Crohn's getting me down, so many questions?? getting desperate.......

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Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted Yesterday 4:45 AM (GMT -7)   
I havn't posted on here for ages but I used to be a regular visitor when my crohns was at its worst. After having a resection in 2006 my quality of life was 100% better. However I am a nursing student and last year I began my placements in february, I was on azathioprine but was never told about the risks of picking up infections because of being immunosupressed. I was aware but was not prepared for what has happened to me this year. Since february 2008 I have had infection after infection pretty much every 3 weeks. I stopped my azathioprine through my own choice in april to give my immune system a fighting chance, however that doesnt seem to have made much difference. I understand being in a hospital enviroment im more susceptable but can anyone say theyv picked up this ammount of infections in such a small space of time.
 
I started to wonder if it was the tablets or if chrons disease in general makes your immune system weaker. I get thrush every 4 weeks for no reason, ear infections are a big thing as our colds and sore throats after drinking alcohol. Im starting to get very fed up as im also getting say to say cramps and D anyway. At 19 i am on prozac because my mood has been constantly low because im ill all the time and iv never been so scared about getting another cold.
 
anyone experiencing the same problems or could enlighten me a bit more about our immune sytems with corhns im starting to get desperate......
 
many thanks
claire hunt
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
Possibly relapsing! :(
 
 
Life is what you make it!!!
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Yesterday 4:56 AM (GMT -7)   
Hi Clare Do you use a hand santizer when you are going out or just on a daily useage? I never got many cols myself but when I got one on Rem. I got really sick. Perhaps stating away from alcohol would also help. Are you on B-12 or any vitamins? Not sure but builing up your system with vitamins might help some. Lots here seem to get the thrush from antibotics use. Were you always prone to ear infections? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted Yesterday 6:02 AM (GMT -7)   
As i student nurse im quite good with hand hygiene. its frustrating because im on lots of vitamins and things like that. iv been on about 5 different types of antibiotics this year. i used to get ear infections as a child but hadnt had one for years so i was quite frustrated. Being a student at uni its getting me down more because noone understands why im so tired and miss out on things. I want to be able to drink and enjoy myself but find it very hard. Have a consulatant app in a few weeks buti never seem to get anywhere :( x
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
Possibly relapsing! :(
 
 
Life is what you make it!!!
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Yesterday 6:31 AM (GMT -7)   
Hi I get a boost of energy when I get my B-12 shot how are you doing for eating?I see you had a resection too .It is hard to have to give up some of the fun at times and at your age it would be harder. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


xraygrrl
Regular Member


Date Joined Aug 2004
Total Posts : 102
   Posted Yesterday 7:13 AM (GMT -7)   
Hi Claire! When I was in x-ray school, I was very nervous about getting infections when I had to do clinicals at a hospital. I would check the patient's diagnosis before I went into a room and if it was something that could be passed airborne, I would wear a mask & just say I was getting over a cold & I didn't want to get the patient sick. Once school is over, maybe you can get a job at an outpatient clinic in a setting that doesn't have a lot of infection, like orthopedics, OB/GYN, etc. In the meantime, take your vitamin C!

Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted Yesterday 7:38 AM (GMT -7)   
Being in that environment for the first time with Crohn's, medication or not, you could get the same amount of infections because your body isn't used to being around all the "germs". I worked in child care for 11+ years. When I was 18 I worked in a daycare for the first time. I hadn't been dx with Crohn's yet and I got sick ALL the time. My first month there I was out for being sick more then I was there. Once my immune system got used to it I was fine. I worked in child care when I was dx and while being on immunosuppressant drugs and I didn't get sick any more then my "healthy" co-workers. I did take extra precautions so I wouldn't get sick more often and that seemed to help.

Maybe once your system get used to being around all the germs you weren't used to, you won't get sick as often. I know it's frustating cause if your like me, when you do get sick it hits you harder then the "healthy" person.

Good luck and blessings!
~April~
 
"A woman's heart should be so lost in God that a man needs to seek Him in order to find her..." <3

 



Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted Yesterday 10:44 AM (GMT -7)   
thanks for the messages. I was told my B12 levels were normal which suprised me because i had my terminal illeum removed so i can hardly absorb any of the good stuff, hence the vitamins. I am dosing up on so much vitamin C. Iv been at uni since september studying and it hasnt been as bad but still getting all the bugs first. if anyone has a big guarentee i get it next within days and its so frustrating. I dont no where im going next in february on placement but fingers crossed my bodys getting used to it. It would be the worst thing ever if i had to give up nursing because its my life and i love it so much.

Another question i have a few skin tags around my back passage. have been passing blood quite often with stools, had a sigmoidoscopy and it was all normal, he told me the tags were so small they were hardly noticable. so how come i can feel them all the time when i go to the toilet. Im even starting to think there the reason i experience pain when having sex as i have explored every other possiblity. Will i ever be normal for just a few months

sorry for the rant
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
Possibly relapsing! :(
 
 
Life is what you make it!!!
 
 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted Yesterday 12:15 PM (GMT -7)   
My cousin, who is a perfectly healthy human being with no sickness or disorder, worked as a nurse for about half and year and also got infection after infection. Needless to say, she quit(although it might have also been because she is tiny and they kept asking her to help lift 300 lb+ people and one caused her to break her clavicle..).

I think it's just a matter of keeping your hands clean, not touching any orifices i.e. eyes, nose, etc., taking your vitamins, and wearing the surgical masks when needed.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret

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