I am also steroid dependent and just diagnosed with osteoporosis a couple months ago. I saw an endocrinologist... maybe not necessary but, since my insurance is ok with it, I figured I'd see someone who could understand the steroid/osteoporosis relationship. She suggested Forteo, which is a daily subcutaneous injection and can actually build bone mass. The bisphosphonates stop bone deterioration, but don't really help in the re-growth. Forteo is only approved by the FDA to be used for up to 2 years. After that I will have to switch to Reclast, which is the once a year IV bisphosphonate. (She worries I won't absorb the oral meds.)
All this said, we still don't know if I can take Forteo. It will require prior auth (expensive) and often they don't approve it for a first line treatment.
I am sure you ccould talk to your ObG or a primary care physician and start up on some sort of bone drugs. Hang in there...
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night. Doing well with this so far.
--single mom to 11-yr-old girl