Prednisone a hero in desguise?

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CrohnsPatient
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Date Joined Feb 2008
Total Posts : 314
   Posted 12/4/2008 4:53 PM (GMT -7)   
So I'm definetly a person thinking highly of Prednisone. Not only because of my experience with it for Crohns disease, but because I've used it for years prior for my asthma as well. I've noticed that there a numerous, basically more then you can keep track of that are against or atleast talk down on prednisone, but yet love entecort. To me in a way, your partiuclar case is bad enough then you to will love or atleast tolerate and be willing to use Prednisone. Of course this is my opinion, and there are people with much stronger opinion against prednisone. But a lot of people tend to not like it based on things like weight gain, which to much of us, is what we NEED, to gain weight, I've lost weight on prednisone multiple times.

I'd just like to start this post based on people that 'appreciate' Prednisone I guess I should put it. Meaning people that have had it help them, I think all this negative publicity in the form of patients experience is negative towards treating the actual disease of others, especially for people with a severe form like some of us.

So please post good things on this post for a change, lets try and talk about how it got you back on your feet, or brought you out of a or multiple flares as in my case. I know for me that prednisone is basically the only medication that will pull me out of a flare, especially with any relative speed. Some people flare, they flare for a couple days and take a new round of or start asacol again, I'm talking about the people that are closer to my shoes for this one, the ones that flare for months on end. The ones that are in the ER multiple times a WEEK, and admitted a few times a year atleast. But please feel free to post about it helping you no matter how severe or how long or bad your flares are.

I will be back to add onto this post, but as of right now I'll leave it at this, to see if I can even GET any responses. There are those of you out there that might not like it but do agree and know that there is a definite place for prednisone in the Crohns medication tackle/tool box.

I feel that a lot of newbies count out drugs like prednisone just for others experiences, when if your going to completely count out a medication I would assume it would definetly be the immuno-suppresents, that would make much more sense, and I feel that some peopel are getting the relief as quickly as they should or even at all because of negativity. nono

spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 12/4/2008 5:19 PM (GMT -7)   
I love the way prednisone made me feel (good appetite, lots of energy). But I hate the moonface and bone loss (I have to take actonel now). Prednisone was what got me back on my feet after my initial diagnosis, and helped get me out of a few flares. But it also was responsible for me catching a nasty case of valley fever (hospitalized for 2 weeks, had to drop out of school, and had to take Diflucan for 6 months). It also failed to get me out of my last flare. After 3 month, I switched to entocort and it took care of it. But entocort is no bed of roses either. When my dad took it, he developed several problems (prostatitis, acne on his back, and joint pain). It seems that with all drugs, they help in one way and hurt in another.

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/4/2008 5:33 PM (GMT -7)   
entecort is usually considered a lesser of the two stength wise. which is why a lot of drs use it for maintenence type medication on steriod dependant patients. I'm sorry but I'll live with a moonface for a little while while it keeps me out of the hospital, ambulances, and ERs. Thats a very small price to pay.

spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 12/4/2008 6:04 PM (GMT -7)   
Have you had any bone loss problems with prednisone use?

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/4/2008 6:06 PM (GMT -7)   
Yes but not until recently, and I've been taking prednisone since I was little, I've had asthma since 6 months, so literally longer then I can remember I have taking prednisone. Crohns disease itself can cause some joint and bone issues alone so I really dont dwell on that aspect

indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 12/4/2008 7:03 PM (GMT -7)   
It is true that every drug has its good and bad, and I have a "love hate" relationship with prednisone.   Here, I will talk about the "love" aspect. 
 
When my Scleritis flares up, NOTHING so far has calmed it down and helped with the pain like prednisone has. It also has helped with the Crohn's related arthritis I have.  It has helped my stomach feel better and act better :-) real quick.  Prednisone is nice in that it works fast.  I also have asthma and it helps with that.  My skin doesn't get dry when I am on it.  In general, it helps me feel better, all the way around.  There were days I would not have been able to work or function without being on prednisone.
 
Unfortunately, I have so much "auto immunity" going on, as my GI put it, that I need to be on immunosuppressives long term.  From what I have read and been told, I may need to be on a maintenance dose of prednisone to keep my Scleritis under control.  There is a good chance I may end up taking both immunosuppressives and prednisone for the rest of my life. 
 
I have read, and I agree with this (someone on here posted this) that when you are feeling better, you hate prednisone, but when you are sick, you really like it. 
 
 

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 12/4/2008 7:40 PM (GMT -7)   
I woke up one day unable to dress myself (I have RA) because my right hand, left shoulder and left elbow were so swollen. I also had trouble dragging myself down the stairs and folding myself into the car to drive to the doctors office.
I left with a script for prednisone-the trip to the pharmasy was hellish.
I swallowed the pills in the parking lot drug myself home and fell asleep.
When I woke up I showered, dressed, drove to the grocery store, pushed the cart and carried the groceries up the stairs-not completely pain free but almost.
I don't take it a day longer then I have to but I also don't leave home without it.
Sj

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/4/2008 9:08 PM (GMT -7)   
I remember two great things about prednisone...seasonal allergies are non-existant, as well as skin conditions like eczema.

pretiprinces17
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/4/2008 9:24 PM (GMT -7)   
I too have been grateful for prednisone a few times in the two years since I was diagnosed with Crohn's. I begin to feel better within like 2 days of starting the treatment and love feeling better. It also takes care of my psoriasis, which is a major plus! Like most, I hate the "moonface" and weight gain, but if it makes me feel better... I'll take it! I have not tried the entocort and hope not to. I am currently on Humira, which is working well and I have not had a flare since I started it in March! (YAY!) Thanks for posting this CrohnsPatient, I personally am willing to endure the unpleasant prednisone side effects in exchange for less trips to the bathroom, being able to keep food and nutrients in my body, and generally feeling physically able to get out of bed in the morning!
*Courtney*
*24 years old, female* *Diagnosed with Crohn's October 2006* *Diagnosed with Alpha-1 Anti-Trypsin Deficiency July 2008* *Also, I have had psoriasis (no meds have EVER worked-not even crohn's meds or pred., but tanning 2-3x/wk keeps the "scales" away) since I was 5 and I am anemic* *Currently taking Humira with mild side effects but at least it's the only one and I can eat again without emptying my bowels every hour or so* *Previous meds: Asacol, Cipro, Lialda, Prednisone, 6-MP* *Also taking daily vitamins: multi, iron, folic acid, c, flaxseed oil, and fish oil*
*"True strength is being able to hold it all together when everyone else is expecting you to fall apart" -unkown*
*"I am not afraid, I was born to do this" -Joan of Arc


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/5/2008 6:03 AM (GMT -7)   
Hi Pred. did help me get out of some obstructions not easy but did help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/5/2008 8:08 AM (GMT -7)   
I have always called Prednisone a necessary evil. If I start flaring I can usually take a quick 10 day burst and get back to feeling better in no time. Yes it has alot of side effects, but it does get you feeling you better quickly.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 12/5/2008 8:24 AM (GMT -7)   
i know this is supposed to be a post with positive feedback about prednisone..but unfortunately i was on pred for 2 months at very high doses (up to 120mg a day in the hospital) and i had no improvement...maybe it did help me but i also was on bowel rest (aka had clear liquids for weeks) and started remicade during my 34 day hospital stay..so i dont know what really "helped" me..i definitely agree that it helps people and should most likely be used to help quickly stop flares..but it's definitely not good over the long term and is very damaging to ur body after awhile...i honestly dont know what i'll want to do if i ever flare up that bad again...i've vowed to never take it again because of the nasty side effects i had coming off of it..and im not talking about the stupid moon face or the weight gain, that doesn't matter when u r getting healthy..but i had terrible muscle spasms, body aches, extreme fatigue, and just alot of pain all over my body..so bad i had to go to the ER one night and get an extra boost of IV prednisone because coming off of it was so painful...sorry i didn't mean to bash prednisone..i think it's a great drug for the majority of the population lol..i just had a really bad first experience with it and i know many people do much better with it....
21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...canasa, rowasa, 6mp, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 12/5/2008 8:48 AM (GMT -7)   
Prednisolone has twice brought me out of horrible flares. It gave me the energy to get out of bed and get on with my life.
I hate the side effects but i can live with them.
im still on it and currrently tapering by the week. The fear of whats going to happen when i finish this course has already set it.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 12/5/2008 9:34 AM (GMT -7)   
Yeah, I love to hate it. But frankly, I have found in the last few years if I feel I'm starting to flare, I take it for a few days & the symptoms go away.
But I'll never take it long term again..

Matthew

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/5/2008 11:24 AM (GMT -7)   
ImAud, Maybe you werent weaned off slow enough, a lot of people have trouble weaning off because your body stopped making its 'natural steriods' at a certain level and kicks back in around say 15mg when weaning. That is most likely why the ER IV prednisone, which would be salumedral worked.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/5/2008 12:51 PM (GMT -7)   
ImAud, I agree with Crohnspatient, I think you were weaned incorrectly.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


JustMeAndYou
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 12/5/2008 2:43 PM (GMT -7)   
My BF is slowly weaning of pred (started on 40 mg and dropping off 5mg per week) but it helped him immensly with his last flare. He was able to start work after 3 years with an ileostomy bag and reversal last Aug and is doing wonderfully, along with a daily dose of Immodium and lots of tlc! <3

BTW - to what does "moonface" refer?

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 12/5/2008 4:13 PM (GMT -7)   
Moonface, means the swelling of the face, steriods tend to make people swell in certain areas, this isnt to say everyone will get this. But some people retain fluid when on steriods. Moonface isnt that bad considering the kind of lives some of us lead with this disease.

Sort of a puffy cheek looking face.

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 12/5/2008 4:24 PM (GMT -7)   
Pred works good for flares without a doubt. can't fault it there. But it causes me to go into manic type behaviors and mess around with the thoughts in my head. And as I wean off, it my entire body hurts and i get very depressed. The physical symptoms I can deal with(weight gain, joint pain, blurry vision, hair growth, acne, numb feet, high BP, etc), its just the part that messes wtih my mental states that is the more torturous about prednisone.
UC/Chrons since age 22, now 27.  Several huge flares since then.  Entire colon diseased at some point from cecum to rectum.  Also had previous inflammation in terminal ileum.
 
Currently tapering prednisone(7.5 mg from 80 mg).  Also just starting 6mp again(75 mg) and lialda.   Suffering from Salmonella as well! :(


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/5/2008 4:39 PM (GMT -7)   
It gave me one and a half months of respite this past summer and allowed me to eat something aside from broth and bits of chicken. It also gave me the capability of getting my apartment in order. Plus, I was able to eat cookies, albeit gluten and wheat free, but still cookies nonetheless.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret

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