Osteoperosis and prednisone

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jla
Regular Member


Date Joined May 2005
Total Posts : 75
   Posted 12/4/2008 8:06 PM (GMT -6)   
I have been taking steriods for two years, continously and periodically throughout my childhood. I have been told I have osteoperosis and need to remain on steriods due to my crohns. (and may be on them indefinately). I already take Cimzia and this alone is not helping me. Only the combination of drugs helps me. I have started taking calcium supplements and already eat some dairy such as yogurt and cheese sometimes when I can tolerate it. I am worried about what the doc. has said and do not want to remain on the steriods at all. any suggestions would be great !
thank you,
jamie

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 12/4/2008 8:35 PM (GMT -6)   
There are medications that actually reverse osteoporosis-have you talked to your doctor about any of them some are pills you take once a month some infusions you get once a year.

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 12/5/2008 12:35 AM (GMT -6)   
I am also steroid dependent and just diagnosed with osteoporosis a couple months ago. I saw an endocrinologist... maybe not necessary but, since my insurance is ok with it, I figured I'd see someone who could understand the steroid/osteoporosis relationship. She suggested Forteo, which is a daily subcutaneous injection and can actually build bone mass. The bisphosphonates stop bone deterioration, but don't really help in the re-growth. Forteo is only approved by the FDA to be used for up to 2 years. After that I will have to switch to Reclast, which is the once a year IV bisphosphonate. (She worries I won't absorb the oral meds.)

All this said, we still don't know if I can take Forteo. It will require prior auth (expensive) and often they don't approve it for a first line treatment.

I am sure you ccould talk to your ObG or a primary care physician and start up on some sort of bone drugs. Hang in there...
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  Doing well with this so far.
--single mom to 11-yr-old girl


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/5/2008 12:42 AM (GMT -6)   
Have you guys that are pred-dependant asked your docs about trying Remicade or Humira and getting off the pred? Definitely something to consider if it's an option, which I hope it is, pred can be great but long-term is a whole other can of worms as you well know...I hope you are both able to find relief from your CD and your osteo.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 12/5/2008 11:14 AM (GMT -6)   
The only drug on the market that I have not tried and failed is Cimzia. I have been on the brink of calling this week. I've done well on the budesonide rectal for months and have been better than I was while on Tysabri, which in the end didn't seem to do much of anything for me after all. But, I am fearing a slip coming and this morning has not done much to relax my fears. Ha.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  Doing well with this so far.
--single mom to 11-yr-old girl

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