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sherry68
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/13/2008 6:44 AM (GMT -7)   
Hi, I'm Sherry and yes I have an Ileostomy due to Chrones, It will be 4 years on Feb 17th that I had this life changing experience! Never felt better, I was on Deaths door just before my surgery and now I have a new lease on life, I HAVE A LIFE!!!! turn   Looking forward to seeing your posts and reading them maybe I can be of any assistance or maybe someone here could help me?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/13/2008 7:21 AM (GMT -7)   
Hi Sherry Welcome to Healing Well and glad you have joined us. How long have you had crohn's? Glad you are feeling good now it can be a hard disease to deal with at times. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2008 8:41 AM (GMT -7)   
Hi Sherry and Welcome to Healingwell. I hear so many folks talk about how much better they feel with an ostomy. Hearing so many folks talk about how much better they feel, helps me at least not to fear it should the day ever come should I need one. You will be a great asset for those looking at a ostomy in the future. We are glad to have you join and I look forward to hearing more from you in the future.

God Bless
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 12/13/2008 6:06 PM (GMT -7)   
i had a temp illeostmy and i reallly liked it lol i mean not the cooles tthing for a 20 yr old to have but it was a good learning experince so if i ever need one or i get real sick i knw its a good choice,and i sometimes miss it
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


sherry68
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/13/2008 8:01 PM (GMT -7)   
I'm 40 now and I was diagnosed with having Chrones at the age of 24, I had a couple resections prior to the Ileostomy. Thank you for such a nice welcome I do have to say though at first it is of course very hard to get used to find the right one that fits your stoma can be discouraging let me tell you, I had leaks after leaks etc, I also just wanted to die! to be honest but I left my family after 4 months to deal with it granted it only took me a week, but I left to figure this whole thing out! I DID! Came back and thought well I have it I might as well deal with it !!!!!!!! and I did!!!
But please if you have to have one take the time like I did just to manage things, emotionally and pysically, you "you" just may be the type of person that needs people to be around you all the time saying AH IT"LL BE ALRIGHT!! My family was wonderful about helping me out but in the end it's ME with the bag on my stomach not them! Like I said before had i NOT HAD THIS DONE MY SON WOULD not HAVE A MOM TODAY~! It works for me now just gets in the way sometimes when it fills up, just feels like a water balloon is hanging there, I still hate that, but oh well I have nothing I can do about it!
But I have never felt better I have a wonderful healthy life the ostomy saved my life!!!
Diagnosed with Chrones Disease in 1982
Total Colectomy 2005
No Meds to date:
Never felt better: I HAVE A LIFE NOW!!!


sherry68
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/13/2008 8:02 PM (GMT -7)   
Sorry I wrote I was diagnosed in 82 I meant 92 LOL
Diagnosed with Chrones Disease in 1982
Total Colectomy 2005
No Meds to date:
Never felt better: I HAVE A LIFE NOW!!!


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/14/2008 2:31 AM (GMT -7)   
Hi Sherry, Welcome to HW. You have found a great place here. We will always be hear for you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/14/2008 5:30 AM (GMT -7)   
Hi Thanks for sharing and glad that it has given you a life that you can share with your family and others. It is always good to see some good come out of surgery .Hope you stay well for a long time. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/14/2008 1:31 PM (GMT -7)   
Sherry, I hope we'll be hearing more from you! It's good to hear a positive story about having this procedure done and living with. Do you mind if I ask how it changed your diet, exercise routine, etc.? I suppose I'm just really curious as to what it is like in general...I'm really glad to hear it's improved your life so much :) It's a wonderful thing to read!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

"He who has a why to live for can bear with almost any how."

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