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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/5/2008 10:35 PM (GMT -7)   
It's KILLING me. It hurts something awful in my wrist/thumb/forefinger area. It feels like someone's taking a thick needle and shoving it through my nail to the nerve/bone. It also feels like its on fire constantly. Taking pain meds but even that barely touches it. I want to wait til January before seeing a doctor. I went to see a doctor and a month ago and they gave me a RN. I'm not slamming her but when I make an appointment to see a doctor, I want a doctor. I've spent the past week working against screaming if I touch the pad of my thumb. I mean out and out screaming. It hurts when I wash my hands from the pressure of the water falling on it (we have super light pressure in the kitchen sink at that). I really need to wait until the new year so at least then there IS insurance. I already owe over $50,000.00 and that's with charity to hospitals. The thumbs been getting weird white spots that can show visible blood flow (darken with the heartbeat...you can see the throbbing). It swells when I try applying pressure to the base of the finger. I don't want another ER visit where I go in, some jerk with a diploma barely looks at it and then just gives me pain meds. I'm waiting to meet with a neurologist. I'm pretty sure the last ER doc who gave me two minutes of his time and then diagnosed myalgias may have severely screwed me over by not looking well enough or even listening clearly to what I said. Anyone know what nerve damage feels like? Looks like? Any thoughts would help. I've had tears in my eyes all week from how bad it hurts most of the time. Thanks.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 12/5/2008 10:45 PM (GMT -7)   
Goodness gracious, Joie - I'm sorry you're having such a hell of a time. The only experience I have with anything remotely similar was when my mom had peripheral neuropathy from her chemo treatments for breast cancer... but it doesn't look like you're on anything other than Pentasa and I'm not sure that is a strong enough drug to cause such symptoms... MAN I wish I had a better answer for you. I think you're on the right track in going to a neurologist though...

I hope someone comes along soon that can help you out... in the mean time I'll be thinking about you and wishing you the best...
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/5/2008 11:06 PM (GMT -7)   
Wish I had an answer too. I have nerve damage in both feet but I feel hardly anything unless I stub a toe and then all you know what breaks out. Now and then they burn or feel like something sticking but not to the point that the pain is unbearable. Hope you get an answer and some help soon , please keep us up to date.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/6/2008 12:08 AM (GMT -7)   
Have you had your B12 levels checked? pins and needles in the fingers/hands are often the first signs of nerve damage due to lack of B12, so if you don't know what your levels are then you should get them checked as you may need to take B12 supplements.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 12/6/2008 2:44 AM (GMT -7)   
Joie1,
I know exactly how you are feeling. I have pinched nerves in both my back and neck that have caused severe pain in both legs and feet and in my left arm. Part of my impingment was caused from a sports injury years ago, but has been agrivated by inflammation and arthritis from my crohn's disease. For a long time, I dealt with the pins and needles feeling, but it eventually got to the point that my legs lost strength and the pins and needles became severe pain. I also noticed that my legs and parts of my feet would become numb at times. All of this really became worse when I got off of remicade and it was no longer suppressing the inflammation. When it got to the point that I could barely walk or even put on my pants, I told my doctor about it and he had me do a nerve conduction study. (this is not a fun test unless you are into electric shock for fun) Once the tests confirmed that I did indeed have inpingment of the sciatica and neck, I was started on Gabapentin also known as Neuontin. This has helped me tremendously. It did not take away all of the pain, but if I forget to take it I am quickly reminded of how much it is helping me. Another thing that helped me until I was approved for cimzia, was prednisone. As evil as I think that this drug can be, it helps relieve the inflammation and arthritis short term. It is very common for crohn's patients to develop neuropathy due to inflammation nerve inpingment.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/6/2008 4:56 AM (GMT -7)   
Joie sounds like carpal tunnel syndrome .I am hoping you are on a B-12 too as pb4 said since you have had resections especially important. Low B-12 can cause neuro. problems along with a bunch of other things .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/6/2008 10:19 AM (GMT -7)   
thanks for the thoughts. I would've thought carpal tunnel myself except that its the same arm that experienced that severe pain and its my left hand which I use a bit less then my dominant right. That and it originally started in my elbow and spread upward and downward. I can feel a thread of pain from my back over shoulder and down the arm but it primarily is centered in my hand now. Also, it isn't like pins and needles. Its like a thick hospital needle being shoved into my fingernail through it, down into the flesh/muscle and hitting a bone. That's what it feels like. Not like pins and needles. Or like pins and needles on anabolic steroids. Its numb at certain spots. I guess that's the first thing I need checked...the B12. I wondered why I've had so many resections and surgeries and yet no one's explained about the changes to lifestyle it causes. Anyhow, the pad of the thumb is so sensitive to touch I've bitten my lip to keep from screaming when I touch it.

Thanks for all the thoughts and ideas. I'm writing down these thoughts so I can talk them over with a doctor come the new year. The B12 I thought I requested testing for when I had bloodwork done but it may not have been.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/6/2008 11:00 AM (GMT -7)   
Hi Joie Carpal Tunnel can have radiating or extending pain from your wrist up your shoulder or down into your palm and fingers .It can be a stabbing pain too. Try reading alot of different sites on it. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/6/2008 12:39 PM (GMT -7)   
it could be arthritis as well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/6/2008 1:20 PM (GMT -7)   
Hand paresthesias can be caused by a variety of conditions. (For those of you that will be in the medical field- there's "glove paresthesia," in which the entire hand is numb, fitting like a glove. That means the patient is probably nuts, as there are two nerves that separate the hand, left and right- fingers on one side or the other may be numb, but almost never the entire hand.) The B12 is a quick and easy thing to test; get some sublingual B12, and pop it under the tongue. Double or quadruple the dose the first time; B12 isn't toxic in the microgram levels present in tablet form.

How's your meat intake? B12 has no vegetable source, so it *must* be acquired from animal sources. A strictly vegan diet will cause this condition.

Failing that, here's a longshot: your profile doesn't list any TNF inhibitors (Humira, Remicade, etc.), but there are reports of iatrogenic (doctor-caused) systemic lupus erythematosus from these drugs. Lupus *can* present in this fashion, but I would consider this an unlikely proposition.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/6/2008 1:34 PM (GMT -7)   
osprey is quite right about the lupus and remi/hum.
I also think b-12 is definately something to check...best way to get it is b-12 shots
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

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