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Regular Member

Date Joined Jul 2008
Total Posts : 128
   Posted 12/6/2008 4:04 PM (GMT -6)   
I've looked back on the site and haven't seen too much about tysabri and most of the posts about it are fairly old. I may be starting it soon because my recent tries of humira and cimzia failed... and it seems a little scary, with the risk of the PML and everything. Is there anyone who has been on it and how did it go? Any success? Any side effects? Etc? Let me know, thanks.
Dx'd with Crohn's December 2004
Previous Meds: 6MP, flagyl, cipro, cortisone enemas, prednisone, remicade (3 1/2 years).
Currently Meds: Humira 40mg/week, prednisone again 30mg/day and tapering, augmentin, proctofoam enemas, percoset as needed
Supplements: Iron, B-12, B-6, Calcium, Vitamin C, soon to try bee propolis

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 12/6/2008 8:47 PM (GMT -6)   

I can honestly say that if it were not for tysabri I would have no Idea what I would have done. I have been on tysabri since april and I can say I feel like I did before I was diagnosed. The only symptoms I ever had was a headache right after my first infusion. PML was and still is my greatest fear but I think the quality of life I had prior to tysabri is worth the risk to me. I make sure I keep my Gastro imformed of any changes and go from there. Hope This Helps


Regular Member

Date Joined Apr 2005
Total Posts : 103
   Posted 12/6/2008 10:11 PM (GMT -6)   
I have an ongoing post about my tysabri experience on this forum somewhere. Other than the occasional headaches (which have been found to not be linked to PML) I've been on Tysabri for 10 months and it has saved me. Nothing else worked. It takes a good 2-3 months to see results, but if you haven't tried it, i highly recommend it. Cimzia I have not tried but _everything_ else (including every drug study known to man) I have.

Good luck!
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