<<<You sound like a really good mum>>>
I know "mum's" can be especially caring, but I'm the Dad. Thanks for the caring post though, much appreciated.
When I came home from work tonight, my daughter wanted to eat something, so I made her some scrambled eggs and toast. After a couple of bites, she began having really bad stomach pain. It's going to be a very long weekend.
Once again, Thank-You for your responses, and taking the time to help. I did talk to the clinic today, and we're going in for bloodwork and possibly and x-ray on Monday. That should tell us what's going on. I'm a little worried about a change in medication, if the Pentasa isn't doing it anymore. I know the initial weeks on Prednisone worked incredibly well, but I'm not sure if it's good to go back on that again. I'm not familiar with the side effects of 6MP, but have heard about pancreatitis. I guess we'll just have to wait it out and see what happens Monday.
Thanks guys, I'll keep her on a bland diet for now. She says she's hungry, but is a bit afraid to eat. Any other food suggestions? She has had bloodwork done a few months ago. The results were extemely good, with no signs of inflammation. In the last 2 years, the only problems have been, a 2 week bout of constipation a few months ago, in which she had no pain, and still had a good appetite. After a couple of days of Senekot, it passed and all seemed normal again. Other than that, she has never stopped being Anemic, and thus has been taking Palafer all along. Even with that she is usually tired. I could go on and on, I'm trying not to. I don't want to dump on anyone. I really appreciate that people like yourselves, and many that are worse off, have taken the time to offer support.
No need to explain the "over the top" comment. There was no offense taken on my part at all. Actually, I AM over the top, and it's good that you pointed it out. It's a great analogy you give about the Prednisone being like a "nuclear bomb". I remember when my daughter was at her worst the first time around, and within days of being on the Prednisone, she was sailing. I just worry about the side effects of being on such a strong drug again. Is it okay to keep going on Prednisone everytime you need to re-gain remission? Anyway, Thanks again for taking the time.
I too remember when I first was scouring the internet for information about this disease, when I stumbled on this forum. I think you were likely one of the first to offer advise and concern. I notice that you reply to many that are coming here for the first time, usually totally despondent. It's great of you to take the time to do that, Thanks very much for all the support.
Hi Eva and LM,
You guys are so young, and obviously dealing with your own battles. Thanks for taking the time to offer help.
For the last while, my daughter has been skipping breakfast alot too. Through the day she doesn't eat much as well. Maybe, that has caused some sort of irritation. If she does end up back on Prednisone, although I seem to remember the Doctor frowning on repeated bouts of it, I will ask about calcium, as that must be important as you indicated.