When Crohns attacks

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Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 12/12/2008 4:36 PM (GMT -7)   
I'm in the middle of a bad flare up. Everytime I try to eat something I feel like I'm going to throw up. I have a constant stomach ache all the time, and am having a good amount of diarrhea. I've tried to put myself on a low residue diet, avoiding foods such as veggies and whole wheat hard to digest products. I've lost about 5 pounds in 5 days. Last night I was over at a friends house and ended up having such horrible stomach pains that my friend had to drive my car home for me, she wanted to take me to the hospital, but I wouldn't let her. For some reason I just feel bad going there.. my parents think I over react alot with the pain. They just don't realize how bad it can get. It was so bad I literally couldn't move. Usually when that happens I end up in the ER with some IV morphine, which seems to really help. I came home, took a vicodin for the pain and a levsin. It seemed to help a little bit. I'm just frustrated about the bland diet and lack of options in food right now. Not to mention the horrible pains. My doctor put me on flagyl until my appt. with him next thurs. I honestly don't know how long this misery can last. Are there any suggestions about diet or ways to deal with this pain? My GI doc has never given me pains meds before, and I'm afraid to ask because its just another pill I'll have to take.
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Flagyl 750mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Flexeril 10mg, Volteren 75mg

- Emotional wreckage... to great to even begin.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/12/2008 6:17 PM (GMT -7)   
Hi Just wandering if you get blockages. I know they are painful and I ended up getting admitted when I had mine. Some people herre take pain meds .Has your Dr. suggested another med? Hope things will improve soon .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/12/2008 6:48 PM (GMT -7)   
I think having a bottle of pain medication on hand for emergencies is necessary. As for your pain, I'm really sorry. I'm going through the same thing and no matter what we do nothing seems to work. If your pain persists then you shouldn't worry about going to the hospital. Worrying that other people think you are overreacting could lead to some serious problems if you allow their ignorant sentiments to dictate how you treat your illness.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

"He who has a why to live for can bear with almost any how."


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 12/12/2008 8:33 PM (GMT -7)   
As a father, I really don't like to see how this disease is interfering with your young life. Have you had any success in gaining remission? Hopefully, the GI will put you on something to re-gain remission and something to help maintain it for a long time. How do you feel when not flaring? I don't want to overstep, but Wellbutrin is a powerful drug, that I hope you have only short term plans for. Good Luck, keep posting, there are many people here that can help.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa.


Laslow
Regular Member


Date Joined Oct 2008
Total Posts : 25
   Posted 12/12/2008 8:58 PM (GMT -7)   

I can remeber my worst flare. Up all night hitting the bathroom every 20minutes this would last from 10:00pm to 3:30 am. Finally it would stop and I would sleep until mid morning. The only that helped was t3 and oxycoton. Finally I took the Pred and it settled my flare. I know its hard but keep your head up. Drink lots of water and keep too simple foods. Good luck

 

Cheers

Jay


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 12/12/2008 9:01 PM (GMT -7)   
I had my bowel resection a year ago, and was only in remission for about 6 months before the Crohns came back. That 6 months was amazing. School was alot easier to get through.. my gpa went from a 2.5 to a 3.0. haha, but this is reality, and I try my best, do what I can, and my professors are really good with me. So I can't complain. I didn't know wellbutrin was a strong drug.. I'll have to get some more information on it. I really don't think I need it anyway. Ironically I work at a hospital in the critical care unit... 12 hour shift tomorrow, at least if I can't make it, i'll be somewhere where people understand.
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Flagyl 750mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Flexeril 10mg, Volteren 75mg

- Emotional wreckage... to great to even begin.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 12/12/2008 11:37 PM (GMT -7)   
Pain is a very tiring thing last year before my resection i was in a ALOT of pain and i now relise i shld of been in the hospital just before my surgery...as for you i think if ur pain is bad and ur losing alot of weight and ur hafing trouble eating etc maybe a stint in hospital on drip and fluids myte help things,as for people nt understanding the pain,that can be frustrating esp when crohns pain is kinda hard to describe my parents are very supportive of me being able to recongnise the pain im in and my mum even sed my pain thresh hold was higher than my older bros lol also concerned that ur taking your pains meds.Pain is ur body saying something is wrong,dont you want to fix the problem not hide it? i mean us crohnies cld just keep taking anti D meds and be okish but that wont help the crohns will it?
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


sulleysullivan
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/14/2008 4:40 PM (GMT -7)   
it sounds like it could be a blockage if it's so bad you can't drive i think i would go in

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/14/2008 6:28 PM (GMT -7)   
I'm so sorry for what you're living through. Don't forget: Ensure isn't that bad and it's sorta hard for me to vomit up so I'd hope it'll help with you. You could manage some plain ole white bread? I can usually get that down. After I left the hospital last time, the only food I could stand to eat was Spaghettios. I'd eat half a can for each meal and it helped since it was just a teeny tiny bit flavorful and mostly just plain ole pasta that's super soft. And when it comes to vomiting up; it really isn't the worst to puke. Rice is (IMO). Good luck and I hope its just a bad flare and nothing worse.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

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