What am I? Or you?

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/10/2008 9:41 PM (GMT -7)   
This is a seriously dumb question. I can't talk to my doc (dude may answer me in two months unless I tell them its an emergency and it isn't) but I have a serious question. What is my level of Crohns status? By YOUR standards, thoughts, knowledge, wisdom? Moderate, low, high? What?

What is remission really? I think its a "special" word like faith or liberty. They're concepts that are incredibly impossible to explain to someone who has no idea of what they are but we know what they are on a basic level. I mean this by saying, if you were explaining to a barely English speaking person in English slang.

Also, what are your thoughts on the word Remission? What makes you categorize your disease and what do you categorize it as? turn thanks for your thoughts.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/10/2008 10:06 PM (GMT -7)   
well, I cannot give you my "wisdom" LOL, if I don't know what your current symptoms are first...and secondly in my opinion remission means being just like you were before you ever got sick...when I start pooping one good/normal poop a day and have complete bowel control and the anal tags on my arsehole are gone then I'll be in remssion, because that's basically how I was before I got sick 17 yrs ago now.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/10/2008 10:41 PM (GMT -7)   
I second what pb4 said..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

"He who has a why to live for can bear with almost any how."


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/11/2008 1:55 AM (GMT -7)   
I third on what pb4 also said.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/11/2008 4:37 AM (GMT -7)   
Hi I was diagonosed with severe CD.Had blockage,fistula,and a huge abcess.Complications associated with crohn's. As far as remission goes I sort of think of it as holding systems in a state as to not have alot of complications going on or inflamation. I don't think your question is dumb at all and your Dr. should have told you more about that .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/11/2008 11:07 AM (GMT -7)   
depends ... so old school docs use the Crohns Disease Activity Index

http://www.ibdjohn.com/cdai/
 


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/11/2008 9:05 PM (GMT -7)   
Okay...took it and got a 240. Where can I find out what my results mean?
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 12/11/2008 9:47 PM (GMT -7)   
Remission is a relative term isn't it. Moderate to Severe here. 3 times a day loose or not and all bloodwork is within normal ranges and no bloody stools...that's what I refer to as "medical remission". To be well like I was prior to Dx would be total remission IMHO! Now if I could figure out how to get rid of the joint pain from the Crohns and the Fibro that would be a magic spell for the big book wouldn't it! Oh yeah and a decent night's sleep!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.

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