. Do hope you feel better soon but glad your scope was good. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/4/2008 2:11 PM (GMT -7)   
A clean scope means nothing, I've had many since having surgeries. I still ahve Crohns disease, its not going anywhere.

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 12/4/2008 3:22 PM (GMT -7)   
Remember they call it a colonoscopy for a reason -- it looks only at the colon, whereas Crohns can be and often is active primarily in the small bowel. Perhaps it's time for a SBFT or pill cam to check for active disease there?

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/4/2008 3:25 PM (GMT -7)   
MikeB is right, Crohns Colitis is actually quite more rare then Crohns iillitis(spelling) or 'general' Crohns, meaning involving small bowell and colon.

I've had a pill cam years ago, and where as it was a simple test, it just didnt work well with me because of inflammation. but I'm not getting into horror stories that are once in a thousand on someone that might not be as well versed, it tends to pursuade people alot and often in the wrong direction in my opinion.

One piece of advice I think we can all agree on is, let your drs do their jobs, they are specialists in the field for a reason.

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 12/4/2008 3:48 PM (GMT -7)   
CrohnsPatient said...
A clean scope means nothing, I've had many since having surgeries. I still ahve Crohns disease, its not going anywhere.
 
Exactly.
 
And if your Gastroenterologist is ruling out Crohn's just because of a clean scope, it's time to find a new doc.
 
My scope came out pretty clean (very minor patches of "irregularities"). But the Prometheus Sereology 7 came back positive for Crohn's, and the sed rate and C-reactive protein results showed active inflammation. IMO, it just doesn't take much in the way of inflammation in the GI tract to make a person *really* miserable.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. 
 
I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/4/2008 10:17 PM (GMT -7)   
Nanners said...
Just because the c-scope came back clean doesn't mean you don't have Crohns. And I believe IBD is the only condition you have if you have fistulas.


Good luck,
Gail *Nanners*

People with diverticulosis can also get fistulas.
 
wink  
My bum is broken....there's a big crack down the middle of it! LOL :)

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