Iron - who takes PRESCRIPTION Iron?

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Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 12/10/2008 5:34 PM (GMT -7)   
I've been on the Iron prescription FERROUS SULFATE for 6 months now.  My iron is still low.  So my GI gave me an Rx for TANDEM, a brand name prescription iron drug.  Let me put this into simple context:
 
FERROUS SULFATE = $3.59/month
 
TANDEM = $40/month
 
Which one would you rather be on?! tongue
 
But what I'm really wanting to know is who here is taking a PREscriptION Iron pill and what is it's name?  How much do you pay for it?  Does anyone know if some prescription Iron pills are more "potent" than the next?  I asked my GI that about Tandem and instead of answering my question, he simply said with Tandem I only had to take 1 pill a day whereas with the Ferrous Sulfate I have to take 2 pills a day.  Ummmm...yeah....but there's like a $36/month difference in cost.  If Tandem isn't going to make my iron levels any HIGHER than Ferrous Sulfate, why the heck would I spend that much more money for nothing?!
 
I WAS a bit frustrated when I left my GI the other day...he tried putting me on ANOTHER brand new, brand name medication besides Tandem just for the purpose of me not having to take so many pills a day...but I didn't believe that.  I'm a horribly skeptical person!  When a doctor tries to put me on a "new drug" for no other purpose than to cut down on the amount of pills I have to take a day then all I can think about is the pretty drug rep who offered him a round of golf somewhere or a trip if he would JUST hand out her prescription drug samples... skull    SHAME ON ME! devil
Diagnosed in October, 2004 at age 32.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/10/2008 6:38 PM (GMT -7)   
hi I take the injection and it is cyanocobolamine. You could google the two and see but there might be a difference. I think I read somewhere that a Dr. should help in what kind you take. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/10/2008 6:39 PM (GMT -7)   
There is no e on the end of that B-12 sorry the words are so small on the package I read.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 12/10/2008 8:47 PM (GMT -7)   
I can't tolerate any more iron in my gut than what comes off of my iron skillet, but I share your skepticism, Kitt! My skepticism always increases if there's "free samples" involved too... I mean sometimes samples are great because they're FREE, but sometimes I just wonder if I'm a guinea pig gulping down tablets while the doc cruises away on his yacht! And the whole time we're supposed to be so thankful!

Hope you get your iron sorted out soon!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 12/10/2008 10:17 PM (GMT -7)   
Cyanocobalamin is not iron, but (being vitamin B12) is required for the body to use iron.

Iron supplements should contain the cofactors used to facilitate absorption and use- B12, vitamin C, folate, etc. One good OTC supplement is "Advanced Ferrochel" by Source Naturals; it is very important that the iron be chelated, and not just a simple source as with iron sulfate. Chelates are "recognized" by the body and absorbed more readily. Iron salts usually find their way back out very quickly, and in the process end up feeding undesirable gut flora. I have two papers, each of which cites how organisms (MAP as well as Klebsiella pneumoniae) both do better in the presence of iron. In fact, the anemia so many of us face is probably due to how the body hoards iron in order to shut down the infection. I have references for this assertion if anyone is interested.

As such, dietary iron is probably best; the most convenient form for iron absorption is the one in which your body uses it- iron as hemoglobin, or heme iron. Liver, beef (have a hamburger!), and other animal products that contain iron are most desirable. They will do a poor job at feeding your intestinal flora while providing you with the iron you need.

Also note that as documented by Lutz in "Life Without Bread," iron values increase markedly after 6-8 months of carbohydrate restriction in the management of Crohn's disease- in the absence of drugs. I have yet to find all my old blood panels, but I'll be scanning them in and posting them to the web for anyone who wants to view them.

viennaman
Regular Member


Date Joined Oct 2010
Total Posts : 156
   Posted 10/7/2011 8:44 PM (GMT -7)   
I just started an over the counter med called Provent C.

okeydar
New Member


Date Joined Oct 2011
Total Posts : 2
   Posted 10/8/2011 6:56 AM (GMT -7)   
Hello, I am new here and this thread caught my eye as I am dealing with this so often. I used to take Tandem but now can't find it in any of the stores. So I am looking for a new supplement. So far I have avoided an iron infusion that my Dr wants me to do. I am just chicken to try it.

Patientspiders...May I ask what does LDN mean?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/8/2011 8:41 AM (GMT -7)   
Hi Dr Meg and okeydar and welcome to Healingwell. You have attached to a really old post, so you are not likely to get as many responses as most think they already responded to it and our members come and go alot. You are better served to start a new post.

Most of us have issues taking iron, at least I know I do. I did one iron infusion about 3 years ago and my iron levels haven't dropped too low since. It was really easy to do, and they nurses watch you really closely to make sure you don't have any reactions. Also, within about 3 weeks I really felt the difference. I have no oral suggestions, as I said before, iron is not my friend. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
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