Just diagnosed with lactose intolerance.....noooooooooooo!!!!!!!

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justin r.
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Date Joined Dec 2008
Total Posts : 3
   Posted 12/11/2008 3:54 PM (GMT -7)   
I am soooo maaad!! After eating the world's best Brownie Sundae Cheesecake I got really really sick. I had the worst cramps and gas like crazy, but I just thought it was the spices from the dish I just ate. The next day, I eat some pizza and a salad (that had a sprinkle of cheese and Parmesan on top) and I had the same symptoms return. I went to the doctor and he told me I lost my ability to breakdown lactose.

He told me about what I can do to try and still have some dairy and they are horrible. I did the yogurt diet (failed), tried avoiding dairy, soy and rice-milk is disgusting, and sometimes I just eat the dairy and suffer the consequences. I hate Lactate because I have to always take the pills everywhere and take it before meals. I accidentally ate some dairy once because the restaurant used butter to cook the dish and I was so embarrassed when the gas and cramps kicked in. I'd rather eat dirt than go with soy and rice-milk again!

Right now I avoid dairy but I'm not going to do that for long!!!! I miss my pizza, cheesecake, ice cream, real milk and Oreos, buttered croissants, and everything else that delicious. I hate this crap!! Why me?!

I read on a lot of sites that people take Lactagen and are able to eat dairy like normal people do. They don't have to continuously buy pills, take something every time they eat dairy and they have no symptoms. I am highly considering trying this out to get back to my Brownie Sundae Cheesecake. What can you tell me about Lactagen?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/11/2008 4:20 PM (GMT -7)   
Well I have a fantastic solution for ya...I too became severly lactose intolerant and relied on the lactaid products but since taking Primadophlius Reuteri made by natures way (probiotic) which happens to aid with lactose issues as well as high cholesterol if that's an issue as well, regardless it works great...and you're kinda killing 2 birds (or more) with one stone because probiotics happen to be essential for IBDers since we have bacterial over-growth so it's helped my CD as well as my lactose and even my IBS issues.

It's affordable and only one/day is needed, only downside is it must be kept cold, but worth that hassel for sure in my books.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 12/12/2008 10:01 AM (GMT -7)   
I'm from Wisconsin and I would just cry if someone told me I couldn't have dairy. It looks like my PCP is finally going to give me a reference for allergy testing! I'm both excited and nervous for the results-hopefully no dairy issues for me. :)
Bad flare May '06 resulted in CD diagnosis
 
Asacol: 4800 mg/day; Entocort: 9mg/day; Metronidazol
Started seeing a Naturopath-Castor Oil Packs, Liquid B Complex, Floragen, Ribes Nigrum, Herbal GI, Chlorella
 
"Life isn't about how to survive the storm, but how to dance in the rain"


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2008 10:29 AM (GMT -7)   
PB4 has some good tips for you. But I did want to tell you many (not all) are lactose intolerant. I use the lactose free milk and I like it just as much. Maybe try that.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/12/2008 11:46 AM (GMT -7)   
However, lactose free milk is usually a lot more expensive than regular milk and with taking the Primadophilus Reuteri everyday then you can have any type of dairy/lactose (which is found in other food/drink items besides in dairy) worry free.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2008 2:50 PM (GMT -7)   
True....True PB4.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/12/2008 4:06 PM (GMT -7)   
I'll pipe in as a fan of lactaid. I use the lactaid cheese in my sandwich and soy milk for cereal. I still eat tons of meals w/ dairy and just take two lactose pills before. I know you said they are a pain for you but I find them a lot easier than taking another pill daily. I also tried a probiotic similar to the one PB4 takes but it made me very sick. For me the lactose pills work fine and I am not messing with it. I keep 2 in my wallet at all times. After I use them I put 2 more in when I get home.

It only becomes an issue when I want to take them where taking pills would be against ettiquette. For ex: a lunch interview. Then I just avoid ordering dairy or take them in the bathroom.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/12/2008 5:07 PM (GMT -7)   
Hey Fitzy, you should try the Primadophilus Reuter made by natures way (I use the caps, much easier than the powder), it's done wonders for my severe lactose intolerance issues.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 12/12/2008 5:12 PM (GMT -7)   
dude, we're all lactose intolerant here. it sucks but oh well. things could be worse. you just need to learn how to adjust like we all did. you can do it. digestive enzymes help.

eliminate milk or have it small quantities. switch to goat or sheep milk cheeses and yogurt as you should tolerate these better. stay away from all milk substitutes except almond milk as the others arent too healthy, especially soy. there is coconut based ice cream out now. a bit expensive, but it is lactose, soy, and wheat (gluten) free. good stuff. tastes great.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/12/2008 6:55 PM (GMT -7)   
No thanks pb4 the one I tried made me very ill and the ones I take now work great! Why mess with it?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 12/12/2008 7:41 PM (GMT -7)   
Lactose intolerant. I learned it was the least of my problems. Cereal with water is actually good. I can tolerate whole cheese that's it. It's a hard dose to swallow right away , but you will get used to it. I'm allergic to Soy and the replacements don't work. But it's okay!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/12/2008 10:57 PM (GMT -7)   
Crohn'snme said...
Lactose intolerant. I learned it was the least of my problems. Cereal with water is actually good. I can tolerate whole cheese that's it. It's a hard dose to swallow right away , but you will get used to it. I'm allergic to Soy and the replacements don't work. But it's okay!
You know that the amount of sugar in a bowl of cereal is equivalent to about 50 donuts shocked
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/12/2008 10:59 PM (GMT -7)   
I think it depends on the cereal - there are a lot of healthy ones and then others that are more like dessert. In my family we are careful we get the healthy whole grain, fiber, protein etc cereal. Though Captain Crunch makes a good dessert.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/12/2008 11:04 PM (GMT -7)   
Most, even the healthy ones will still contain too much sugar, the main thing they can get away with advertising it as healthy is simply adding a little more fibre to it, maybe around 3-5 grams of fibre rather than 1-2...but the sugar content even in the "healthy" ones is generally higher that what it should be to be truly considered healthy...10 grams of refined sugar a day total (meaning in all the foods combined eaten in a day) is the maximum recommended amount according to most health acts. I'm betting even in most of the "healthy" cereals it goes beyond 10 grams per serving.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 12/12/2008 11:18 PM (GMT -7)   
yeeeeaaahhhhh i just dnt haf milk,or cheese......pretty much one of the easiest foods to elimanate frm my diet....cerals with fruit and dont eat ice cream.....and im frm NZ im surrounded by cows adn milk products......
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 12/12/2008 11:23 PM (GMT -7)   
i just had a crazy thort.....imagine if i didnt have crohns disease but was only lactose intolerant........IMgaine......i kinda find this post insulting.
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/12/2008 11:50 PM (GMT -7)   
Lets not be rude to the OP - first we don't know if the OP has crohns and lactose intollerance or just crohns. Whenever anyone has to make a radical change to their diet it is confusing and devestating. Eva - do you have lactose problems in addition to crohns? Undiagnosed lactose intollerance is EXTREMELY painful and has pretty much the same symptoms as my crohns. I have both. So I don't think it is insulting for someone to find out they have it, be upset, and want help. I'm sorry you were insulted but I think it is a very valid question.

My diet used to revolve around dairy products - I thought they were "safe" foods. It was a hard change but I am used to it now. I was truly in denial and told my doctor over and over "no I'm fine w/ dairy."
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/13/2008 12:19 AM (GMT -7)   
Lots of people have lactose intolerance even without having an IBD. Lactose intolerance can easily be disguised by IBD symptoms (gas, bloating, D) and it happend to me, I had no idea I became lactose intolerant because the symptoms were being masked by my CD so I actually got tested for lactose intolerance and sure enough I am. I think all IBDers should get tested for lactose intolerance for that reason (easily masked by IBD). Thankfully I've got it under control (initially using lactaid pills) then discovering that the probiotic I take specifically aids with lactose issues as well as other things like some of my CD issues and for women vaginal health and also for high cholestero (which I also had).

I don't find anything insulting about this thread at all and I'm confused as to why anyone would.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 12/13/2008 9:18 AM (GMT -7)   
PB, my cereal isn't full of sugar, but lots of fiber. LOL!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2008 9:24 AM (GMT -7)   
I also think we should be respectful of what others eat. I always see folks saying don't eat this don't eat that. I eat what I can and avoid what gives me problems. Our diets are so individual that some can eat some items without problems and other get really sick eating the same item. Sugar may hurt one person and not another. I am lactose intolerant but can eat cheese no problem and also can eat small amounts of ice cream no problem. I just can't drink milk. So lets remember that we are all individuals and our diets many times are too. JMHO
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/13/2008 1:59 PM (GMT -7)   
Crohn'snme said...
PB, my cereal isn't full of sugar, but lots of fiber. LOL!
That's good, fibre is our friend, unless you have issues with blockages/strictures, which thankfully I don't.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/13/2008 2:08 PM (GMT -7)   
Nanners said...
I also think we should be respectful of what others eat. I always see folks saying don't eat this don't eat that. I eat what I can and avoid what gives me problems. Our diets are so individual that some can eat some items without problems and other get really sick eating the same item. Sugar may hurt one person and not another. I am lactose intolerant but can eat cheese no problem and also can eat small amounts of ice cream no problem. I just can't drink milk. So lets remember that we are all individuals and our diets many times are too. JMHO

I agree nanners to a point...when I talk about diet I don't try to nono people, I just try to encourage people to try eating as healthy as they can...common sense shows that if all you're putting in is junk then like they say "you are what you eat" and I know people are limited to what they can and can't have and I have never tried to make anyone feel bad for that, just want to encourage people that there are tons of food choices out there that are healthy.  I also try to educate when it comes to lactose issues, like you said you can eat cheese, would that be the orange cheeses that you can tolerate?  Because those have much less lactose in them then the white cheeses and if milk is your only issue then maybe it's the casein in the milk (a true milk allergy which differs from a lactose intolerance issue).
 
I hope no one misinterprets my posts/replies when it comes to food, I truly am not giving you the nono on your food choices, just trying to help with what I'v learned over the yrs when it comes to diet and IBD because it can have such an impact on ones health so I only share because I care.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 12/13/2008 5:48 PM (GMT -7)   
soory bout my post just had a bad day at work with ppl judging me on what i did and didnt eat......gets annoying when ppl are paying constant attention to wat u are doing and think ur making things up,like for a work lunch i didnt eat onions,lettuce and tomatoes like super bad things for crohns and someone just had to point out that i left all the healthy things on my plate,i agree that ppl shld just eat wat works for them i rember my nutritionst mentioning some sort of cheese that doesn't have lactose in it thou i never did figure out wat sort it was,and im trying to get my diet as healthy as possible atm within crohns reason
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/14/2008 9:00 AM (GMT -7)   
Actually PB4 my cheese I eat is white:) I eat motzarella cheese on sandwiches and quesadillas. But to tell you the truth I think I do orange okay too. No offense meant/taken, its just that sometimes folks get a little crazy on pushing the SCD or Makers Diet or their own personal diet choices, and I think people have to find out what they can eat and what they can't. I think its great that people share what works for them, but sometimes folks get a little carried away (IMHO). Its just that those diets don't always work for everyone. I am blessed with a milder form of Crohns and find that the low res diet works great for me.
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/14/2008 6:18 PM (GMT -7)   
Wow nanners, it certainly sounds like you have some kind of messed up lactose intolerance issues???? It's weird that you do okay with white cheeses, maybe it is the casein in the milk that is causing you issues rather than the lactose (casein is the allergy to milk not an intolerance) and I hear ya on the special diets, apparently the way I eat is similar to the SCD I think it was that someone pointed out to me but I'm not even fully aware of what the SCD is, I just eat with common sense, no refined sugar or artificial sweetners, nothing processed or fast-foods, caffeine or animal fats, just fresh meat, fish, fruit and veggies and some grains.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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