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Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/7/2008 1:30 AM (GMT -6)   
Just wanted to say Hi. I've been lurking here for sometime now and decided to join.
I found out in 2001 that I had Crohns disease.(Mild case) I had been pretty much symptom free until Sept this year when i had a bowel obstuction and rushed to hospital. I'm currently on 6 tablets of Asacol/day and on 15mg Prednisone and tapering.I was done to 5mg and the pain started coming back. The doctor put me back up to 20mg and the pain went away. I recently had a small bowel Ct scan along with a Colonscopy and it revealed that I had a 4"-6" Stricture that appears to be Scar tissue. The doctor said that I'm a good canidate for surgery.I will see the surgeon this coming week to access the problem.
My biggest concern with surgery is complications amd death.I'm not ready for either of those just yet as I have alot of life left in me at the age of 41.
Before I forget I am married to a wonderfull woman that has stood beside me and taken care of me for the last 23 yrs.God bless her! We have no children but we do call our two Chocolate Labs our children. We love them dearly.
If anyone can give me some relief on surgery that would be awesome as I am scared to go under the knife. I have heard of different complicatons from infection to even DEATH.
I really appreciate all input and thank you for this great forum of people that battle Chrons.
God Bless!

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 12/7/2008 5:18 AM (GMT -6)   
Hi and Welcome to HealingWell, I had surgery along time ago for my Crohn's. After the surgery I was back to normal. After a few years I was put on Remicade and have been on remicade for 5 years it has kept me in remission. I would talk to your doctor about remicade or humira if you could do that instead of surgery.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/7/2008 6:23 AM (GMT -6)   
Hi Wolfie and welcome to Healing Well glad you joined us.I had resection in Jan. and like you I was scared a bit too but it wasn't as bad as I thought it was and well worth it. Now my body has been pretty much been pain free. Those blockages can be painful .I was in for 6 days and got a little infection from the staples after getting them out, but got it cleared up soon after. Ask any questions you would like to know about. There is good support here and we are always willing to help gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 12/7/2008 9:20 AM (GMT -6)   
Hey, Wolfie.

I have no words of wisdom concerning surgery, but wanted to welcome you to healingwell. Happy to have you.

Single mother of a wonderful daughter, care-giver to disabled sister and aging grandmother. Diagnosed with CD during second hospital stint in Jan of '07(??)
Tried: Asacol, Pentasa, Immurane, Entcort
Currently Taking: Prenisone (intermittently), Phenegren, Hydrocodone, Benetyl, Anti-panic medication, B12, acidolophilus, omga3 and multi-vitimin

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/7/2008 10:33 AM (GMT -6)   
Thank you all for the warm welcome.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/7/2008 12:05 PM (GMT -6)   
I have had 2 resections myself. Many of us have had resections and are still here. My first was an emergency surgery due to complete obstruction and the second planned. I will tell you that its better to go in as a planned surgery, so you really have that going for you that your surgery will be planned. I think you will find after the surgery yourself wondering why you worried about it. Once you recover you will feel so much better. A few tips are 1) Be sure to walk walk walk as much as possible after the surgery, 2) Be sure to ask about a pain pump for your pain meds, that way you don't have to wait for the nurse to bring in your pain meds, 3) expect some explosive diarrhea after your bowels wake up after surgery, this will get better after your bowels adjust to the change, and 4) don't go too crazy with your diet for awile after surgery, remember easy to chew, easy to digest. (That is until you have fully recovered). Expect about a 4-6 day stay if you have open surgery and a day or two less for laproscopic surgery. I pray your surgery brings you to a long long remission.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/7/2008 1:09 PM (GMT -6)   
Do they stick a catheter in you? Also what about a tube down your nose into your stomach?
Post surgery was there alot of pain?
Is it common to have an abcess or fistula after surgery?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/7/2008 2:00 PM (GMT -6)   
Yes they do insert a catheter, but after you are asleep, so don't worry about that. Not all docs use the N-G tube anymore, but if they do, they insert it after you are asleep too. Yes there was pain afterwards, but they give good pain meds. Thats why I said to be sure to ask for the pain pump. You are able to dispense your pain meds as needed. The abcess and/or fistula's are rare. If you haven't had one before, its not too common to get them afterwards. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/7/2008 2:26 PM (GMT -6)   
Thank you Nanners! I'm felling more comfortable now that I'm getting answers to my concerns.
The doc said that after surgery that I would still be on Asacol. He also mentioned Imuran but I said that I really did not want to go that as the side effects are not good.
My doctor knows that I am am not big on pills (drugs)

Life is Good!

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 12/7/2008 10:13 PM (GMT -6)   
Hi and welcome Wolfie.

Had two resections. One occurred as a planned surgery and one was emergency. NG tubes aren't that bad. Definitely get the pain pump. Walk walk walk as stated by Nanners. Bring a favorite pillow/blanket. Don't be afraid. If you're in relatively good health you're good. When I had my first resection, I weighed about 93 lbs. and I'd been in the hospital for about seven weeks. I'd also had a drain inserted during a surgery the first week I was there. I had fistulas and problem after problem with them as well as with abscesses. Second resection was in Feb. and it was awful. They put the NG tube in while I was in the ER (poor sister walked in while they were shoving it in and I was crying and snotting everywhere). It hurts but its not the worst pain imaginable. They put in catheters but they can be removed right after...I wouldn't though. The first day or two after intestinal may be super loopy and more movement then needed can be harmful to the staples/glue/stitches in the first day/night following surgery. The catheter doesn't hurt coming out, just embarrassing to have some stranger looking at your "junk". Imagine a roomful of people looking at your junk...I had it since I had a drain put in vaginally and when they removed it...about twenty people were standing around watching. I made sure they drugged me up since I figure if I had to be anesthetized to have it put in...I needed to be dead to the world when a roomful of students, doctors, nurses, interns, residents watched it come out.

Removing an NG tube isn't too bad either. You "might" get a bloody nose but it really isn't that awful. Surgery is scary but if you've been relatively healthy for the past few years, you should be just fine.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)

Forum Moderator

Date Joined Feb 2003
Total Posts : 13363
   Posted 12/8/2008 12:30 AM (GMT -6)   
Hi Wolfie, so sorry to hear you need surgery but hey a planned surgery is much better than an unplanned one such as mine. I was in Mexico on vacation, about 90 miles out of Cancun. I became very ill in country where no one spoke English that they could find. You would have passed out if you had seen the hospital, it was an old hotel converted into a hospital. There was no call buttons, an old black phone was beside my bed and if I picked up the receiver a man answered Bueno. They had no pain pumps, cotton balls were still soaked in metal containers, no throw away cotton swabs, big brown bottles of meds hung from a rusted IV pole that only had 2 wheels. Most of their supplies like that come from American drs that make mercy missions there and take old supplies and things like that to them. It took a full day to find a surgeon, I rode 90 miles in am ambulance that was a 1950's model, they stopped for gas three times, people do not yeild to emergency vehilces in Mexico, we made one stop along the roadside and a guy came running out of the jungle with a credit card machine so my husband who was following behind could pay for the ambulance ride. This is all no joke. We did not have an elevator so 6 people carried me down from surgery, I take it back they did have an elevator big enough for 2 people, I rode up to surgery sitting wide awake in a rusty wheelchair with a male nurse propped up on the back of the wheelchair so he would fit in this elevator. I was wheeler into the surgery room that looked like something out of mash and some guy looked at me and in mumbled english/spanish told me to crawl up on the operating table and buddy I did. I was so sick I did not care if I died it would be a relief. I felt like I had nothing to lose. Hey, if I can do it there, honey it will be a breeze for you here,lol.
The surgeon thought it was appendicitis he only had a sonogram machine for xrays. He opened me up and took out my appendix only to find they were fine, but took them anyway,lol. Thank goodness this man knew to open me up lower and when he did he found a complete blockage and abscess. My gi says had the abscess perforated I would have died so the surgeon saved my life. He did an excellent job. My nurses were in my room like clock work hanging medicine and I never hurt one time nor did I ever have to ask for anything, of course it would not have done any good they didn't speak english and neither did my drs. They drew a picture of my surgery on a piece of paper for my husband & daughter,lol. Bless my surgeons heart he hand typed on a typewriter a 2 page report outlining everything he did all in Those people take great pride in their work let me tell you. I had better care there than I ever have had here in the states and I have had many surgeries.
Take your pillow from home, it will be nice and comforting for you. When you go to get up from bed, take a bed pillow and press gently against your stomach while getting in & out of bed. Walk, walk, walk, to get those bowels woke up and its the best thing you can do to get your strength back. In Mexico I was wrapped in a binder so I did not need a pillow to use to get in & out of bed, course they no longer do that here in the states.
You will really feel so much better once you have recuperated from the surgery. Nanners gave you excellent advice to floow thru with. Believe me, you will do great, Hugs Susie

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/8/2008 6:36 AM (GMT -6)   
Thank you so much everyone! You have all helped me take a load off. (lol)
I meant my shoulders..
Sorry just trying to be funny...
I really do appreciate everyones input as it really has helped ease my mind going into this.
I do have one more question.
How long have does remission last after surgery before it comes back. I know they say they can't put a time frame on that but I just wanted to know from all of you that have had it done.

Thank you again everyone and I will post tommorrow after I see the surgeon and fill you all in.
I feel like you are all my family!! :-)

kyle Nelson
Regular Member

Date Joined Sep 2008
Total Posts : 28
   Posted 12/8/2008 7:34 AM (GMT -6)   
i havent been here long, but i would just like to comment:
straydog's above post is easily one of the greatest tales i have ever read, bar none. PURE GOLD.
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