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stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 12/5/2008 10:31 AM (GMT -7)   
 Tired of this up and down battle with my bowel movements. On Nov. 5th I had a bowel resection that involved the ileocecal area of my colon. Upon leaving the hospital on the third post op day I was feeling invincible, everything was going well. I expected for there to be diarrhea the first couple of days after surgery, and even a couple weeks. The problem is, is that my stool had completely formed at about two weeks post op, I thought that was the in of the D, but I was wrong. I got constipated a little a couple days later and took one dulcolax tablet, and I think that was a mistake. Soon came the D spells, it comes and goes. Its here for three day periods and its out of hand. I mean I eat or drink something and upon getting up and walking around I have to run to the bathroom, and I mean it is very watery and irritating. Last night I had to go around five times couldn't get any kind of rest. shakehead Then after two or three days of constant running to the bathroom, I may have two days of controlled bowel action, like I may go twice and my stools are a little formed. My appetite is somewhat depleted when this happens and the D kinda makes me not wanna eat, its so fustrating. I mean I can't even go out to places and walk around because of this, man I'm getting tee-d off with this. mad The surgery was all well and good but no one warned me about the emotional, and physical fatigued that comes with the post-op DIARRHEA. I mean I have tried eating a lot of bread to see if that can't offset it but its only temporary and sometimes doesn't work at all. Does anyone have any suggestions on what steps I should take to get this under control, to where I'm not running to the bathroom. I haven't even been able to put of the Christmas tree yet, let alone  my outside decorations. It looks like someone else will have the best house on the block this year. confused

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/5/2008 12:47 PM (GMT -7)   
First off Stephen take a breath. You just had major surgery, it is going to take more time than just a couple of weeks for things to calm down. Your bowels are having to adjust to the changes that occurred with the surgery. Secondly, although you are feeling better, you really need to watch your diet for awhile. Remember easy to chew, easy to digest. If you get all crazy and start eating anything and everything you wil have problems. The diarrhea is normal, some folks even have the D for the rest of their lives. If it continues to be a problem maybe your doc can prescribe something to help bulk up your stools. There is a product and for the life of me I can't remember the name, so hopefully someone will be along soon with the name. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/5/2008 12:50 PM (GMT -7)   
Hi Steph Seems your not 100% yet. Can you give us a run down of what meds your on and did you start the metamucil? It has only been a month since your surgery and sometimes it takes a bit of time to get sorted. Are you on B-12 as a low one can cause D and gas. and lots of other side effects. Get back to your DR. about this too might help.

Your right there can be both after a surgery and it's not easy.

I haven't started my Xmas decorating yet either but then I"am never in a hurry .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/5/2008 2:00 PM (GMT -7)   
Hi Stephen,
i agree with Nanners, give your bowel time to heal and watch your diet.
I am now 15 months post op and still have the D, the only thing the surgery has done for me is take away the pain and that has given me quality of life. We are all different though, so you may see more improvement as you heal. Take care and good luck.
Jo

stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 12/5/2008 2:03 PM (GMT -7)   
My meds as of now are my usual pentasa 4x twice a day, metanx a multi-bvitamin once a day, 6MP once a day, my antibitotic three times a day flagyl. That's about it. I have started my metamucil as of yesterday so I guess that hasn't kick in yet. I'm just tired I guess wanting this to get behind me so I can go back to school in January, but if things don't calm down enough I'll have to wait until next fall and thats not good. Crohn's is a pain in the you know what.:(

JustMeAndYou
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 12/5/2008 2:23 PM (GMT -7)   

Hi - my BF was living the same story...he was exhausted from all the D and never wanted to leave the bedroom post -op.  He had an ileostomy reversal in Aug and has just managed to go back to work 2 weeks ago.  He has found that Immodium (or the generic brand) works wonders for him.  He still has loose BMs but they are manageable and formed.  In speaking to his GI, he recommended 4 a day to keep the D under control and boy, he notices right away if he doesn't take it in the morning and before bed!

Good luck!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/5/2008 5:14 PM (GMT -7)   
How much longer are you going to be on the antiboctic? Oh so you are planning on going back to school in Jan. wow that sounds great so you still have some time to get feeling better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 12/5/2008 8:11 PM (GMT -7)   
I think I have like a week and 1/2 still of the antibiotic. Oh yeah I just got my detailed procedure outline from my surgeon in the mail. It goes into detail of what happened in surgery. Wow, it says that most of it was in the last part of my ascending colon, looks like it was massively inflamed but the last part of my ileum or small bowel he said wasn't that abnormal. It also says he did a stapled side to side anastamosis, wow staples in my gut, would have figured I can't feel a thing. LOL It also notes that he made the anastamosis a little larger than usual to prevent a reoccuring stricture, so he made my resection larger than normal, that's a relief, maybe if I make sure to keep on my meds it will never get swollen enough again to block me off. Maybe that explains the D everything is just flowing through me, like a river. LOL Trying to spread a little humor, and get my mind off this D for now. :-)

Post Edited (stephx) : 12/5/2008 8:17:20 PM (GMT-7)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 12/5/2008 9:27 PM (GMT -7)   
Stephen,

Hi handsome, sorry you are having to slow down a bit. Some of us who try to control our illness naturally use bananas to help control the "D". Try eating 1-2 organic bananas per day, and make sure they are slightly over ripe. They should have small black spots all over them. The non organic bananas are "gassed" to help them last longer amd do not work well for "D". This has worked for me even when my transit time was very short. Hopefully we can keep you off the stool long enough to pick up women very soon!
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/5/2008 11:29 PM (GMT -7)   
Normally I suffer from constipation, but when I took flagyl for a couple weeks last summer, it gave me D. Maybe once your done with it, your D will clear up too.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/6/2008 5:05 AM (GMT -7)   
Hi Since you are in a humurous mood keep that river fed a little.Your discription of your report was a bit funny though I must say. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/6/2008 7:21 AM (GMT -7)   
I can never remember if it alleviates constipation or diarrhea BUT have you tried metamucil?? Or rather looked into it...perhaps just trying it would be a mistake..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 12/6/2008 7:54 PM (GMT -7)   
I'm on one of my up days not having to go to the bathroom except for once a today. Got some decorations done, hopefully will finish up tomorrow if the D doesn't return, just praying that it doesn't right now. Although it was loose this morning I don't mine if I go once or twice a day but having to go every time I eat something just drains me and irritates my bum, thanks to my doc for given me the miracle cream called, "Analpram." Everything is looking up so far today, getting around great, cleaned up most of the house to day, making sure I eat to keep my energy up. Today I helped out with my grandfather a little, cleaned the room, washed dishes, glass cleaned, cleaned the bathroom, moped the kitchen floor, and hung decorations outside, and all without the pain of crohn's, "feels great!" It seems that I have figured what is triggering my D spells also, it seems everytime I try a little chinese food it gets me sick with D, maybe from the grease and onions, just trialing and erroring at this point.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/7/2008 4:12 AM (GMT -7)   
Hi Steph so glad things are better for you today and sure sounds like you been busy .I am so happy to hear you don't have the pain now and it could be the chinese food.That cream sounds really good. So what kind of decorations did you put up? My teen was asking about you and does every so often .She got the shopping done and went bowling took 2 friends with her so they were in the makeup bin and of course she got some of that.Speaking of mopping the floor mine could use a good cleaning so might tackle that today or tomorrow.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/7/2008 10:38 AM (GMT -7)   
Ooh OOH Stephx I think you may have found your problem. When you mentioned Chinese food a rememberence came to my mind. I was about 1 or 2 mos post surgery after my first resection and wanted chinese. I went and ate at a Chinese buffett and ate all kinds of stuff, one item being Broccoli and Beef. I got the worst gas pains and D for days from that and learned that Broccoli and Cauliflower were now off my diet. They both are big GAS causing veggies and that pain just is not worth it for me anymore. You might want to keep a food diary and note how certain foods affect you and avoid those that cause problems. I did try broccoli one more time and had the same result, so they are now no-no's for me. Since my surgeries there are certain things I can no longer eat, and you may find that there are some for you too. I can eat Chinese, but only mostly chicken and rice items. No crazy veggies for me anymore. Good luck!!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/7/2008 5:27 PM (GMT -7)   
The medication Nanners mentioned in the beginning of this post is Questran. It is a med used for high cholesterol, but is also used off label to bind to the bile salts that used to be absorbed in the TI that you no longer have. If the D continues it may be something that you want to talk to your doctor about. It is available as a pill and as a powder that can be mixed into any liquid or soft food. I use it only if I have to be someplace where bathroom access is questionable because I don't like the side effects that I get from it, mainly cramping and bloating. It does a great job at stopping the D, in fact it can stop me from going for days and I have to take just a fraction of the dose prescribed. But might be something that you want to consider down the road.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 12/7/2008 10:53 PM (GMT -7)   
Welchol is another med used for the big D. Unfortunately, after my resection in 02 I was left with chronic diarhea. Not any fun at all. It has made my life a living hell at times. Susie


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted Yesterday 6:20 AM (GMT -7)   
Hi Stephx,

I think you should def try the Questran if nothing else works. I was the same after my surgery of the ileum. They removed the ileocecal valve, and because of this i was having constant D after my surgery. I tried everything and it wasn't related to food at all. Eventually my doctor prescribed the Questran and it was like a miracle. Once you get the dosage right - you can control the D completely. The only one thing you may always have trouble with is very greasy food, it always gives me pain and D. Anyhow, 10 yrs later i am still taking Questran - if i forget to take it i am reminded of the big D and the pains. So i never forget to take it (Just 1 sachet per day sorts everything out for me)

So basically, you need to ask your GI was the ileocecal valve removed and if the answer is Yes - i would highly recommend that you try Questran - your whole quality of life may change for the better.

Best of luck,
Lila

catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted Yesterday 1:54 PM (GMT -7)   
I hope you feel better soon!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted Yesterday 11:54 PM (GMT -7)   
Something is wierd. The D has finally tapered off and I only went once today and it was still D but the lumpy half formed ones. I have been eating a lot and gardually have noticed weight gain, but I am unsure if this is weight gain. I mean I think it maybe but this much this fast. It seems my legs are swollen and so are my feet, I called my doc about this once before and he said it was normal after surgery, becuase I was so malnourished when I went in that the body sometimes did that, and he told me to elevate them and they went down. I'm going to try that tonight and see if that works again, but I don't know as of now, I guess I just have to wait and see what happens. Just think that this is freaky, would I still swell this far past surgery. The first time it happened was that Sunday after getting home, four days post surgery. confused

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 12/10/2008 8:58 PM (GMT -7)   
Hope you are spending some time off your feet and feeling better.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/10/2008 9:09 PM (GMT -7)   
swelling is normal. makes your feet and legs feel like they weigh ten more pounds more then normal right? keep flexing the swollen joints...if its water retention, it'll help it move on.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)

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