Child with Crohn's? or constipation?

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teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted Today 1:04 AM (GMT -7)   
I am worried about my six-year-old. He is REALLY backed up! This is his 3rd time, but his 2nd this bad, in about 1 1/2-2 years. Our Family Dr. is sending him to a Pediatric Gastro. on 12-9-08. FD asked if there was any thing else. I said, "Yeah, tell them his Mom (meaning me) has Crohn's and so did Mom's grandfather. Mom's grandmother had Ulcerative Colitis, and died from Stomach Cancer." He looked a little surprised, a lot concerned, and told the nurse to put that in the referral. I feel awful, because I did not know how much pain my baby was in until he told the nurse (using the faces pain chart) how high the pain got from time to time (8-9). He also said "Yes" when they asked him if it burns sometimes when he goes to the bathroom. They asked him twice and seperated urination from the bowel movements. He just does not complain about pain. He never told me how bad it was, he just said, "My Pee pee hurts." :(

He had been pulling at himself. An Aunt that watches him a lot, thought maybe his testicles had not come down, so I took him in. Once they heard the symptoms, they took a urine test and did an x-ray.
His only symptoms were:
1. Pulling at himself
2.Repeated switching between constipation, diarrhea, and regular stools
3. Last week, sharp pains enough for him to scream for me in the night, but he was fine by the afternoon the next day.
4. His belly pain is right behind his belly button. That is where my pains first started. Now I usually feel them just to the left of my belly button, which is weird, because I have a TINY canker in my Ilium.
The FD said his painful urination could be from the full bowel laying on his bladder.

I know this is not a whole lot to go on. I am hoping it is something to do with his diet. Lately, he has become allergic to strawberry flavoring. He can have strawberries, but not any sort of artificial flavoring, which is sad because he loves ALL strawberry flavorings. That was how I used to get him to drink his milk. His face breaks out in a rash next to his lips if he has any artificial strawberry flavorings. Except cheap, add-in strawberry milk flavorings. I have to stick with the Walmart cheap strawberry flavor or the Aldi cheap strawberry flavor, and he has to limit how much of it per day, or he will break out from that too. He can not have the pre-made though, like you buy near the pre-mixed chocolate milk. He does ok with white and chocolate milk.
What should I look for? I know it is rare that it goes directly down the line. If I carry the gene, it ought to have skipped him and affected my grandchildren. Right? It's a little scary knowing the risk of cancer too. My mother died from Breast Cancer, her mother died from Stomach Cancer, and my grandmother's brother died from "The Cancer". My father's grandmother died from Ovarian Cancer. My husband's grandfather's mother died from (they think Breast)Cancer, and my husband's grandfather then died from Multiple Mylo ma (chewing) and my husband's Uncle, Grandfather's son, died from Emphysema (smoking), and his Aunt, grandfather's daughter, has cancer too.
Thank you for any thoughts.

confused

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Today 4:47 AM (GMT -7)   
Hi Teenatoons Perhaps some of his problems is constipation.Which can cause alot of problems like switching between C and D. I would say though in my opinion that I would get rid of the strawberry stuff completely.I have read that food allergies can cause inflamation so I would not give him any if it were my kid. Has your Dr. given him something to soften the stools or are you waiting on the GI ?As for the gene I don't know if it skips a gereration or not. But I can remember when I was young getting problems from the strawberry stuff.Hope things work out for the best and keep in touch. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Today 12:54 PM (GMT -7)   
Hi Also wanted to mention that a low B-12 can cause constipation. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted Today 12:59 PM (GMT -7)   
I think that you might also want to see if he is lactose intolerant. I know milk causes me to get an upset gassy stomach really bad. I wouldn't think it is Crohns right off the bat, could just be food allergies. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted Today 1:06 PM (GMT -7)   
Fyi these are the symptoms of low B12

Symptoms of B-12 deficiency and B-12-related anemia include:
• Feeling tired or weak
• Pale appearance to the lining of lower eyelids
• Palpitations, fast or irregular heart beat.
• Faintness and breathlessness.
• Hair loss
• Bruising that occurs without reason
• Dizziness
• Long or unusually heavy menstrual periods

I also read another article that said Diarrhea can happen with low B12. So I don't believe that is the cause of his constipation. (Respectfully disagreeing with gachrons)
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Today 5:06 PM (GMT -7)   
Nanners please read this article
 
Thank You Nanners lol gail

Post Edited By Moderator (MMMNAVY) : 1/13/2009 11:35:51 AM (GMT-7)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/7/2008 4:59 AM (GMT -7)   
Hi Just wanted to ask how things are going I know you are pretty worried about him. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/7/2008 10:28 AM (GMT -7)   
That article stated that vegan's could develop constipation, but every other article I have read states d instead. Plus in a child low B12 is rare, it occurs more often in adults. It can't hurt to check it, but I respectfully disagree for that to be the cause in this case. He does have a very strong genetic history for IBD, but right now I am wondering if he is lactose intolerant or suffers from some food allergies. I think Mom maybe you can try stopping the strawberry milk for a bit and see how he does. I know I am a little concerned about one of my granddaughters, she suffers with really hard stools and gets constipated alot and has since she was a baby. I can remember times when we had to help her pass the stool. My daughter said that sometimes she is in the bathroom for 45 min just trying to pass these really large hard stools. I hope the docs are able to find out what is going on with your little one soon. I do agree with Gail though about the idea of stool softners. I have to take them everynight or my stool gets to hard and I can't pass it. You might ask his doc about that. Can't hurt to try it. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Cyborg Ninja
Veteran Member


Date Joined Jan 2006
Total Posts : 660
   Posted 12/7/2008 12:10 PM (GMT -7)   
Children often do not have regular bowel movements, at least not until a certain age, though constipation is not as common as diarrhea in children as far as I know. There are many congenital ailments as opposed to Crohn's that could be the cause. You can't find out until tests are done. Hopefully a blood test will be all it takes, but that's unlikely. Until then you should ask the physician on how to modify his diet for now.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia


teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 12/7/2008 9:07 PM (GMT -7)   
Thank you for all of your suggestions. Right now we have Mokey on laxatives and Miralax every day until the GI can see him. Our FD told me to start that right away. I wish I had asked to see the x-ray. The laxatives don't really seem to be helping much. It has loosened the stool, but he doesn't seem to go any more than usual. I have noticed that he is not in the bathroom as long now though. The last stool had his lunch in it, and it was not formed, but not watery. I think I will cut the milk flavors. I do not want to quit the milk until we see the GI though. He doesn't drink enough milk as it is.
As far as the b-12 deficiency, that seems more like me. I lose B-12 and Vit-D and calcium quickly for no apparent reason, I'll get it back up, and I'll be fine for almost a year again. I haven't had any flares for one year. I am SO thankful for that!! We have run into a lot of HEAVY stress since the end of June. I know it has affected Mokey too.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/8/2008 4:04 AM (GMT -7)   
Hi Glad you updated us on Mokey,what a cute name.Another suggestion here to consider would be low roughage diet for awhile since he is passing undigested food. Does he like banana's as they have good potassium in it.

I am glad you are doing good right now and hope your stress level will decrease as you get him feeling better. How is he eating? We are here for you and more then willing to help you get through this so post when you can. Also a stool softener might also help get things going easier. Best Wishes and will be keeping a eye open here to see how he is doing. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 1/12/2009 9:14 PM (GMT -7)   
Thank you every one. I think it was Dec. 12 that I took him to a ped.GI. They took a blood sample. I was so mad! They never called back. I started calling them and leaving messages. Finally last week,they finally told me they did not find anything out of the ordinary in his blood. I am NOT comfortable with this office, but if I remember correctly, this is the only PedGI in the area. :(. I personally think they lost his test results and never bothered to say anything for fear of malpractice. I wouldn't bother. It just isn't worth trying to find out why it took a month to get answers from a test that takes 3 days to a week when my GI takes them. It could have been the holidays, or it might be due to the economy, the company that owns this office has been making cut backs, and people are on such an edge they might be making mistakes. I am not 100% with my GI either, but the one I really want is in the same office, and he won't take me. The office claims he is not taking patients and if he was, he wouldn't take me because I am a co-worker's patient. They claimed he looked at my file and told them he would do everything the same. Mokey says he still has pain in his tummy and it hurts sometimes to poop.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/13/2009 5:16 AM (GMT -7)   
Hi Did you get him to a PEd GI yet or are they doing any test .Glad his blood work is good and I know sometimes Dr's won't call unless there is a problem but a person could ask to be called regardless maybe. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 1/13/2009 8:50 AM (GMT -7)   
December 12 was a Pediatric GI. He was the one who ordered the blood test. Mokey has another appointment with him February 18. We'll see what happens.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/13/2009 11:39 AM (GMT -7)   
teenatoons,
where is the next closest ped GI? It would be well worth a day trip...I personally drive almost 6 hours total for my gi
Get rid of the fake strawberry stuff
See about allergy testing
get a copy of the lab report they did on him
 


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 1/13/2009 11:47:31 AM (GMT-7)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 1/13/2009 12:01 PM (GMT -7)   
Just an idea to try. I would keep him away from anything "enriched", the Iron they enrich grain products ( flour bread and cereal) with is often to large for children and some adults to absorb and causes horrible "C" with all my Grandchildren. I now feel ( just a Grandma's take on things) it may have been a factor in my Granddaughters emergency intesseption surgery.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11

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