1-2 movements a day..

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Regular Member

Date Joined Mar 2008
Total Posts : 381
   Posted 12/5/2008 10:06 PM (GMT -6)   
I am going to start a new subject as not to go off topic in the methotrexate post. In reply to MMMNAVY - would consider 1-2 movements a day pretty much remission and Crohn's Patient - 1-2 movements probably equal to not having Crohn's for a lot of people.
I do not feel like I have ever had a flare unless maybe 30 years ago when I saw a GI for excessive diarrhea, had some tests, nothing came of it and got better.
But after a year-and-a-half, 3 colonoscopys, 3 sigmoidoscopys, CT Scan and SBFT, 3 GI's and two surgeons, they say I definately have Crohn's.
Initially they found a stricture (a real mess as the surgeon said) in sigmoid colon and put on Prednisone for 3 months. GI said it was not doing enough so given the option of surgery or Remicade. At this time I knew almost nothing about Crohn's. Felt too good to have surgery so opted for Remicade. By the time that was approved and I was more knowledgeable, thanks partly to this forum, I felt I was feeling too good to take such a powerful drug.
Therefore I was not on any medications for quite a few months but scopes have always showed inflammation at the stricture site. No medications was still an option but GI was pleased I agreed to go on Methotrexate for a 3-4 months.
6-7 bowel movements a day was not an inconvenience and not a big deal as I virtually have no other symptoms. I have somewhat restricted my diet from the beginning.
Yes, at times I feel like I do not have Crohn's but know there is still something there. At times I feel almost guilty by posting but have legitimate thoughts, feelings and worries and it is everybody's wish for people to feel better. It is still a shock to be diagnosed (at 55) when you think you are the 'healthy' one.
My Dad was just taken to the hospital by ambulance today. He had been bleeding internally and hospitalized last week. They gave him blood, scoped his stomach, found nothing, thought he was on the mend and sent him home. This morning he lost an excessive amount of blood, was vomitting blood and collapsed. They are giving him blood and are talking about doing a colonoscopy of which he has never had. Hoping for the best.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 12/5/2008 10:32 PM (GMT -6)   
Hey Bammer I am happy to hear that your crohns doesnt seem to bother you too much at all. Its nice to hear for a change. I am sorry about the problems your dad is having and wish him the very best. Hang in there

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/6/2008 7:38 AM (GMT -6)   
Hi Bammer glad you gave us a update on how things are going. Hope your Dad is doing better and hoping things will improve for him soon. Keep in touch. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 12/6/2008 8:11 AM (GMT -6)   
Don't feel guilty. Fact is a great number of the posts with people complaining about problems don't even have to do with Crohn's itself but rather the side effects of the meds that they are taking. I hope your dad is doing well.
SCD since 01, remission since 01, occasional Arby's breaks :)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/6/2008 2:32 PM (GMT -6)   
Hey Bammer have your Dad in my prayers. Please keep us posted on how he is doing.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 12/6/2008 2:48 PM (GMT -6)   
Oh Bammer I am sorry to hear your Dad is not doing well. I hope he pulls thru and that they figure out what is going on (the 18 foot scope might be needed to figure that one out).

Bammer I think the drugs are helping your crohns stay down to a minimal level, so please keep taking something, and do not worry about MTX, it does not work for everyone.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Mar 2008
Total Posts : 381
   Posted 12/6/2008 4:16 PM (GMT -6)   

Thank you everyone. Have not heard anything more about Dad as I don't think they will do any tests on the weekend.

I actually do think the MTX is doing something but wonder if long term use of it is worth the slight difference in my symptoms? I should hear very soon when my next colonoscopy is scheduled, supposedly in January. Will see if it still shows inflammation. No matter what, I am beginning to think I still feel way too good to undergo surgery especially compared to what a lot of people with strictures deal with. If the inflammation is gone for now I am wondering if a lower dose of metho or lesser maintenance drug will do but will just have to wait and see?

55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.

Angela N
Regular Member

Date Joined Jan 2006
Total Posts : 82
   Posted 12/6/2008 9:04 PM (GMT -6)   
Hope your dad is okay...my prayers will be with him and your family.....
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