To Remove Or Not to Remove?

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andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 12/10/2008 1:45 AM (GMT -7)   
Just saw my gastro today and we are running out of options for me since I am still pretty unwell and losing control of my bowel on a regular basis. He has left the ball in my court as to whether or not to go ahead and take out all of my colon next. He did add to my list of medications as well I am now taking questran and nexium as I am suffering badly with reflux too. The questran is supposed to help with the constant running to the toilet and hopefully not block me like the imodium seems to do. I go from one extreme to the other so much its not funny. I really dont want to have any more surgery, I have had a right hemocolectomy before and 6 weeks after surgery the crohns was back with a vengence. Can anyone advise me on what they would do, part of me wants to go ahead and get this over with but the other part of me is scared to death that I will still continue to have problems, but in saying that I really dont have much quality of life anymore and have on a few occasions wanted to end it. Thats why I need advice too because I know that a lot of the time these days I havent been thinking straight and I dont want to make and big decisions right now. Please help

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/10/2008 2:11 AM (GMT -7)   
*hug*

Andorable, I've wondered for a while now if you mightn't be better off with an ostomy, so at least you'd be less worried about having accidents in public. When your doctor suggested removing your colon, did he recommend that you get an ostomy too?

I'm not a surgery guru; I haven't had any major operations yet; but I do seem to remember that one of the dangers of losing a lot of bowel and *not* getting an ostomy is that you end up with short bowel syndrome, where you have a fair amount of d even when "healthy". If I were you, I would ask your surgeon what s/he expects your quality of life to be after surgery.

As I'm sure you know, once you've had the operation you can't go back, so you need to be reasonably sure that you're heading for something better. That said, your quality of life is so bad now that even a glimmer of hope might be worth grasping.

More hugs. I'm so sorry you're this unwell.

Ivy.
Co-Moderator Crohn's Forum.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/10/2008 7:04 AM (GMT -7)   
Hi Andorable Sorry your so sick and probably getting weak which does make it hard to make decisions. I am hoping the meds will bring some relief. Did he put a time limit on when you should make the decision? Try not to give up hope and I know when the body is weak it can be harder but sometimes that's when we make our best decisions in life. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/10/2008 7:59 AM (GMT -7)   
I couldn't agree more with what Ivy said. I think you really need to weigh your options, especially since your quality of life is so bad right now. That is what I have used in the past to make some surgical decisions, how was my quality of life. I will keep you in my prayers and hope that some kind of help is on the way for you. (((HUGS)))
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

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